NIPT results, but still so anxious?!

[itsamumlife]

I recently put a post up about how it was found through my screening results that I had a 1 in 8 chance of my baby having Down syndrome. The last week since finding out, honestly I’ve never felt sadness like it. The waves of emotions through everything I was told, finding out etc, it was a lot! Anyway, I gave my bloods last Thursday for a NIPT and I received my results today - they have come back low risk. I can’t believe it 🥹 it felt like for the first time in a week, I took a breath.

Honestly I have a lot I’m feeling anxious about and a lot of questions. I don’t know how I can now just wait nearly two months for my next scan and just feel ok. I’m worried that although it’s 99% accurate, that risk couldn’t have come from no where. So many thoughts and feelings, but all I know is I am BEYOND relieved to have heard that news today on the phone.

I haven’t shared my news with anyone about even being pregnant. Let alone all this, so I’m just hear sharing to you all so I can let it out!!

The first risk came from an algorithm, the second counted the chromosomes in your blood so was specific to you. You can trust the NIPT.

I had exactly the same and was so upset until I read that the first test is nothing to do with the baby and is all calculations based on age and hormone levels etc. My NIPT came back low chance so I chose to not test any further when I learnt that it is testing the chromosomes of the baby from your blood and how accurate it was. Hope that helps and congrats 😀

Hi @itsamumlife the other two posters are right, the combined (and quad) test is rubbish. It makes me really angry that they still use it when NIPT is so much better and specific to the actual baby. You see so many of these posts like yours on here that it's clear that informed consent hasn't been given properly because the way it works hasn't been properly explained and understood - makes me so angry.

Did you ask what caused your high result from the hospital? I asked because like you, I got a high risk result but was confused as to why because the scan was normal and I was 26. They said it was down to low Papp-a and high hcg for me. NIPT was negative.

This has made me feel so much better - I'm currently waiting on NIPT results after a high risk of 1:65 on the combined test. I'm almost 38, with a slightly high BMI, slightly high Hcg and slightly low PAPP-A. It took me a while to figure out that I've basically just been labelled and popped in a box, rather than it having anything to do with my baby. Really hoping for a negative/low risk result now. Thanks for sharing