19/20 week ultrasound - unable to detect Cavum septum pellucidum (CSP),

[Np1988]

Hi all

I’m hoping you might be able to help. I’m 19+1 weeks with a baby boy and went for my 20 week scan today (as I’m away next week). The baby wasn’t positioned in a way for the sonographer to see the CSP very well and after reading about it I’m extremely worried. I had the harmony NIPT test done at 10 weeks which showed I had a 1/10,000 chance of chromosomal abnormalities. Has anyone else been through this before? They have said they will see me again on Friday but I’m really worried - will 2 days really change anything? I tried doing squats, star jumps, jiggling, went for a walk etc to get the baby to move so that it could be seen but the sonographer was still struggling. Has anyone else been through this? internally freaking out

appreciate your support so much, always. X

If i was in your position i would call fetal medicine unit tomorrow morning and ask to speak to a consultant

I agree with sunandnature. Or consider a private scan for peace of mind.

I spoke with a fetal medicine midwife the day after and she said if she was worried she would of said, and it doesn't say absent, she thinks I have got some pregnancy anxiety from the 12 week scan and blood test coming back high for downs then having the nipt test done to everything being normal. Now this just tipped me over again just want my baby to be OK. Prey please for a good result

Hi all, thank you so much for sharing what you have. I had my 20 week scan yesterday (I am 21w today) and was told that the cavum septum pellucidum hasn't formed properly. In my notes, the sonographer has written that 'the CSP appears abnormal' and also that there is query mild ventriculomegaly as she told us it was measuring normal on one photo and 11.4mm on another. It was five o'clock on a Friday and there was no one there to talk to us about it and so we have just been googling and trying to get through the weekend and hoping that they will see us quickly on Monday as she has referred us to the Fetal Medicine Unit. I am so incredibly anxious and upset and struggling to cope. Any updates from you would be really appreciated - how has everything worked out? Many thanks

Hello! I’m so sorry you’re going through this too. And what is it with getting scary news on a Friday - this happened to me too! I hope you have managed to get through the weekend ok. All I can say is that I survived that awful waiting period day by day and i’m currently cuddling my 10 day old son who was born healthy and happy. Obviously it’s not guaranteed to have this outcome but until you get more information from fetal medicine unit try your best to put one foot in front of the other and know that your babies future isn’t determined yet. ARC is a wonderful resource for people who have had concerning scan results x

Hey there! I hope there is some one still on this post. Last week at our 20 week scan, I was told that our baby had moderate ventriculomegaly & couldn’t see the csp, was referred to fetal medicine and it was confirmed that baby had bilateral ventriculomegaly at measurements of 13.8mm on right & left. The fetal sonographer said she was still unable to see the csp, but had a gut feeling that it was there, which I feel like you wouldn’t say unless you was sure it was? Anyway I’m having an mri in a few weeks time to see if it is there but I am so worried and scared! The nipt results did come back low chance for ds, Edwards etc. any positive stories would be greatly appreciated

Hi Penny131, I'm so sorry you're in a similar situation. They couldn't see the csp at our scans but it was there when we had the MRI and everything was all fine after that. Our son is now 4 months old. Try your best not to panic but I know its impossible not to, just take it one day at a time and I have my fingers crossed for a positive outcome from the MRI x