Pregnancy with fibromyalgia

[MrsOaf37]

Hi I'm 37 next month and really thinking about having a baby before it's too late. I never thought I could be a mother due to fibromyalgia since I was 13 and feeling my health would get in the way of giving my child my best. But these last few months I've realised I'm running out of time. Does anyone have any advice or perspective based off experiences that could help? I've been married 11 years and my husband is supportive of whatever decision I make. My health means I'm unable to work so I don't have to worry about mat leave or anything. I'm just worried pregnancy will make my fibro worse, wouldn't be able to rely on my pain meds, amitriptyline and codeine and then I'm worried about not being able to do all the mum stuff after because of pain fatigue and brain fog etc etc. Please any experiences good or bad would really help right now xx

I don't have experience with fibromyalgia although I have immune issues and got prescribed LDN. Apparently, LDN is very good for fibromyalgia.

I also have chronic migraines and LDN has stopped all of them. I'm also taking daily 150 mg aspirin. LDN is safe in pregnancy. You could try it before TTC.

I have fibro and other muscular and nerve problems,I'm 40 and had my first baby in April this year. I didn't find out I was pregnant until 1st of April and Mia was born via general anesthesia cesarean on 18th of April,I had no idea I was pregnant so to say I was shocked was an understatement! But I was very concerned that the meds I was taking (gabapentin, amitriptyline, codeine, baclofen, clonazepam, naproxen)would of harmed the baby-she had some withdrawal symptoms but because maternity knew my situation they prepared and she spent 3 nights in scbu. In total we spent 6 days in hospital, Mia is perfectly healthy and I weaned myself down to 10mg of amitriptyline, 10mg of baclofen and reduced all other meds to enable me to be more alert as I was very worried about being on too much medication to look after Mia. I'm very lucky to have help from my parents,partner and friends. I do get even more tired than normal and I'm in a bit of pain but I can reassess my pain management when Mia is older and sleeping better. I had brilliant support from all the medical staff and my midwife was telling me that lots of women have babies with fibromyalgia and their pain improves after labour,but I'm guessing it's very individual, if you'd like to chat about anything just message me and I'll try to help 😀

I also kinda wrote off having babies due to worrying I wouldn't be very good at it due to my health,I also don't work due to the fibromyalgia but I'm managing better than I imagined xx

Obviously purely anecdotal but my sister suffered badly through her 20s with fibro (needing walking sticks etc) and when she was pregnant with my niece her symptoms pretty much disappeared and flare ups were no where near as bad. A dr did tell her pregnancy can have this effect on some, obviously everyone is different of course but that was a success story!

Hi, just joined this forum. I have fibromyalgia, anxiety and severe insomnia. I found out I’m pregnant last week and am overwhelmed and worried about the medicines I’m on. Been on tramadol for five years, zopiclone ,, promethazine, on and off melatonin, venlafaxine. I have reduced to 1 50mg of tramadol per day. But am really struggling with the lack of sleep, I’ve been trying to sleep on promethazine alone and I can’t sleep. I have appt this Friday , re meds. Then it will be nearly two weeks since I’ve found out, wish I could have the medication review asap. Any advice would be great , this is my first pregnancy. I don’t want to do anything wrong , but I really do need to sleep. So what should I do? Thank you x

@Miasmummy24
I know this is and old post but it would mean alot to me for a response. I suffer daily with fibromyalgia and very bad daily migraines
With my first child I took cocodomol and amitriptyline daily
My child is 2 and is non verbal and autistic I blame myself everyday for the meds I took during pregnancy but have been told there is no evidence to suggest this, I have recently found out im pregnant with my 2nd child but my pain is so severe I dont know if I could deal with the pain daily.

Was your child born healthy after taking medication? And neurotypical in reflection to Autistic?
Thankyou for taking time to read my message it will help me make a decision on what is best for myself and the baby.

Hi Jemlou92
I'm really sorry I didn't see your post from last year,how are you? Xx

Cmr1200,
Firstly please try to atop blaming yourself for your first child being autistic and non verbal,I imagine it's so difficult but everything I've been told and researched tell us there's no link between mums medication and autism. Mia doesn't show any kind of effects from me taking meds during pregnancy and the advice I got when I found out I was pregnant was to carry on taking my regular meds. Are you under the care of a good specialist? Keeping your pain under control is vital. Please let me know how you are xx

@Miasmummy24
Hi miasmummy24 ive private messaged you :)