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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Gestational Diabetes - Let down by services

3 replies

OllieChops2009 · 07/03/2022 19:52

Hi all, first post on here. I don't know what I'm looking for, maybe some reassurance, or some advice on how to take this further, or if someone has been in a similar position...

I had a GTT at 24 weeks due to family history of diabetes. I got a phone call on the same day to inform me that the test result came back fine and there was no concerns with my blood sugars.
Fast forward to 32 weeks and my midwife was concerned with the size of the baby when measuring me with the tape. I was referred for a growth scan and it was picked up that baby was big so I was referred to the diabetes clinic. I was told to monitor my blood sugars x4 daily and I got 8 high readings in 7 days. I was put on Metaformin 500mg twice daily, and thankfully with the meds and diet control I was able to reduce my readings significantly.
I am now 36+5 weeks and today I have had another growth scan. Baby is measuring 7lb 4oz and I was strongly advised to consider induction or section due to his size (I have opted for Section due to other reasons aside from the GD).
The concerning part for me, is that the consultant told me today that my GTT at 24 weeks gave me a reading of 9.7, so did show that I did in fact have GD, but it wasn't picked up on and as a result my baby has been allowed to grow big with no monitoring. His abdominal size is off the scale.
I am so angry that this has been allowed to happen and I want to want leave it. I want to take it further.
My baby will be loved no matter what. But out of interest I am wondering if anyone has first hand experience of the long term effects from undiagnosed/late diagnosis of GD? Autism? ADHD? Physical health concerns?

Thank you

OP posts:
GestationalDiabetes · 07/03/2022 22:14

I’ve been similarly upset as was convinced I had diabetes from my extreme thirst and I even drove myself into hospital in Dec specifically to raise it again and insist it wasn’t normal and yet they didn’t give me a glucose test until last week or so when like you baby’s circumference was so big they finally said they needed to test me for diabetes as if I hadn’t been saying it to every midwife I’d seen all along !

I am sure your baby will be fine and the two friends I know who had GD’s sons haven’t got any concerns.

Have you had a lot of carbs in your diet? Mine isn’t been too bad and I’m being quite careful to have enough protein and veg which am hoping might help.

A friend of mine trained as a midwife and understood I feel let down and was surprised they didn’t pick up on it and seems even worse with you that they at least tested but then ignored the result ie giving you false reassurance ! I am not planning to complain st the moment but can understand you might want to .
Do they give a centile for circumference? Ours went from 50th to 90th in just 3 weeks

SouthwestSis · 08/03/2022 00:08

@OllieChops2009 it sounds like the person giving you your initial result has just made an error rather than ignore the result? They wouldn't have phoned you if they'd been ignoring it.
I can totally understand your frustration and yes perhaps it's worth feeding this back so that they can look at the system, perhaps put in a system of having 2 people check results going forward?
I would have thought they would have offered an apology for the error and told you what they will do to help prevent it happening in future.

Meow2415 · 25/09/2023 11:24

Hi hun im in similar situation as yourself please let me know if your baby is doing well

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