PCOS AND POSITIVE PREGNANCY TEST ADVICE NEEDED

[Newdreams]

Hi all

Bit of background I was diagnosed with pros after I had my son five years ago. Since then my periods are very irregular some months will go without any periods and than other months I will start more than once.
2 years ago my partner and I decided to start trying for baby no 2. We have both lost weight as I was advised it would help regulate periods and ovulation but even than I was still irregular. Its been and exhausting year the constant heartbreak of negative tests. In May I really thought it was the month I would get my bfp but no and on 13th May had last period. In between that time a lot of family stuff had come up a lot of grieving. So me and partner decided to just not actively try until I was mentally feeling bit stronger. My 5 year old has health and special needs too. From May till 1st of September I didn't test to be honest we didn't even dtd as regularly as we normally would.

Over last 4 weeks was feeling really under the weather lost taste being sick in morning was so tired my mum was like to take a pregnancy test which I did and to my surprise was positive. I Was in total shock I was finally pregnant. I did so many tests they all said positive. But I spoke to my gp who said it was difficult to date me due to my last period being in May. She didn't seem very helpful in regards to the other medications didn't really offer clarification if I should continue to take. So the call ended with her saying she will refer to midwives who would be in touch for when I'm about 8-10 weeks.

I then started having quite severe lower left sided pains so my husband arranged a private scan for me. We went on Sunday and they couldn't see anything at all so they have take a blood sample and will go back for another one 48 hours later.

I just can't stop feeling heartbroken. I feel the pregnancy symptoms have taken over totally now not sure if it's a mental thing but I feel pregnant but also heartbroken. I guess I just wanted to hear if anyone else been in similar situation or pregnant with pcos?

Thank you for reading this far.

I am so sorry to hear what you’re going through.

As you are pregnant according to tests do you have your booking appointment coming up?

I too have Pcos and had got pregnant after 5 months the first time. I miscarried twice but now I am 35 weeks with first baby so please don’t give up and keep thinking positive.

Has the pain you were having gone? Have you had any bleeding?

It may be that everything goes well with this pregnancy and I really hope it does for you.

If this one doesn’t work out I would suggest getting myo inositol (available online, I get mine from Zita West) and Metformin (I got mine on prescription from a private endocrinologist as when I came off the pill I didn’t have a period for a year. He wrote to my GP and I now get the repeat prescription on the nhs).

These two medications turned my periods from non existent to regular cycles like clockwork. I then got pregnant a third time, started taking low dose aspirin too and now here I am almost full term.

Good luck - hope this positive story helps xx

Sorry to hear of your experience, OP. Im amazed at the number of women with PCOS who are essentially told to go away and try for years with no help.

I have PCOS and my baby is now 12 weeks old. We used metformin (which regulated my periods) + letrozole (which induces ovulation) to conceive and i took asprin throughout my pregnancy (prescribed at my 12 week scan). I have an endocrinologist consultant that i see (NHS) twice a year as an outpatient - are you seeing anyone other than your GP for the PCOS? In my experience, they aren't always very knowledgeable or helpful about the condition. If you can get referred to an endo specialist, they can do the necessary blood tests and prescriptions, which you can then get on repeat from your GP. As soon as i told my consultant we wanted to start TTC, he referred me to the assisted conception unit in our hospital for tests and prescribing of letrozole (usually accompanied by a series of internal scans to monitor how the eggs are developing and to pinpoint ovulation). First cycle it didnt work, second cycle they upped the dose and i ovulated for the first time in years but we didnt conceive. Third cycle resulted in my 12 week old.

I hope you get positive news with your blood samples, but if the worst sadly happens, i would highly recommend pushing for a more closely monitored approach. The support i got from the endo dept and the acu team was amazing and I certainly wouldn't have my DD without them.

Good luck

Hi, OP!

I hope your drs appointment will go smoothly and with good news! I too have PCOS and we're ttc now. After coming off the birth control pill in January my periods were around 30-45 days, so I'm on duphaston now. I also take mio inositol as a supplement. Be aware of metmorfim re the type of pcos you have. Mine, for example, is not insulin resistent, so metmorfim would be no help at all.

Thank you so much for the replies. Pain is still there quite intense. My normal gp had retired in January so At the moment we only have locum gps running the practice and some of then just really don't make the effort to help or understand concerns. It's so reassuring to hear ur positive stories. I am trying to keep strong but its so hard. I don't see anyone other than gp for pros to be fair the gp didn't even let me know I had been diagnosed until I was in a&e for something else and they saw on my gp records and said you also have pcos After which spoke to gp and got confirmed. If this hasn't worked this time I will ask for referrals.

@Cafeaulait27

I am so sorry to hear what you’re going through.

As you are pregnant according to tests do you have your booking appointment coming up?

I too have Pcos and had got pregnant after 5 months the first time. I miscarried twice but now I am 35 weeks with first baby so please don’t give up and keep thinking positive.

Has the pain you were having gone? Have you had any bleeding?

It may be that everything goes well with this pregnancy and I really hope it does for you.

