Cystic hygroma - terrified

[Hideundermyduvet]

Hi all, I was told I had cystic hygroma at 13 weeks pregnant. It measures about 10mm and bloods came back at 1 in 5 for Downs. I’m going back tomorrow to be scanned again by feral medicine (I’ll 15 weeks tomorrow) and I’m so terrified. I’m assuming it’s going to be bad news and I’m heartbroken but also so scared of termination options. I had a missed miscarriage at 8 weeks previously and that was horrendous enough. I just want to hide and pretend none of this is happening but obviously I can’t. I’m 38 and feel like this was my last chance, I’m so so sad. There’s probably nothing anyone can say but I just needed to get it down x

Fetal*

I just popped on here to say I'm sorry and I don't really understand your results but it sounds like you have more testing to be done. I am 45 and just found out I'm pregnant, so all this testing still to come. But I really wanted to say, at 38 its definitely not your last chance if everything does turn out to be bad news.

Hey OP, just popping in to let you know you’re not alone. I have also just been referred to FMU for cystic hygroma after my 12 week scan. Baby wouldn’t cooperate and lie down after many attempts so don’t have the measurements, but it looked very large.

Its terrifying. CVS and more scans next for me, hopefully in next day or 2.

I’m also 35 and with a very very low remaining egg count so absolutely distraught at the thought that my active and waving little bean might not survive. Definitely bracing for the worst.

How are you feeling? Hoping you have a good support network around you and someone to talk to.

Hi, can I ask how you are all doing since? I’m currently in the same situation and waiting for a CVS, currently 13 weeks pregnant and cystic hygroma is measuring 6.9mm, I’m absolutely petrified!

Hi Hope.
Firstly just wanted to say that all journeys are different - and cystic hygromas can have a range of different causes, including ones that can be managed.
Unfortunately my little girl was very poorly and the Hygroma continued to grow. She then developed massive generalised oedema secondary to a confirmed diagnosis of Downs Syndrome, which put too much pressure on her delicate system. Her prognosis was poor and we were told she had a minimal chance of even making it to our 20 week scan. We took the heartbreaking decision to end the pregnancy and I delivered her at 14 weeks.
I’m now pregnant with our rainbow but think about her every single day.
The CVS itself wasn’t anywhere near as bad as I feared - and if I needed it again I would do it again without hesitation.
Sending you all the positive energy and I hope your outcome is completely different.

Thank you for your reply, it means a lot! I’m so sorry for what you’ve been through, I really appreciate hearing people’s experiences and it makes me feel like I’m not alone as I feel no one understands until you have been through it yourself, I wish you all the best with your pregnancy!