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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Cleft lip diagnosis at 20 week scan

31 replies

Overtherainbow2021 · 23/06/2021 07:38

Hi ladies, as titled we discovered at our 20 week scan yesterday that our little man has a cleft lip. We’ve been referred to CLAPPA and have an appointment with them next week.

I’ve spent the last 24 hours just sobbing due to the shock. My OH is just numb and not really saying a lot so I’m worried about him.

I’m just looking for a hand hold in these initial days because I’m just absolutely devastated. I worried about so many other things due to having previous mcs I didn’t even consider a cleft lip. I do understand that it can be fixed but I suppose I’m (selfishly) grieving what I feel is that newborn bliss after birth. I feel as though the birth will be tainted by everyone’s concerns around the severity of the cleft. I feel like the remainder of my pregnancy will be spent feeling sad and worrying. And most of all I worry about sharing him with the world because may react badly or see him as less than perfect.

We are having an amnio to determine if there are any further issues, but I’m just so sad it is overwhelming. Please don’t judge me or take offence to anything I’ve said. I know there are worse things, I just don’t know how to deal with this. Thank you xx

OP posts:
Overtherainbow2021 · 11/12/2021 21:18

@gunnersgold Hi Lovely. My gorgeous boy is a month old tomorrow. I’m completely besotted with him and his cleft. He has a complete unilateral cleft, so it extends all the way through the palate. But he’s feeding beautifully and piling in the weight.

When I look back at this thread now I was consumed with worry which is completely normal. But on meeting him and seeing his cleft for the first time, all my worries just disappeared. For anyone who comes across this thread, please trust that all will be ok. Xx

OP posts:
Lkakpk · 11/12/2021 22:16

Hi @Overtherainbow2021 congratulations on your little one ❤️ How is he ? How is health ? Does the palate cause any issues? Did you know it was complete before birth . Sorry for all questions ! x

vdbfamily · 12/12/2021 00:03

Sorry I had not seen date of original thread. So glad you have a gorgeous new baby boy. Enjoy his first Christmas. xx

gunnersgold · 12/12/2021 06:46

@Overtherainbow2021 that's amazing ! So pleased for you!

OrganisedDisorder · 12/12/2021 12:31

Congratulations @Overtherainbow2021! It’s just incredible how well they do isn’t it?
And so sad that we spent so much time worrying about things!
So pleased to hear about your gorgeous boy :) xxx

Emma2345 · 02/01/2025 20:16

Overtherainbow2021 · 23/06/2021 07:38

Hi ladies, as titled we discovered at our 20 week scan yesterday that our little man has a cleft lip. We’ve been referred to CLAPPA and have an appointment with them next week.

I’ve spent the last 24 hours just sobbing due to the shock. My OH is just numb and not really saying a lot so I’m worried about him.

I’m just looking for a hand hold in these initial days because I’m just absolutely devastated. I worried about so many other things due to having previous mcs I didn’t even consider a cleft lip. I do understand that it can be fixed but I suppose I’m (selfishly) grieving what I feel is that newborn bliss after birth. I feel as though the birth will be tainted by everyone’s concerns around the severity of the cleft. I feel like the remainder of my pregnancy will be spent feeling sad and worrying. And most of all I worry about sharing him with the world because may react badly or see him as less than perfect.

We are having an amnio to determine if there are any further issues, but I’m just so sad it is overwhelming. Please don’t judge me or take offence to anything I’ve said. I know there are worse things, I just don’t know how to deal with this. Thank you xx

Hi can I ask how you got thru this I feel the exact same as you felt I found out today at my 20 weeks 3 days scan my little boy has a cleft lip I am absolutely devastated and feel like it's all my fault I feel so guilty I already have 3 children with complex needs ASD ADHD and my little boy with severe respiratory problems I no a cleft pallet could also be found when born and this can't be detected on a scan I was told I would only no about. A pallet when baby is born ,, so again that is more problems that little one could have I'm scared of what people could think of him and worried he could be bullied as well as have other abnormalities as well I'm heart broken because I don't think I could handle anything more then I currently already have going on in my life with the 3 children I already have with special needs and disabilities I have a more in-depth scan on Monday with maternal medicine where they will do a 3D scan I want the amino to see if their is anything else underlying (if it's genetic or not ) I am also scared of this tho as well as I no their is a risk of miscarriage I am also selfishly contemplating an abortion too because I no I could not handle anything else being wrong if it is genetic and also at the same time I don't think I want to no if it is as I no my mind would likely be made up then about weather to continue with pregnancy or not ,, with my already very stressful hard life i have had the worst year ever and I thought when I found out I was pregnant again other then the worry and shock of having 4 children that this would be the light at the end of that dark tunnel and this baby would be born perfect no issues no complications and I feel like it's hit me like a tone of bricks finding that out today I also attended this scan on my own so I had 0 support their I honestly do not no how to feel at all and what to think but I feel like I'm in a bubble and in shock and numb can not stop crying just looking for some advice and support please

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