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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Wanted!! Mums who are pregnant after downs syndrome termination..I am need of support.

33 replies

mummytracy · 19/01/2008 10:54

Hello mums and mums to be, I have two daughters aged 6 and 9. I had a third pregnancy in 2002 which, after triple bloods, resulted in 1 in ten chance of downs syndrome.(I was aged 29) Amio later confirmed this. We terminated this pregnancy at 19 weeks which was not at all a plesant experiance.
After years and years and years of trying to concieve I am pregnant and due in September 2008. I am very anxious, worried and stressed. I have a dating scan due on 7/2 and from then can book the nuchal which has been offered to me free of charge on the NHS.
I am trying not to be too excited as I know that thinngs can go wrong especially when you are not expecting it. I would love to talk to others who have had a healthy pregnancy after a termination which has resulted in their baby not having down syndrome. I need to see some glimmer of light!!
Thank you for taking the time to read this. This is also my very first post.xx

OP posts:
katendmom · 10/04/2009 20:42

oh dear twinkie39... your story is heartbreaking. It is very brave of you to open up and share it. Just shows what a long way you have come. I hope from the bottom of my heart that you know now and truly believe that it was NOTHING that you did that caused the baby to have DS. Unfortunately, babies who have DS have it from the very first second of their conception.

We too lost our first child to DS. We did not know she had it though. My blood work came back fine...and 20 week scan showed nothing... And when I was 36 some weeks they couldn't find her heartbeat during a routine doc's visit.

I ended up having a c-section (she was breached) and delivered a beautiful yet "sleeping" baby girl. Kate... (hence my nickname). We were blessed with a boy several years later... But she certainly holds a very special and very "Katie's" place in our lives.

God bless you and hope many wonderful things have happened and are still awaiting all of you, wonderful mums

spoony1 · 07/04/2010 23:22

Hi There. I had 2 terminations following confirmed Downs and now have a healthy boy of 2. Good luck x

bogsyripple · 28/02/2011 21:12

any help please am 26 and found out today after the cvs that my baby has downs syndrome any advice would be great how you came to desicion etc thanks

loopybear · 28/02/2011 21:19

I'm sorry I can't help. Post a new thread someone will be along soon, I'm sure. Big hugs x

fallingandlaughing · 28/02/2011 21:20

Hi bogsyripple,

you might not get many answers here as this is an old thread. There is an antenatal tests and choice board which would be worth a try. Also a charity called ARC.

I know many people with Down's Syndrome (through my professional life). They are all as unique as the rest of us, with strengths and weaknesses and times of difficulty, times of joy in their lives. However I understand it isn't an easy or straightforward decision so hope you get some advice from people who have been in a similar situation.

Lifechanged · 01/03/2011 22:44

Hi bogsyripple

first of all lovey I'm sending a massive hug!

I found out just four weeks ago that our baby had downs. We were given the contact details for a charity called ARC who offer support to parents who have found out there are problems with there baby and what the options are.

One thing I would advise is to talk all the options through and most importantly be honest - don't just say what you think your partner thinks. This is one of the hardest decisions to make and whatever you decide remember there isn't a right or wrong answer!

Be strong and good luck!

midori1999 · 01/03/2011 23:57

Bogseyripple, my now 7 year old son has Downs. I didn't know until I had him, but I am so glad I didn't know as I am not sure what I would do. As it happens, I have declined testing in subsequent pregnancies because I wouldn't mind at all if any future children had Downs. Parenting my son who has Downs has been different to parenting my older boys who don't have it, but it's certainly no worse. I wouldn't change him for the world, he has such a personality and sense of humour and is hilarious at times! Certainly in my case things I thought would be an issue haven't been. Not only did I return to work but ran my own successful business after having my son, he went to nursery just like 'normal' children. My life has pretty much carried on as before.

As well as the antenatal choices board there is a S
Special Needs board which might be worth asking on if you want a bit of insight into what it might be like to live with a child with Downs.

sairam88 · 13/03/2016 15:14

Hi...what happ t this post now. M also in same situation. Has anyone had healthy babies after terminating previous baby with downs syndrome

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