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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Parvovirus/ Slapped Cheek Awareness

21 replies

gche · 18/05/2024 16:25

I just wanted to post some recent information on Parvovirus - also known as ‘Slapped Cheek’ and ‘Fifths Disease’
I was looking for information about it but couldn’t find anything helpful online that had been posted recently. Without wanting to scare anybody, there seems to be a huge rise in cases - it’s a common childhood virus which, in children, comes out as a temperature or cold or feeling under the weather, followed by a bright red or pink rash on cheeks/face. It is really dangerous for pregnant women to contract it between 9 and 20 weeks of pregnancy. I read that about 50% of the population are already immune (how does anyone know this, given there is no testing done?!)

I caught, what I thought was flu at about 12 weeks pregnant. It started with shivers and fever and whole body aches. It moved on with headaches and aching wrists and joints. I also vomited for a whole day, but wondered if this was my morning sickness. I then felt very post-viral for a few weeks. Only then did I wake up one morning with a bright red face (the rash indicates the end of being infectious) which I had for a few days / it was hot and felt like I had been sunburnt.
I had a chance conversation with my sister who said her daughters had it recently and that their school had sent out a letter saying there was an insurgence of cases.
I called my midwife who said I needed to find out if I had immunity or had a recent infection for Parvovirus B19. She took it very seriously - the GP had barely heard of it and didn’t know how to spell it.

If you have any of these symptoms, even without the rash, please tell your midwife or ask your GP.

It turned out that it had been Parvovirus and I was referred to Fetal medicine to be monitored.
I went for there for a scan on Tuesday - I was 16 weeks pregnant - to find that the baby had died from contracting Parvovirus. To have seen a healthy and active baby on my scan at 12 and 13 weeks and to have a low risk Harmony test and perfect nuchal scans, to being told there was no heartbeat and fluid all over the baby has been beyond devastating. I believe the baby can suffer from severe anaemia and Fetal hydrops amongst other things.
The most concerning thing was that the consultant said they usually see 1 case a year and they had seen 4 cases in the past week.

I don’t want to scare people but everywhere I read (particularly on Mumsnet) that it was fine and nothing to worry about and that nearly everyone has immunity. If we are experiencing an endemic then I think people need to be aware and do what they can to protect pregnant women. If there is an outbreak of chickenpox, nurseries and schools and GPs circulate information immediately. I also think that women should be tested for immunity in their booking in bloods so at least if they aren’t immune they can take precautions. I am aware that after 18 weeks in utero there are things they can do if the baby is unwell but I suppose the more cases there are, the more likely there will be some tragic outcomes. I just want to raise some awareness because if it saves one babies life, it’s worth it.

OP posts:
LaMariposa · 18/05/2024 16:27

I'm so sorry for your loss. It's rife at my sons school, and I think the risk isn't fully understood.

gigglesticks · 18/05/2024 17:41

I’m so sorry for your loss.

Just to provide another experience for anyone who finds this. I also contracted slapped cheek from my children recently (I was bright red over Mother’s Day weekend).

I was 18 weeks pregnant. My midwife referred me to the GP for the blood test and it took nearly 10 days to come back. There have been lots of cases.

i was also positive with no prior immunity. I was referred to fetal medicine for every other week scans with a consultant. She advised me as the previous poster about looking for signs of anemia and hydrops.

To date, all has looked well and I will be monitored for a few more weeks, with the aim of being discharged back to midwife care as long as everything stays looking ‘normal’.

i hope this is reassuring for anyone else who may be in this position, and echo that they do take it very seriously for a virus most people haven’t really heard of.

Welshcake15 · 18/05/2024 19:22

I had slapped cheek around 9 weeks with an atypical presentation as I didn't have any of the usual symptoms, but woke up one morning feeling like I had developed arthritis in every joint of my body overnight. I was also diagnosed with low haemoglobin at the same time and have now been told I also have low ferritin. My midwife was not overly helpful and when I suggested I may have been in contact with slapped cheek she said that "hormones" could have caused my symptoms and the anaemia! About two weeks later I decided I wasn't happy with this explanation and called my GP who arranged for me to be tested for antibodies, and when this came back positive he then referred me to fetal medicine and I have my first appointment on Monday. At my 12 week scan (at 12+6) everything looked fine, and I'm now 13+4, so I'm desperately hoping that everything is still OK. If I'm honest I'm absolutely petrified that my baby will become unwell. It's just such a scary time! This is my 3rd baby and I'd never even really heard of slapped cheek before this.

