Hi Sam478, thanks for messaging me :)
I was on Keppra at first which I truly believe sent me do-lally alongside the weight gain! Not sure if that’s the same brand? They were awful, I was so depressed on them and the weight just came out of nowhere!
I was on other meds as well but I can’t pronounce them let alone spell them lol 😀
The Meds I take presently are Brivaracetam/ Zonisamide and I take 1 Clobazam at night and that’s only if I’ve had a seizure which so far are getting less and less :-) which is why we are really hoping to start tying soon.
*Can only spell them as I have them here 😉
I really thought we’d have a baby by now but I never imagined I’d be diagnosed at 28 and it’s been a struggle these last few years. Its not a case of taking meds and everything under control, it’s been such an up and down rollercoaster for me and my lovely husband who had helped me beyond words!
They say a woman’s eggs decline after age 35 so as you can imagine I’m a bit worried. May I ask, what sort of support did you get when going through your fertility issues? By that I mean where they aware of your epilepsy etc And did you still take meds when trying/ during your pregnancy?
I’ve lost almost 30 pounds since last Xmas, no idea how cos I’m not as physically active as I used to be and let’s just say my diets not the best (chocolate lol)
Being an Epileptic sufferer I’m sure you know it just wipes you off your feet for weeks! Lol all you want to do is sleep after a seizure
30 pounds might not seem like loads to some but I’m glad it’s coming off slowly in a sense, they do say lose weight slowly as it’s more heathy, it’s just these last 20-30 pounds are the most stubborn!
it’s really not a vanity thing as previously mentioned, I just want to make sure my body and more importantly my brain is healthy and fully functioning for by the time I’m carrying a little one.
Seizures have made me have so many accidents like fall down the stairs and wake up there upside down! drop a cup of green tea onto my legs which resulted in a skin graft, fall into the bedside cabinet and cause the most awful black eye! God so many! So as you can imagine I’m anxious about getting pregnant as well as excited
Thanks for letting me know your story, I don’t know many people with Epilepsy and until you’ve had it, it’s hard to understand! X x