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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Hyperemesis Support

993 replies

LucindaE · 27/01/2021 19:26

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.
There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.
MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos
Another invaluable website is:
www.pregnancysicknesssupport.org.uk
If you need help in obtaining medication, phone them on:
024 7638 2020
Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/topics/nausea-vomiting-in-pregnancy
cks.nice.org.uk/nauseavomiting-in-pregnancy
I would like to thank everyone who has given such invaluable support and advice on this and on previous threads.
It has been suggested that I add some practical tooth cleaning advice: a lot of sufferers find using a child's small toothbrush and strawberry toothpaste far less nauseating.
On my image of a pink castle: that is an image I use because when I was little, my family had a Snakes and Ladders board with an image on the last square of a pink castle in the clouds. As Hyperemesis is so like a grotesque version of Snakes and Ladders - eat a meal, go up a ladder, first thing in the morning bile run, down a snake - I have used the image of that pink castle on the last square of that Snakes and Ladders board as a metaphor for the happy end of Hyperemesis.
Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

Hyperemesis Support
Hyperemesis Support
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abbs1 · 15/06/2021 17:24

Hi to Everyone who recently joined. A good combination of medication that worked for me was ondansatron and metoclopromide alternatively every 4 hours even through the night from 5 months onwards. Before that no tablet medication stayed down so i had it all IV including steroids and fluids too. I was tempted around 30 weeks to stop meds as i felt a lot better but it didnt work. I would recommend if you feel well to wean down to a low dose but be careful stopping them as i was back to vomitting within 24hours.
The heat definitely makes HG worse. If your struggling to take fluids or keep them down please seek hospital attention and get some iv fluids. Dehydration I was told is so much more serious than not eating.

LucindaE · 15/06/2021 21:16

Jaylou7rainbow Welcome. Congratulations on your pregnancy. I am sorry to hear of your previous losses and the terminations due to Hyperemesis. I hope that your GP has a good care plan in place? Might the sort of IV treatment abbs1 had be useful? It might also be worth phoning Pregnancy Sickness Support on 024 7638 2020 who will phone back with good advice.
Aranciata Thank you! I am sure that my family and friends would strongly disagree about me being an angel, but it is a very sweet thought. I am glad you have a prescription for Xonvea. Several on here have found it very helpful. Congratulations on the tinned mandarins. Many swear by tinned peaches, too. Tinned pears were my favourite - particularly the juice. A good idea about little new potatoes!
Deftly I so agree about the heat making things worse and dehydration more likely. It was brave of you to try and give up meds and I am sorry it ended badly.
Abbs1 Great advice.

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abbs1 · 15/06/2021 21:41

@LucindaE

Jaylou7rainbow Welcome. Congratulations on your pregnancy. I am sorry to hear of your previous losses and the terminations due to Hyperemesis. I hope that your GP has a good care plan in place? Might the sort of IV treatment abbs1 had be useful? It might also be worth phoning Pregnancy Sickness Support on 024 7638 2020 who will phone back with good advice. Aranciata Thank you! I am sure that my family and friends would strongly disagree about me being an angel, but it is a very sweet thought. I am glad you have a prescription for Xonvea. Several on here have found it very helpful. Congratulations on the tinned mandarins. Many swear by tinned peaches, too. Tinned pears were my favourite - particularly the juice. A good idea about little new potatoes! Deftly I so agree about the heat making things worse and dehydration more likely. It was brave of you to try and give up meds and I am sorry it ended badly. Abbs1 Great advice.

@Jaylou7rainbow im so sorry as well to hear about your losses. Definitely speak to pregnancy sickness support as they offer peer support throughout your pregnancy if you'd like which im sure would help!

@Aranciata can you advise how youve been able to get Xonvea as im currently waiting to speak to my GP about it for my next pregnancy as they say it works best to take as soon as you get a positive test so im trying to get it before i get my bfp. Some are saying its a private prescription you have to pay for but others are saying its free with preganncy certificate or normal nhs cost of prescription. Im so glad its working for you.

Aranciata · 15/06/2021 22:19

@LucindaE thank you I have got tinned pears too and randomly DH bought tinned apple slices which I didn't know existed. I've turned my nose up at the apple so far but who knows?!
Maybe 'angel' is not how you'd describe yourself but you're a bloody lovely person to help when people need it.

@abbs1 I got a private prescription from my IVF clinic, my GP didn't prescribe anything.
It should actually arrive tomorrow.
I expect if a GP prescribes it then it should just be the NHS prescription cost.
Is the issue that they won't prescribe it until you are pregnant, or won't prescribe at all?