Flopsy145 · 18/05/2024 20:45

So sorry for your loss ❤️

It's at my dd's nursery and my midwife simply said "there's an epidemic just keep an eye on your DD" which I didn't find particularly helpful, I then tried to speak to my Dr about getting a test done to check whether I was immune, he said he didn't think there was a test that did that.. having read on here and multiple internet pages I knew that it was. He also gave me a "I'm no expert but the risk is very small' spiel, but the fact I had to fill the Dr in and raise the risks I knew about was shocking. He did not take it seriously at all.

I Def think it varies midwife to midwife and trust to trust how they're handling it which doesn't fill me with confidence that some have it in hand. I think testing for immunity should be done at a booking in appointment, that way at least the non immune can be extra cautious and be fast tracked to early check up scans if it's in the area/kids child care setting etc.

gche · 18/05/2024 23:06

@LaMariposa thank you so much - I agree, I feel like the risks are misunderstood or downplayed depending on who you ask. I found it so hard to find proper information.
@gigglesticks thank you so much. I’m so glad it’s all looking positive for you - it’s so incredibly stressful on top of everything else you have to deal with in pregnancy. My test took ages to come back too. I don’t know what the risks are with current cases but I think knowledge is power and making people aware of this virus will hopefully make a difference to some people. I wish you all the best with the rest of your pregnancy.
@Welshcake15 well done for pushing for the test. It’s so incredibly stressful and worrying but I think it’s good you have been referred and will be looked after properly. I had heard of slapped cheek but had no idea what it really was. I wish you all the best with your pregnancy.
@Flopsy145 thank you so much. I agree - I feel like it really varies with who you speak to - my GP was a shambles but my hospital took it really seriously. I also found it shocking how little was known about it by people who really should have known about it! All information also seemed out of date and irrelevant given there currently seems to be an endemic. I agree about booking in bloods and early check up scans to reassure. I know I was one of the unlucky ones and I although I am still reeling from it, I’m so keen to raise awareness so that my baby boy did not die in vain xxx

OP posts:
Busyhedgehog · 19/05/2024 06:29

I'm sorry about your loss and hope you recover quickly.

Regarding slapped cheek, though, I remember it already being a big deal before DS was born and he is now 7. I'm a primary school teacher and pregnant staff got sent home immediately when there were any cases at school. Letters usually went out to inform parents. I'm surprised your GP didn't know about it. It's a very common childhood illness and you cannot vaccinate against it.

We moved to Germany a few years ago and I'm currently pregnant with #2 (after several losses and years of trying). I was tested right at the start of pregnancy and generally staff get signed off work until the results get back. It's routine here, especially for people working with children. ( I was also tested for other immunities and keep regularly being tested for toxoplasmosis because I don't have immunity for that.) DS got slapped cheek while we were on holiday in the UK but we wouldn't have known had it not been for the rash. By that time, he wasn't contagious anymore. I checked in with my doctor when I came back and it seems to be really common here as well at the moment.

WolfMother326 · 19/05/2024 08:23

I am so sorry this happened to you, this breaks my heart. My sons nursery wrote parents to say they had a case of parvovirus/slapped cheek. We kept him off for several weeks from when I was 14 weeks pregnant. I eventually had a blood test that showed I'd been previously exposed but I was very worried he'd already caught it (we had a cold) and it took weeks to get the blood results. I agree there should be a lot more awareness.

I'm so sorry for your loss. Sending love.

Nocoffeenotalkie · 19/05/2024 08:32

I'm a teacher and 30 wks pregnant. I had a child sent into school with slap cheek. I work in the UK but I wasn't sent home. I had to have a blood test. Still waiting for my results.

Elisabeth3468 · 19/05/2024 19:04

This is really scary. I'm so so sorry for your loss ❤️❤️

sarahsarahsarahsar · 19/05/2024 19:42

I am so terribly sorry for your loss. I hope you have good people around you to take care of you. My heart goes out to you.

You are doing an important thing by raising awareness. You will reach many people who may never have heard of it. What a brave thing to do.

I had it as an adult and it was horrendous. A&E seemed unfamiliar with it too.

