Can anyone with experience or knowledge of an ectopic please advise me?

[YourCoralPoster]

Hi everyone.

About 5 days ago (when I should have been 5+5) I began to have brown spotting and bad right sided pain. I went to A&E worried about ectopic. They basically told me they couldn't do a scan, took bloods, told me my HCG was 2,100 - and sent me home telling me to come back if pain or bleeding got worse.

2 days later I managed to get a scan at EPU. They confirmed a small mass in right ovary "measuring 16 x 14 x 9mm." It also revealed "some haemorrhagic free fluid seen in the PoD." They said they thought it was blood.

They re-took my bloods then sent me home saying they'd make a plan depending on my HCG levels.

Soon after, they called and said they hadn't got the blood results back yet but they wanted me to have surgery because the fluid was concerning/could mean the ectopic was leaking or starting to rupture.

So, I went back in, signed consent forms, was preparing for surgery, when they came back and said "Actually your HCG has dropped to 800 and since the mass is so small we don't want to rush and remove your tube. Let's just wait and see and re-do bloods in 48 hours."

I went home (extremely anxious) and now this morning had the repeat blood tests at 9:00 AM. Nobody has called me with results or uploaded them. I've called just about every number on the sun and they're all either not answering or can't help me.

I'm so so scared. I've read so many stories of people bleeding internally/not knowing they've ruptured and end up almost dying.

Physically, I feel pretty fine. Some light spotting and mild pain in stomach at times. But now I'm not going to be able to speak to anyone until Monday which is almost 2 days away. I have no idea if my HCG has lowered or increased, if I'm supposed to go back on Monday for another test or not, or what's going on.

What if the fluid inside me a few days ago was blood and I've been internally bleeding since? What if I've ruptured and I don't know?

I can't relax. And the 2 times I've gone to A&E in the last week I've ended up sitting there for hours and hours, they won't scan me, and basically send me home saying come back if it's worse.

Sorry you’re going through this - it’s awful. Did they offer methotrexate to treat before offering surgery?
My experience of ovarian ectopic was brown spotting very light bleeding and pain that progressed from mild to severe where I couldn’t walk, over the space of 3 days.
I had been internally bleeding for days but unaware. Had originally consented to planned surgery but then was blue lighted into emergency surgery- same day as planned surgey but became urgent when I passed out in A&E.
If your pain progresses at all, go to A&E. I didn’t have any shoulder pain etc only pain in my rectum and then on my side.
sending you hugs

I had an ectopic which was managed conservatively. After the initial admission, prompted by bleeding but still having relatively high hcg levels, I spent three weeks going back to the hospital every other day for blood tests and monitoring, so that they could check levels were continuing to fall. I had strict instructions to go in immediately if I felt at all strange or had any shoulder tip pain. At the time it was quite traumatic, that it dragged on for so long, but I’m pleased they didn’t do unnecessary surgery. If they thought there was a chance you were in danger they would do the op.