@Deftly I hope you are now well hydrated

@Jaylou7rainbow hope you get the treatment you need this time and feel supported

💐 to all

Daisychainsandsunshine · 16/06/2021 00:39

Hi everyone

So glad I found this thread, I am eight weeks and so so Ill.
Was admitted to hospital in week six for iv and injections as couldn't keep water down. On cariban and stemitel now but barely making it through the day. Don't know how I'm going to survive this.

abbs1 · 16/06/2021 06:57

@Aranciata i spoke to someone from pregnancy sickness support and they said GPs can do private prescriptions for it but its very expensive. Ive got an appointment beginning of July to ask for it so i can hopefully get some before i get pregnant so i have it ready to go as appointments are like gold dust at the moment.

abbs1 · 16/06/2021 07:02

@Daisychainsandsunshine

Hi everyone

So glad I found this thread, I am eight weeks and so so Ill.
Was admitted to hospital in week six for iv and injections as couldn't keep water down. On cariban and stemitel now but barely making it through the day. Don't know how I'm going to survive this.

Im so sorry you are suffering so badly. I was in the same situation as you early in my pregnancy. Can you ask for ondansatron tablets to take at home and can they give it you iv in hospital alongside fluids? It worked well for me. If they do make sure you get some lactulose as it makes one very constipated. Metoclopromide is good as well to work alongside ondansatron. I was trying to eat ice lollies or suck ice cubes but its so hard when nothing stays down. I hope you find this page helpful and supportive. @lucindaE also will have good advice and help for you im sure x
LilmissCa · 16/06/2021 11:04

Did anyone have a feeling like something is stuck on the back of your tongue?
It's so annoying, excessively swallowing to try & get rid of it or end up heaving thinking I'm going to be sick

hgsband · 16/06/2021 12:04

Hello! This is a quick message of thanks.

My wife suffered from HG in both of her pregnancies - nausea and vomiting from months 1 to 9, only going away when the placenta came out. I don't think she ever posted here, but she read this thread daily, and it really helped her get through. Reading about everyone else's experiences made here feel much less alone and prepared her for the many, many difficult conversations with doctors who didn't get it (or had never heard of HG, and said "if it gets bad, just go to A&E").

So thank you to the people posting here.

One other thing that's been great is Pregnancy Sickness Support, and the volunteer who's been checking in on her. They've been another great source of advice and information that she was able to use to educate a GP (the same one who had never heard of HG, who did actually go away and read the research after their appointment).

Long story short, after two horrendous pregnancies, we now have a ds and, as of Sunday, a dd, both of whom are happy and healthy. So good luck and best wishes to all of you who are suffering, and thank you all for being here to help support each other - including my family.

-- hgsband

Aranciata · 16/06/2021 18:57

@abbs1 I found on the website that Xonvea is £28.50 for a box (to the NHS) so can't see why they are saying it's really expensive. www.xonvea.co.uk/healthcare-xonvea-prescribing-information/#
It is available to buy in pharmacies in some mainland European countries but not much help with current travel restrictions.

@Daisychainsandsunshine you poor thing, going by experience on this thread this is possibly the most difficult time, just do what you absolutely have to.

@LilmissCa yes but I don't want to poke my tongue! Bad enough brushing my teeth.

@hgsband congratulations to you and DW and well done on educating the GP!

LucindaE · 16/06/2021 19:06

Welcome to Daisychainsandsunshine. There is lots of support on here. Sorry you are suffering badly. You've already had great advice from abbs1. Might the hospital or GP add or substitute any meds? The first tri is usually the worst for almost everybody. I
include my normal spiel which I hope will help. Most sufferers find that they improve a lot at some point between weeks 14 and 20. Even those who are unlucky enough to suffer throughout generally are not as ill later on as they are in the first part. A good anti acid can make a surprising difference to the sickness. Kesostix are worth buying online or from a chemists, as while they aren't they best test of dehydration, hospitals take them seriously. When reporting on the vomiting to doctors, remember to emphasize the number of heaves in each vomiting session, as doctors tend to count these as 'vomits' and this can lead to their underestimating the severity of your symptoms. Besides drinking through a straw, here are some drinks that have helped others: full sugar flat coke (if you don't find it too acid), ice lollies, the juice of tinned fruit, Lucozade, apple juice, Ribina, Dr Pepper, soda water, Elderflower water, tonic water, ice cubes, Iron Bru, lemonade, lemon squash, orange squash, orange juice (if not too acid), fizzy orange, 7Up, isotonic drinks, sips of chocolate milkshake (maybe soya), fizzy water, apple juice, Robinson's fruit drinks, Rubicon sparkling mango drink , raspberry Lucozade sport and frozen ice cubes of flat Lucozade sport . Foods of a sort include tinned fruit, cuppa soup, nibbles of crisps and chips, cheap ice cream, Scotch pancakes, bagels and biscuits and slices of melon and mango.
Aranciata Thank you! I'd never heard of tinned apples either, but they might well be just the thing.

hghusband Thank you so much for your encouraging message. I am so glad that this therad helped your wife and congratuations on your baby girl. Flowers Star Smile
abbs1 Excellent advice, as ever. I can't improve on it.
LittlemissCa I had that feeling as if my throat was swollen, that often comes with the feeling of imminent retching but which hung about - horrible. Also, disgustingly, I often had phlegm which seemed to be trapped at the back of the throat.
Apologies to anyone rudely overlooked.