Welshcake15 · 20/05/2024 13:27

I had my first fetal medicine appointment today and everything looks good right now. I'll have appointments every two weeks until I'm 26 weeks. They checked baby's growth and blood flow to the brain and the blood flow along the umbilical cord as well as signs of fetal hydrops and ascites. Thankfully everything was looking reassuringly normal.

The doctor confirmed that they are seeing a big increase in parvovirus infections at the moment. They also advised that vertical transmission occurs in approx 20-30% of maternal infections, so there's a good chance that the baby won't have picked up the infection.

Justhereforaibu1 · 20/05/2024 13:37

I'm so sorry for your loss.
Both my kids have recently had it, the rash was awful.

ladycarlotta · 20/05/2024 15:40

I am so very sorry for your loss. What a shocking and tragic thing to happen. I really appreciate you spreading this information - there is slapped cheek at my daughter's school at the moment and I am really nervous at 20 weeks along.

Welshcake15 · 20/05/2024 16:00

ladycarlotta · 20/05/2024 15:40

I am so very sorry for your loss. What a shocking and tragic thing to happen. I really appreciate you spreading this information - there is slapped cheek at my daughter's school at the moment and I am really nervous at 20 weeks along.

Apparently having classic parvovirus symptoms of the slapped cheek rash isn't as common as you might think, and neither of my children or I experienced that symptom. If you think you might have possibly come in contact with someone who has had slapped cheek and you don't know if you're immune then please contact your GP to ask for an antibody test. The likelihood is that you've had it before, and even if you haven't the main risk with catching it is before 20 weeks, but best to check and get the advice and referral to fetal medicine if needed so you can be monitored.

ladycarlotta · 20/05/2024 16:28

Welshcake15 · 20/05/2024 16:00

Apparently having classic parvovirus symptoms of the slapped cheek rash isn't as common as you might think, and neither of my children or I experienced that symptom. If you think you might have possibly come in contact with someone who has had slapped cheek and you don't know if you're immune then please contact your GP to ask for an antibody test. The likelihood is that you've had it before, and even if you haven't the main risk with catching it is before 20 weeks, but best to check and get the advice and referral to fetal medicine if needed so you can be monitored.

thank you - I will get the ball rolling on this. Just going to check my Badger Notes in case it was included in prev antibody tests but I think the midwife would have mentioned if it was.

Flopsy145 · 20/05/2024 16:33

ladycarlotta · 20/05/2024 16:28

thank you - I will get the ball rolling on this. Just going to check my Badger Notes in case it was included in prev antibody tests but I think the midwife would have mentioned if it was.

I don't think they include this as a standard and usually only done on request!

sarahsarahsarahsar · 20/05/2024 16:37

On symptoms I never had a rash on my face. I had exhaustion and terrible joint pain. I would never have realised if it wasn't for an amazing GP.

Welshcake15 · 20/05/2024 16:47

sarahsarahsarahsar · 20/05/2024 16:37

On symptoms I never had a rash on my face. I had exhaustion and terrible joint pain. I would never have realised if it wasn't for an amazing GP.

This was the same as me. Didn't have any of the normal symptoms apart from the joint pain, which was horrific!

TheKatzKlaws · 21/05/2024 15:39

A colleague at work has just told me that her son has got slapped cheek and her GP told her if she has been in contact with anyone who is pregnant to tell them to speak to their GP/midwife. I called my maternity triage and they said to monitor for symptoms and if feeling unwell come for a blood test. They didn't seem too concerned as I hadn't been in direct contact with the child. I'm 23 weeks so maybe means I'm lower risk? I feel like I should speak to my GP as well for reassurance after reading the posts here. There really is very little information online about this. I'm so sorry to hear of you loss OP, thank you for raising awareness. X

Walkthelakes · 21/05/2024 15:46

I’m so sorry for your loss. My two daughters had slapped cheek recently and the nhs advice is to send them into school. I never saw any warning sent to parents from the school even though I alerted them.

Welshcake15 · 04/06/2024 06:53

Just updating this thread. I'm 16+6 and had another fetal medicine appointment yesterday, and thankfully everything was fine. No signs of hydrops or anaemia. I've got another scan in two weeks and then my 20 week scan two weeks after that. If all is fine I'll be discharged from the fetal medicine team as the danger zone is the first 10 weeks after the maternal parvovirus infection. Feeling like I can relax a bit as my infection was about 9 weeks ago.

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