Hyperthyroidism and pregnancy!! Someone help

[Kiki1701]

Hey ladies,

So I’m 7 weeks pregnant tomorrow - back in feb I had bloods done due to extreme tiredness and my thyroid levels came back a little high but they wanted to retest to be sure in 2 months time. So in April 2021 I had my second lot of blood tests, didn’t know at the time but I was 3 weeks pregnant when I had the tests done.

My usual doctor couldn’t call me due to high demand with covid, so they got an out of hours doctor to call me and she said my levels where a little on the high side but not something they’d give me medication for and if I wasn’t pregnant they would blood test me again in 6 months time but as I’m pregnant contact the Midwife let them sort it out.

So I did I waited for my triage midwife apt told her for and she contacted a consultant on my behalf and they got back to her today saying the following .... “TSH is very suppressed but thyroxine levels are normal. Is she defiantly not on any medication? In first instances I would recommend she goes back to GP who arranged the tests originally to see what there long term plan is”

Well there never was a long term plan as they fobbed me off too the midwife, and I’m now being fobbed back too GP
So I’ve been Googling hyperthyroidism and I’m freaking out - I’m so upset I really don’t want anything happening to my baby!

Someone please give me a positive story! Is it still early enough that I can get medication and things will be okay?

Hi op, I wasn't medicated until 18+ weeks with my first as it took so long to sort out. Everything was fine although I had terrible exhaustion until about a week after starting medication.
In my area if you're pregnant, the midwife should be dealing with it. TSH needs to be lower in pregnancy at 2.5, however my initial appointment before starting medication was with a consultant and they signed me off to the midwife. Do you know what your TSH was at that is usually what they go by? It may be low enough that you don't need thyroxine hence telling you to speak to your GP. My midwife does my blood tests and sends an email to the GP if any prescription change is required.

Oh wow okay that gives me some hope then, after Googling it I'm scared myself over it all - thinking the worst is going to happen! :(
I am really struggling with tiredness to the point I'm sleeping 15 hours between day and night.

Just came off the phone to the GP who said that because my T4 is normal they wouldn't treat it it's my T3 that's abnormal but I don't know the levels at all - GP said in normal cases (me not being pregnant) they would just leave it and retest but was passed onto the midwife as they have to deal it now.

GP said she will write an urgent letter to Obstetrician, gynaecology and an Endocronolgist for advice on what to do next.
Also called the midwife back and explained too her, and she's going to contact a consultant and get me some advice on what this means for the pregnancy.
That's my main concern will the baby be okay xx

I don't want to alarm you because this will not necessarily cause you (or the baby) any problems, but it is important that you continue to chase it up and ask for the issue to be addressed urgently - please don't be fobbed off.

I have had an underactive thyroid since DS1 was born and I've been pregnant twice more since then. In both of those pregnancies, I've seen the endocrinologist before I've even seen my OB for an early scan and I have blood tests every 4 weeks, with adjustments to medication as required.

My thyroid is totally out of whack (I have Hashimotos disease) so I'm probably a more extreme case - there is a good chance your situation is far less 'serious', so please don't worry unnecessarily, but do follow up.

@PrimeraVez
Hello, thank you for relying to me.
I have been on a mission today, GP is still very unsure but as I had a copy of this email from the consultant as midwife forwarded it onto to me, she has agreed to write an urgent letter/email an endocrinologist, Obstetrician & a gynaecologist to seek further advice - she said this should take a couple of days to a week for them to come back to GP so hoping something can be done to keep this monitored.

I managed to contact the Endocronolgist team and luckily a lovely lady called me back to discuss this with me. She said my TS levels are low, but they are not low enough to require medication but as my last blood test was a month ago I require another, so I'm guessing they should be monitoring it monthly.
I have my first midwife apt on 7th June so will be passing this onto her for her to deal with if I haven't been seen/contacted by Endocronolgist team in the meantime.

As my midwife apt is still a few weeks away I am trying to get hold of GP too book a thyroid test to check the levels again for me.

That sounds positive, your thyroid obviously isn’t too out of whack though. Do ask for your actual results though and make sure their ‘no medication required’ decision tallys with the guidelines and best practice.

Good luck!

@HotPotatoHotPotato21

Oh wow okay that gives me some hope then, after Googling it I'm scared myself over it all - thinking the worst is going to happen! :(
I am really struggling with tiredness to the point I'm sleeping 15 hours between day and night.

Just came off the phone to the GP who said that because my T4 is normal they wouldn't treat it it's my T3 that's abnormal but I don't know the levels at all - GP said in normal cases (me not being pregnant) they would just leave it and retest but was passed onto the midwife as they have to deal it now.

GP said she will write an urgent letter to Obstetrician, gynaecology and an Endocronolgist for advice on what to do next.
Also called the midwife back and explained too her, and she's going to contact a consultant and get me some advice on what this means for the pregnancy.
That's my main concern will the baby be okay xx

@PrimeraVez the consultant the triage midwife got in contact with is within the team that my GP is writing too, so I'm under their radar anyway so the midwife says. Hopefully it should become clear on how to monitor me and a plan be put in place as this is what was requested when he responded to the triage midwife. He did question if I was on medication and what the GPs long term plan is for me, so I think his email is enough to give my GP a kick up the bum.

I will make sure to get the levels also, how do I know what's normal and what's not? Based on the fact they are saying I'm overactive not under active x

@Kiki1701 do you know what your level is? Your GP is likely to say that below 4 is normal however as PP said it is best to be under 2.5 for pregnancy. You might need to be persistent.

@MabelG no unfortunately I don't - but I am speaking to GP in the morning. I have a call back, I will ask what the level is and then request the blood test to be done as been told it needs to be, and then get those levels too do