If this one doesn’t work out I would suggest getting myo inositol (available online, I get mine from Zita West) and Metformin (I got mine on prescription from a private endocrinologist as when I came off the pill I didn’t have a period for a year. He wrote to my GP and I now get the repeat prescription on the nhs).

These two medications turned my periods from non existent to regular cycles like clockwork. I then got pregnant a third time, started taking low dose aspirin too and now here I am almost full term.

Good luck - hope this positive story helps xx

I don't know about booking test the gp just said ur midwife will be in touch about 8-10 weeks but because my cycle irregular I don't know when that would be? I thankfully atm have had no bleeding so still holding on to that hope.

**booking appointment

@Newdreams if you have severe pain one side it could be an ectopic pregnancy, I would try contacting gp or midwives again or even a&e as consequences of not treated can be quite severe. I can't help otherwise as just embarked on letrozole and metformin for first cycle before ivf dec/jan so don't yet have any experience of a bfp to help with that. Good luck x

I have PCOS and currently 33 weeks pregnant. I also had extreme cramping pains on my left side at the beginning and had to have emergency scans incase it was ectopic. First time they scanned couldn't really find anything so was booked to go back week later where they confirmed I was pregnant. They said the pain in my left side was because I had ovulated on the left.

@RedRuby26

I have PCOS and currently 33 weeks pregnant. I also had extreme cramping pains on my left side at the beginning and had to have emergency scans incase it was ectopic. First time they scanned couldn't really find anything so was booked to go back week later where they confirmed I was pregnant. They said the pain in my left side was because I had ovulated on the left.

Thank you for replying that's so reassuring to hear.

[quote kerrym87]@Newdreams if you have severe pain one side it could be an ectopic pregnancy, I would try contacting gp or midwives again or even a&e as consequences of not treated can be quite severe. I can't help otherwise as just embarked on letrozole and metformin for first cycle before ivf dec/jan so don't yet have any experience of a bfp to help with that. Good luck x[/quote]

I have contacted gp today it was a different locum they said they are referring me to early pregnancy unit I should expect a call back st some point today.

Just to update i have an app today at the early pregnancy unit so hopefully will get some more information.

@Newdreams that’s great, hopefully they will be able to date your pregnancy so you know where you are x

[quote Cafeaulait27]@Newdreams that’s great, hopefully they will be able to date your pregnancy so you know where you are x[/quote]

Just waiting to be seen feeling so anxious my dp was not able to be here due to covid restrictions so sitting here alone fearing the worst.

Good luck!!!
I would just like to say I was in a similar position, I have pcos and 3 children with asd. This was a suprise baby even with pcos as the others all needed fertility treatment be we were using protection. Like you I had no idea when I conceived.

I have had ovary pain all through pregnancy, so I hope it’s that for you, I’m assuming it’s the cysts.

I understand the worry of an ectopic pregnancy but really hope it’s similar to me.

Good luck xx

Let us know how it goes!

I’m surprised your partner isn’t allowed still when restrictions have been relaxed, my trust has allowed partners at scans throughout.

It’s very unfair you’re having to do this alone!

Thank you for all the support on the thread. I have had the both abdominal and vaginal scan nothing could be seen however the nurse who saw me afterwards said it could be earlier than we thought as there has been a lack of pregnancy. She took bloods and said she would call back in the evening with results if it confirms a pregnancy she will book me for a further blood test in 48 hours time and scan accordingly. She was very reassuring really calmed my nerves. I guess just waiting now for blood results.

@Newdreams I hope you are doing ok. I have my fingers crossed for you.

[quote shannonl26]@Newdreams I hope you are doing ok. I have my fingers crossed for you. [/quote]
I am feeling really rough can't keep food down pain still quite intense. Had a call back from the early preg unit they said my hcg levels from bloods was at 721 would indicate a pregnancy anywhere between 4-6 weeks. They want me to go back in tomorrow and repeat bloods and will take from there. I don't know how I feel any more not sure if that sounds normal or not.

@Newdreams how did you get on? X

[quote kerrym87]@Newdreams how did you get on? X[/quote]
Sorry for not updating sooner just been feeling really rough. I went back for the repeat bloods and they told me that my hcg levels had doubled which was a good thing however they have booked me in for a scan tomorrow because pain still really intense. Can't keep anything down either so just feeling really crazy at the moment. Hoping they can locate the pregnancy tomorrow and put my mind at ease with this pain.

@Newdreams sorry your feeling rough lately, I hope you feel better soon! that’s good news your HCG levels are doubling, good luck for your scan tomorrow. I really hope everything goes well for you. Do let us know 🥰

[quote shannonl26]@Newdreams sorry your feeling rough lately, I hope you feel better soon! that’s good news your HCG levels are doubling, good luck for your scan tomorrow. I really hope everything goes well for you. Do let us know 🥰[/quote]
Thank you will update after scan tomorrow. Hopefully everything goes well.

Good luck x

Thank you. Does anyone have any advice for the nausea and vomiting can not keep anything down. Feel so rubbish.

Just wanted to update you all...

Had my scan this morning and thankfully we managed to see a sac. It's in the right place but was quite difficult to see. They have booked me for a repeat scan in 2 weeks to hopefully see a heart beat. Thank you for all the kind messages on this thread.