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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Visually impaired Mumsnetters

14 replies

Princesstandy · 02/04/2008 21:40

My friend is totally blind and 31 weeks pregnant. She will be delivering her baby by C section next week due to complications connected to her diabetes.
I just wanted to find out if there are any visually impaired Mumsnetters out there who could offer help and support.
She is online and her computer has been adapted with voice (I don't know how well) so it would be a great souce of information and tips for her.
She doesn't have any contact with anyone else in her position and admits to being completely ignorant of new developments to aid the visually impaired but I think this is a good time to find out whats available.
I am blessed with good eyesite and I found early Motherhood a bit of an assault course - I don't know what I'd have done without Mumsnet and I would love my friend to benefit too.
I would appreciate help from anyone who has experience of Motherhood and blindness.

OP posts:
Are your children’s vaccines up to date?
LilyMunster · 02/04/2008 21:42

good on you.
wish her congrats and welcome to mn.
(cant help on the visually impaired experience fron tho, soz )

Blu · 02/04/2008 21:43

Wannabe is a regular poster who is visually impaired - bump for wannabe, or perhaps if anyone sees her about they could direct her here?

NotQuiteCockney · 02/04/2008 21:43

I think wannaBe is blind, with a seeing-eye dog.

NotQuiteCockney · 02/04/2008 21:44

Her dog even helps her cook!

Califrau · 02/04/2008 21:51

This reply has been deleted

Message withdrawn at poster's request.

Princesstandy · 02/04/2008 22:49

Wow so quick - I haven't been on here for ages and I'm sooooo impressed!
How do I get hold of Wannabe? do I just wait for her to pick up the thread?

OP posts:
NotQuiteCockney · 02/04/2008 22:52

I've put a link to here on one of her threads, I'm sure she'll check in when she's next on MN.

wannaBe · 03/04/2008 10:11

hello .

I am totally blind and have been since birth, and I have a 5 year old DS.

I don't think i found early parenthood any harder because of my disability, but then as I have been blind since birth I don't know any different, so the way I do things has always been that way iyswim? There were some learning curves along the way though, e.g I went out and bought a fabulously easy (and hidiously expensive) to push/fold/steer travel system thinking I had it all covered. we could walk everywhere, and if I went into town and had to get a cab home I'd have a carseat too which I could then strap ds into the taxi in while I folded the rest of the buggy and off we'd go, only to discover that having a guide dog in one hand, and a buggy in the other really isn't the practical way to go. I never made it past my front door, instead I went out a week after ds was born and bought a sling, and progressed to a back carrier when ds grew out of that. There are some people who have harnasses made so they can pull a buggy behind them rather than push it, but tbh I was never comfortable with the idea of dragging my child behind me across roads and through (potentially closing) shop doors, so the sling ultimately worked best for me.

Also I came down to earth with a bump when I was unable to breastfeed and was faced with the reality of how to make up bottles without being able to touch the formula or the water, or the teats when you remove them from the steriliser. We had to develop a system which involved measuring cups, a funnel and a spatula for levelling the top of the scoop of formula. That worked well for me, although I found that getting dh to do it instead was a good way of keeping him involved .

There are advantages too. At night I was able to feed/change ds in the dark, which meant he never fully woke up, and generally went straight back to sleep when I put him back down, and learned the distinction between night and day very quickly.

Obviously there are things you learn as you go along. I found the hardest thing for me was letting ds go in a public place such as a park, and knowing that he could run anywhere and I couldn't see him. But ultimately the only way he would ever earn my trust was to let him go, so I had to do it. And of course there comes a time when children realize that mummy not being able to see has its advantages, and they do things they think you won't know because you can't see them doing it. .

But on the whole ds is very aware, he knows he can't just show me a picture and expect me to know what it is for example, and as a result he is very good at explaining things. Even his friends/other children who I come into contact with are a lot more aware and know that they, for instance, have to put something in my hand if they want me to look at it. I help out in reception once a week and although I do have the occasional child say to me "look at my picture", on the whole they have all gained immense awareness IMO.

I swore I would never make ds compensate for the fact I can't see, ie I would never ask him to do things for me just because i can't see (for instance I know a blind couple who bought their sighted dd a car for her 17th birthday, on the proviso that she drive them, and their blind friends, everywhere they wish to go whenever they wish), but I hope that me being blind wil mean ds will grow up with a greater awareness, and tolerance for the fact that not everyone is the same, and that not everyone does everything in the same way.

I do think that how a person copes does depend on their level of independence. I am fiercely independent, but I know people who aren't, and I do think that for them it would be more difficult.

Initially I would suggest that your friend should firstly insist on having a private room in the hospital. because navigating a ward when she's had a section and with a new baby will be a very daunting prospect.

Does she have a supportive dh?

Where does she live?

Sorry this is such a long post.

hth a bit.

