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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

1:2 chance of Down’s syndrome - losing my mind

8 replies

Stressed2024 · 21/03/2024 23:24

Hello everyone,
I haven’t posted here before and found the forum when searching around NIPT.
Long story short, my 13 week combined screening tests came back really negative with a 3.2mm NT, 0.45 pappa and 3.27 hCG, giving me a 1 in 2 chance my baby has DS.
I've been advised to have the NIPT and I’m now waiting for the results. I’m honestly not coping well and feel like I cannot control my anxiety and pessimism. Every time I try to think positive I think of the above numbers and freak out. I know that many women receive a low chance NIPT result, but I keep thinking this is impossible with these numbers and even if I get a negative for DS these numbers will mean something else bad for my baby. A year ago I had an ectopic pregnancy and this is really killing me.
I don’t know what I’m asking for with this post. I suppose I’m looking for others going through this or having been in the same situation.

OP posts:
Violetandgreen · 21/03/2024 23:27

Sorry to hear you are going through such a stressful situation. I had a high risk for ds result years ago. The tests were a bit different back then, but I remember the worry and stress vividly. Sending a hug and hope things all work out for you.

whatsitcalledwhen · 21/03/2024 23:29

I don't have words of wisdom but I just wanted to send a hand hold and let you know that how you're feeling is completely understandable as it's a very scary time already so any additional stress is completely overwhelming. Lean on your loved ones and allow yourself to feel what you feel Flowers

wizzler · 21/03/2024 23:35

Sorry you are having such a stressful time. Have you contacted ARC? They are very supportive and informative .

Stressed2024 · 22/03/2024 09:37

Thank you for taking the time to respond.

@wizzler my midwife recommended this too. I will give them a call.

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4LeafCloverBaby · 23/03/2024 09:53

This sounds so stressful. I’m waiting for my screening result’s currently and this is something I have worried about. But I have read soooooo many stories online where they were told high risk & then the NIPT came back positive! It’s very common. Out of curiosity how long did it take between your scan & them calling you? X

Stressed2024 · 23/03/2024 13:34

4LeafCloverBaby · 23/03/2024 09:53

This sounds so stressful. I’m waiting for my screening result’s currently and this is something I have worried about. But I have read soooooo many stories online where they were told high risk & then the NIPT came back positive! It’s very common. Out of curiosity how long did it take between your scan & them calling you? X

Hi @4LeafCloverBaby I hope you get clear results and won’t have to go through this.
I did my scan last Thursday and gave a blood sample the same day and the midwife called me on Monday afternoon. So it was 4 days (including the weekend).

OP posts:
Clearinguptheclutter · 23/03/2024 13:39

hope you get clarity very soon.
my bff had a similar experience, her baby does not have DS. But it was very anxious time.

4LeafCloverBaby · 23/03/2024 14:37

@Stressed2024 thank you. Keeping everything crossed for you x

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