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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Is this Down syndrome screening result low?

15 replies

aw9870 · 22/06/2023 18:35

So for background I am 24 years old, my partner is 27, both have no medical issues or any family history with medical issues and have been deemed a low risk pregnancy.

Had my combined screening test sent back to me today for results for Down syndrome and Edwards etc and my results for all are 1 in 5000. The letter states this is considered lower risk and no further tests will be offered but I'm seeing others on here with numbers like 1 in 23,000 and 1 in 100,000 and now I'm unsure wether to pursue an NIPT test to get a more accurate answer? Am I overthinking this? Or would you pursue an NIPT harmony test with these results?

OP posts:
Golaz · 22/06/2023 18:44

I in 5000 is a tiny risk, that’s 0.02% chance. You are definitely other thinking it xx

Pip1402 · 22/06/2023 18:49

I had an NIPT test and the results all came back low at 1:5,000. So you might just end up paying the money to get the same results?

Nursemumma92 · 22/06/2023 19:47

High risk is classed as 1 in 250 or less. Yours is definitely low risk. I wouldn't pay for it if it was me but if you have the money and it would put your mind at rest then it wouldn't hurt.

Sagittarius25 · 22/06/2023 20:16

Some trusts have now switched to a rating where 1:5000 is the lowest risk score you can get, if that makes sense.

Daaniielle · 16/11/2023 19:33

Do you know which trusts have changed or how to find out?

Toda11 · 16/11/2023 20:17

Daaniielle · 16/11/2023 19:33

Do you know which trusts have changed or how to find out?

I think pretty much all have now

Daaniielle · 16/11/2023 21:30

Oh really, how do you know?

HazelSloth · 23/04/2024 21:20

Hi everyone,

I just received the results for my downs / Edward’s syndrome results . 1:5000 - described as a ‘lower risk’ result by the hospital.

I just want to know having this kind of condition my baby will be alright or the baby going to born with this abnormalities????

Anyone can explain if you know about it please!!!

Toda11 · 24/04/2024 10:49

HazelSloth · 23/04/2024 21:20

Hi everyone,

I just received the results for my downs / Edward’s syndrome results . 1:5000 - described as a ‘lower risk’ result by the hospital.

I just want to know having this kind of condition my baby will be alright or the baby going to born with this abnormalities????

Anyone can explain if you know about it please!!!

That's a low a risk rating as hospitals give currently. So no guarantee baby won't have down/edwards syndrome but only 0.020%

**

HazelSloth · 15/05/2024 17:29

Hi everyone,

I'm now 5 months and 1 week pregnant. Yesterday I went for my 2nd scan. And when I asked the operator who do my scanning about the gender of my baby,

At 1st she said it's a boy after she said but I can't assure 100% it's a boy or not. The gender is hide between two legs. She can't see it properly. So she thinks it's a boy but not 100% sure.

So my question is it's a boy or a girl? Please help someone to know if it's happened with you too !!!

Thanks in advance.

Dontdoitdontdoit · 11/12/2024 15:28

Sagittarius25 · 22/06/2023 20:16

Some trusts have now switched to a rating where 1:5000 is the lowest risk score you can get, if that makes sense.

Hi there, I was wondering if you have more information about this at all? I've tried to look myself but can't find a paper trail for the switch. I've had three babies in very recent risk all which much bigger risk ratios but my current pregnancy is 1:5000 which is alarming given the sizeable increase in risk compared to previous pregnancies. The midwife said she'll find the paper trail regarding the switch and not to worry but it's difficult when a change like this in the last two years seems so unlikely.

OnlyWhenILaugh · 11/12/2024 15:41

If you follow the government link up thread and scroll down to 5.3 you'll find the information about risk reporting including upper and lower limits of 1:2 and 1:5000

Dontdoitdontdoit · 11/12/2024 15:44

Dontdoitdontdoit · 11/12/2024 15:28

Hi there, I was wondering if you have more information about this at all? I've tried to look myself but can't find a paper trail for the switch. I've had three babies in very recent risk all which much bigger risk ratios but my current pregnancy is 1:5000 which is alarming given the sizeable increase in risk compared to previous pregnancies. The midwife said she'll find the paper trail regarding the switch and not to worry but it's difficult when a change like this in the last two years seems so unlikely.

I spotted your ref further down the comments- apologies for missing this. I've had a good look through and can't see anything about a ratio change however the graph looks like the minimum risk factor they can give me for my age now is 1:5000 whereas five years ago it was potentially up to 1:50000. This was my first thought but I'm curious whether it is true for all the other posters in here.

Dontdoitdontdoit · 11/12/2024 15:46

OnlyWhenILaugh · 11/12/2024 15:41

If you follow the government link up thread and scroll down to 5.3 you'll find the information about risk reporting including upper and lower limits of 1:2 and 1:5000

Yes, I see this and was aware of the information. It doesn't give any date of change in ratio reporting standards though however I note that the page was updated in Oct 24 so potentially a very recent change in protocol. Thanks.

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