Princesstandy · 03/04/2008 10:51

Oh Wannabe I was so glad to hear from you and it was great you wrote such a long post. My friend has been blind since she was 21 and is now 32. She hasn't learned to use the cane yet and she doesn't have a guide dog. She says she doesn't want to as she would be afraid to go into town anyway (I think her DH has had a lot to do with this decision being a bit over protective) in any case I think it's taken this long getting used to the idea of loosing her sight.
Although she needs to depend on others for leaving the house - she is fine at home and makes me feel ashamed of the state of my house compared to her spotlessly clean and terrifically organized home.
Her Mum is living with her at the moment so she will have help when DH is at work - I just think that the Mumsnet is like a life line for all those little/big problems that come up and something she will be able to access herself. Well thats when we find out how to use it - I was hoping you could offer advice there and I can have it ready for when she comes out of hospital.
I have never personally known a blind person before and I was shocked at my own lack of awareness - happily thats all changing and although I still mouth at her when she's on the phone and stand in front of her silently holding things out for her attention , I am getting better and she is very patient with me.
I understand that there is also another visually impaired Mumsnetter and I look forward to hearing from her too.
We live in Bedfordshire, close to Milton keynes. Where do you live?
It would be great to keep in touch Wannabe - at first I will post on her behalf but as soon as she gets out of hospital we can try and navigate our way around the site.
I can't wait to tell her that she can have access to Mumsnet. Thank you so much for your help

OP posts:
wannaBe · 03/04/2008 16:31

Not being able to use a cane or be able to leave the house alone is very . I am going to be rather blunt now, but her dh needs to learn to let go, and allow her to have the independence she both needs and deserves, and is capable of.

She is going to be a mummy soon. And one day her baby will grow up knowing that mummy can?t take him/her out/can?t drop him/her off at school or pick him/her up, and this really doesn?t need to be the case.

Confidence comes with practice, and although the prospect of going into town alone is very daunting at the moment, there was a time when she would have done all these things on her own, the fact that she now can?t see doesn?t have to change that.

I would strongly advise her to get a guide dog, simply because it?s so much easier with a dog, especially if you have a baby/toddler, because although you do have to work as a team, it?s much easier to concentrate on where the dog is going while also paying attention to your baby, than it is to concentrate on every bump, every hole, every obstacle with a cane. Although cane training is also valuable as there do come times when you might be without a dog and suddenly the realization dawns that you didn?t keep your cane training up to scratch (not speaking from personal experience of course, oh no not me. ). Also if she got a dog then the trainers will help her with routes she will need to learn, the shops, the schools, the parks, the mother and toddler groups.

Being at home with a young baby can be isolating. Being at home with a young baby and unable to just go out for a walk when you feel like it would be horrendous IMO. She needs to do this. She can start out with some cane training and look into getting a dog if she chooses, but she really really needs to get back her independence, for herself as much as for her baby.

How does she cope at home? You say the house is imaculat, does she cook? Do the cleaning herself? (my house is a tip, but that has more to do with the fact I can?t be arsed than my inadequacies as a domestic goddess, ).

I use the computer with the help of a programme called jaws for windows. If she has this then it is easy enough to just come online, type in the site name and navigate using the cursor keys. It?s easy enough to do, but if she needs to I ca help her with setting up the programme to make it as user-friendly as possible. Alternatively if she?s using a different software package I?m sure I can find some help for her.

There is no reason your friend can?t do anything any sighted person can. I do everything my friends do. Before I had my ds I was a finance manager, now I am a good cook (the dog doesn?t really help, wish I could train him to do the hovering though ), I help out in my ds? reception class once a week, I am on the PTA and will be running the cake stall at the upcoming fate, and I have just been appointed school governor. So it makes me very when I hear of people who feel unable to have the independence they could, either through lack of confidence or lack of understanding from others who feel unable to let them go, iyswim?

With the right kind of support, there is no reason why your friend can?t be absolutely independent.

hth

NotQuiteCockney · 03/04/2008 16:45

Sorry for repeating the line about your dog helping with the cooking. Couldn't resist.

It is great to hear how independent you are, wannaBe. I may be blind when older (high risk of retinal detachment, also I'm a future diabetic). My mum was legally blind and just rubbish at coping. (She mostly just hid it )

Princesstandy · 04/04/2008 14:46

Thank you for your mail wannabe - food for thought. I have mentioned a dog before but she didn't seem keen (even though she is great with animals) - I think just at the moment she has so much going on that she is coping with one thing at a time. I will raise the independence conversation when things settle down a bit.
She does cook and clean and keeps house far better than I do but she also tells me she has never been very ambitious.
My experience is that becoming a Mother changes our ideas about so much that she may crave independence once she has her baby - I always found it easier to be out of the house when my ds was small.
The latest is that her baby needs to be born no later than 32 weeks for her sake (she has pre-eclampsia)and preferably not before 32 weeks for the babies sake - she is quite anxious at the moment.
They have given her a private room and she tells me she is navigating her way around it just fine - so thats good news.
I am blown away by your independence mostly because you seem to be doing more than I am with your life. The menopause has knocked me for 6 and I can't get a thing done. Time for a Menopause thread me thinks.
Lets keep in touch and I'll get that programe up and running as soon as she's home. Thank you for your support.
Am I right in thinking that Blindbint has recently given birth - I would love to make contact with her too.

OP posts:
crimplene · 04/04/2008 19:15

I don't have a VI, but there's a VI parents email list lists.rnib.org.uk/mailman/listinfo/viparents that's supposed to be very friendly.

They range from wonderful to terrible (too many bad ones), but is your friend in contact with a Rehabilitation Officer/ Moblity Worker/ whatever job title they have locally? A good one should be able to help with all sorts of different aspects of independence training, gadgets, ideas and technology. They're usually employed by Social Services departments, but some charities also employ them and they're usually better - Guide Dogs for the Blind have good ones, whether your friend is in the market for a dog or not.

moondog · 04/04/2008 19:23

It's so interesting hearing about your life Wanna.
(Hope that doesn't sound patronising-not meant to be at all)

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