Baby diagnosed with TGA at 21 weeks

[AKohler]

Hi , i’m just looking for mums that have been through this experience or are currently going through it.

our baby has been diagnosed with TGA and I am struggling to process it.
I know there are lots of success stories and happy endings. There are also lots of sad endings.

What I am struggling with is the choice I have been sent home with, to terminate now or go ahead and deal with the risks when baby's here. I just don’t know how to make this decision.

There are not many stories of women who have terminated as far as I can find. Each decision feels like a loss but I think I am definitely in shock.

My baby was a post natal diagnosis of a TGA/PDA/ASD and complex coronories. I was not in your exact position as I didn't find out until she was born but I'm very happy to give you an honest account of everything that happened afterwards.

Please feel free to message me with any questions or I can just give you my account of things.

I cannot comment specifically on TGA, however we found out our son has very severe brain damage following several strokes and seizures. Due to his quality of life we chose to TFMR and he was born sleeping at 33 weeks.
It's a very, very big decision to make. Remember, you have time! We were made to feel like we had to make the decision immediately, but we would not make a decision unil we thought it through and we took a few weeks.
I did research into my son's condition and actually emailed researchers I found online who had researched my son's condition. I was lucky that they got back in touch and talked to me about the severity of his condition.
Arc charity are fantastic. You can call/email them and they will help you discuss your choices. They are very experienced.
Whatever you choose to do it will be a choice made with love.
I'm happy for you to message me if you need a chat xx

Hi, hope you are ok I have just sent you a PM x

My son was diagnosed with TGA with ASD and PFO after he was born. He had open heart surgery at 4 days, ECMO and a few smaller operations. He is a huge 13 year old now, so my experience may be a little out of date. However I am happy to answer any questions you have, or help in any way. I think that TFMR is rare because outcomes for babies with TGA are so often very good.

My mum has TGA and is now 45 years old. She didn't get her arteries switched back as it wasn't a thing back then and has lived with them the wrong way this entire time. There are so much medication and advances in technology now