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abbs1 · 16/06/2021 19:09

@Aranciata ive been speaking to a support person from PSS and its £28.50 to nhs but the pharmacy dispensing it add a percentage and apparently the dose is 1 tablet 3 times a day so other women who my support person helps said it costs £190 for 1 months supply here in the UK as its not funded by the NHS as a normal prescription. ☹ I will see what my GP says.

Daisychainsandsunshine · 16/06/2021 22:19

Hi everyone thank you so much for your replies, encouragement and tips, I will try anything, lots of tips I haven't heard of before . Thank you, it is nice to not feel so alone 😍

LucindaE · 17/06/2021 19:43

abbs1 All luck.
Daisychainsandsunshine I hope some of the information helps. Everyone is very supportive on here.

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LucindaE · 17/06/2021 19:44

Daisychainsandsunshine I forgot to say what a lovely name you have chosen.

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Jaylou7rainbow · 17/06/2021 22:12

Ladies what meds helped you the most? X

Aranciata · 17/06/2021 22:35

@abbs1 I think they could stretch to £190 a month when it could make such a difference to stop a patient being ill non-stop and is a relatively short-term usage for the duration of pregnancy. Didn't someone on this thread say 'cheaper than a hospital admission' (sorry can't remember who to credit for that!)
I'm paying close to that for my progesterone and other medication, my IVF clinic will come up with a plan to wean off it if things continue to progress well.

@Jaylou7rainbow have you tried any medication yet this time? Are you managing to stay hydrated?

Jaylou7rainbow · 17/06/2021 22:38

Hi, no I am only 4 weeks tomorrow. It starts with a vengeance at week 5.5. In the past I have tried all meds but just curios to see if there is a particular one that most hg people find any relief with. X

Aranciata · 17/06/2021 23:15

Was there anything at all that helped you previously? Although I guess each pregnancy could be different and something that wasn't much good before might help this time.
Have you been able to get a GP appointment so they can prescribe something ASAP (and are they clued up on HG)?

abbs1 · 18/06/2021 15:08

[quote Aranciata]@abbs1 I think they could stretch to £190 a month when it could make such a difference to stop a patient being ill non-stop and is a relatively short-term usage for the duration of pregnancy. Didn't someone on this thread say 'cheaper than a hospital admission' (sorry can't remember who to credit for that!)
I'm paying close to that for my progesterone and other medication, my IVF clinic will come up with a plan to wean off it if things continue to progress well.

@Jaylou7rainbow have you tried any medication yet this time? Are you managing to stay hydrated?[/quote]
Thats exactly what I thought along with countless bags of fluid and IV ondansatron and steroids. I was taking up a hospital bay on a near daily basis for months and then had a nurse come to my house twice a day to administer IV medication and fluids at home. Will see what my GP says in a few weeks.

LucindaE · 18/06/2021 19:02

abbs1 and Aranciata That is so true.
Jaylou7rainbow Some have been helped by steroids. Many sufferers with the severe form on here seem to have been helped most by Ondansetron in combination with Cyclizine or Metclopramide, plus an anti acid and maybe the anti nausea vitamin B I always cleverly forgot - is it B12 or B6?

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Jaylou7rainbow · 18/06/2021 20:45

It’s started today at 4 weeks normally starts at 6. I’m trying to keep calm. Thank you so much ladies @LucindaE and the bother ladies that replied to sick to scroll hospital Monday xx

abbs1 · 18/06/2021 21:18

@Jaylou7rainbow at 12 weeks after going into hospital nearly every day for IV ondansatron and fluids as tablet ondansatron and metoclopromide werent working at home, I got put on IV steroids twice a day for 2 weeks (nurse came to my house) as well as clexine injections then steroid tablets for 3 weeks weaning off them. Started vomitting again so did another 2 weeks IV steroids and then 4 weeks steroids and it worked. After that tablet ondansatron and metoclopromide were mostly enough to keep vomitting and nausea at bay as long as I took my tablets on time.
If your really struggling see if they can offer steroids. They were a life saver for me and i finally felt a bit more myself and could start eating some food.

Jaylou7rainbow · 18/06/2021 22:18

Thank you soooo much @abbs1 all noted Will def ask for them are they only by injection ? Glad you are feeling better x

abbs1 · 18/06/2021 22:25

@Jaylou7rainbow

Thank you soooo much *@abbs1* all noted Will def ask for them are they only by injection ? Glad you are feeling better x
I had IV steroids twice a day for 2 weeks given via canular that they kept in my hand for giving fluids and other iv medication. Then they put me on tablets that i slowly reduced every few days from 30mg to 5mg across a few weeks. Sadly after 24 hours of stopping them i was back to vomitting and not holding down water so they repeated it but did the tablets over a longer period of time and that worked. If you have the iv steroids either they have to come to your house twice a day or you may be admitted. I got lucky and had them at home.

My little boy will be 15 months tomorrow. Stay strong hun. You can do this. Sending hugs. If you have any questions just tag me and im happy to help all I can.