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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Downs/Edward’s syndrome screening result

10 replies

LucyEleanorModeratz · 25/04/2023 20:42

Hi all

I acknowledge that my question may make me seem highly neurotic - I promise I’m not !

I just received the results for my downs / Edward’s syndrome results . 1:5000 - described as a ‘lower risk’ result by the hospital.

I was initially pleased with the result but then I checked against the result I had with my little girl three years ago - which was 1:10000. This was described as a ‘low risk’ result.

I am now wondering what has happened to make my risk double and effectively downgraded me from low risk to lower risk? Does anybody know for example if maternal age is factored into the results?

I am 33 now and 30 when I had my little girl.

Any thoughts welcomed x

OP posts:
Likethestarsabove547 · 25/04/2023 20:45

I don't have the answer but I had the same as you I had much lower chance first preg compared to second, still low risk though. Mayve it's literally just age? Although for me different genetics might have played into it

PickledScrump · 25/04/2023 20:47

I believe it is just age. I had my second at 30, and had 1:10000 and now having third, I’m almost 33 and had 1:5000. So it must just be age.

Moni81 · 26/04/2023 05:46

I am 42 and for my age group lower risk is above 150 only and often they don't tell you number as people panic for no reason. Dont forget it's combined screening and ultrasound anatomy indicators which are checked on consecutive scan are even more important than blood test . So if your scans don't show anything alarming I wouldn't worry too much.

HowManySunflowers · 26/04/2023 05:52

Yes, it is mainly your older age which is affecting the result here, as there is a correlation between maternal age and the probability of having these syndromes. However 1 in 5000 is still very low, I wouldn't worry.

LucyEleanorModeratz · 26/04/2023 17:37

Thanks so much all for your comments - you’re absolutely right I need to bear in mind that 1:5,000 is actually still a low risk

OP posts:
Sagittarius25 · 26/04/2023 17:51

I saw a midwife who had commented on another thread said all NHS trusts are aligning in the way they calculate and the 'best' score you can get is then 1:5000, so this may be why if your trust has moved over to this method

HazelSloth · 23/04/2024 21:09

1 in 5000 down syndrome and pataus syndrome!!
This is my 1st baby and I'm 25 yrs old. Should I worried or not. Please anyone help me to know.
I just want to know the possibility of having a baby with down syndrome.----

HowManySunflowers · 24/04/2024 06:18

@HazelSloth the possibility is 1 in 5000. So if 5000 women with your test results give birth, 1 baby will have Downs and the other 4999 will not. This is a low risk result so please try not to worry.

addictedtotheflats · 24/04/2024 06:44

It will be your age. My DC1 I was 30 and the T21 risk was 1:100,000. My DC2 I was 35 and coupled with an elevated HCG my risk was 1:170 😱. I was a nervous wreck for 3 weeks while I awaited my private NIPT because I was still in the "low risk" category for further NHS testing. My baby is perfectly healthy thankfully. 1 in 5000 is very low risk, enjoy your pregnancy ☺️

stackhead · 24/04/2024 06:56

Those are good results!

I got 1:5000 for Edward's and 1:398 for downs and I'm 34.

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