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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Blood results for Down’s syndrome - low?

14 replies

Sophjadeskade · 27/04/2023 22:07

Hi everyone,

First off please be kind I don’t want to be judged for my anxieties but just looking for reassurance that I’m overthinking .. or not?

I just got my results today which have come back low 1 in 11,000. Initially I was fine with it until my friends all said theirs were much higher numbers which has left me panicking wondering why mine is lower. For reference I’m 33, and neck measurement at 13+3 was 2.3mm & my PAPP-A is 0.88.

Am I overthinking? Half considering a private NIPT test but the other half of my brain saying I’m being silly. I know I’m a worrier anyway but it’s been a long hard road to get here which just makes it all the more worrying for me.

if anyone can share advice or positive stories maybe it will help.

thanks so much guys 🤍 xxx

OP posts:
PickledScrump · 27/04/2023 22:15

That’s a great number. With my second I was 1 in 10,000, this time im 1 in 5000. Both classed as low risk. I’ve never known anyone that had lower than 1 in 10,000 to be honest. I always assumed that was the lowest. You’re definitely overthinking.

gtrd · 27/04/2023 22:28

You're overthinking! With my second the odds were higher but still low risk, I assumed it was due to my age. With my 3rd and 4th they no longer gave a number, just high or low risk. I think the numbers cause worry because you naturally compare them to others.

Onethingiwantfor23 · 27/04/2023 22:37

I recently had my results come back at 1:53 chance so yours are definitely low!

elliejjtiny · 27/04/2023 22:41

Your results are really low, especially for your age. I understand your worries, I am a worrier too, but honestly your chances of having a baby with downs syndrome are miniscule.

Sophjadeskade · 27/04/2023 23:02

Thanks everyone for all of your replies, I really just wish I could control the anxiety just around being pregnant full stop. I was happy initially but like you say above it’s the comparing to others that got me worrying! Also can see people have much lower numbers than mine, apologies don’t want to seem insensitive etc I just need to get it together!! Xx

OP posts:
Allosaur · 28/04/2023 02:46

I was the exact same! Mine was about 1 in 8000 and I thought great, that's super low! but I looked it up online and seeing people have a 1 in 15000, 1 in 22000 chance and I was wasn't as pleased. But overall, your score is lower than average. For reference - "in 1250 for a 25 year old mother to 1 in 1000 at age 31, 1 in 400 at age 35, and about 1 in 100 at age 40 are the average scores" - I'm a huge worrier too, it's natural to be a bit obsessed with baby's health at this stage :)

blahblahblah1654 · 28/04/2023 04:32

I was ecstatic when my son was 1 in 5000 chance of having downs. 1 in 11,000 is great, considering the population level statistics. I'm pregnant now (38) and my chances were 1 in 371. Still lower risk than average for my age but I took a private NIPT test to make sure and everything is fine. I would have been very happy with your results. I honestly didn't think 1 in 22,000 figures were a thing.

ILookAtTheFloor · 28/04/2023 11:25

I'm not sure if some NHS trusts use different ways of calculating them, or they have changed. My first pregnancy (I was very young) the numbers were one in a random figure in the 100 thousands, like 124,586 for example.

I'm 36 now and this pregnancy all the trisomies came back as 1 in 10,000 exactly. Seems a very exact figure compared to previous babies but I'll take that!

JellyBelly50 · 28/04/2023 11:32

I’m mid 20’s and got a 1 in 10,000
If you think about it that is incredibly low
I have friends who received a 1 in 100,000 which is lower than mine but I feel like mine is still incredibly low

Sophjadeskade · 28/04/2023 13:24

Thanks so much everyone, your replies have really helped ease my anxiety, I know I’m being silly jusy so hard to control sometimes. Im driving my husband mad poor guy!! 🙈🙈

OP posts:
Blixem · 28/04/2023 13:53

Mine came back as 1 in 17. I had the NIPT and it came back 1 in 50,000 but that test is so much more accurate. DD was born perfectly healthy.

WooWooWinnie · 28/04/2023 13:58

To put it another way, 1:11000 means you have a 0.009% of having an affected baby. So I would say that’s very low risk!

Blondeshavemorefun · 28/04/2023 14:46

Someone once said think of it as 11 000 bits of paper falling from the sky and one has an x on it

You have to try and grab the x

Can't R.E.M. what mine was now as was heading up to 7yrs And but think possibly 1 in 500 /750 as was 43

I didn't have any extra tests as wouidnt have made a difference to having her

Mini blondes was fine

cdn298 · 30/04/2023 22:51

Mine was 1:16. Had private nipt, DS was fine and doesn't have anything wrong 😊

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