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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Hyperemesis Support

993 replies

LucindaE · 27/01/2021 19:26

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.
There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.
MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos
Another invaluable website is:
www.pregnancysicknesssupport.org.uk
If you need help in obtaining medication, phone them on:
024 7638 2020
Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/topics/nausea-vomiting-in-pregnancy
cks.nice.org.uk/nauseavomiting-in-pregnancy
I would like to thank everyone who has given such invaluable support and advice on this and on previous threads.
It has been suggested that I add some practical tooth cleaning advice: a lot of sufferers find using a child's small toothbrush and strawberry toothpaste far less nauseating.
On my image of a pink castle: that is an image I use because when I was little, my family had a Snakes and Ladders board with an image on the last square of a pink castle in the clouds. As Hyperemesis is so like a grotesque version of Snakes and Ladders - eat a meal, go up a ladder, first thing in the morning bile run, down a snake - I have used the image of that pink castle on the last square of that Snakes and Ladders board as a metaphor for the happy end of Hyperemesis.
Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

Hyperemesis Support
Hyperemesis Support
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abbs1 · 07/05/2021 19:48

@quietlyspoken08 did you manage to get any help lovely? Hope youre coping ok xx

intheloudhouse · 08/05/2021 12:49

Hi everyone, hope it's ok for me to join.
I'm 19 weeks today and have bee suffering with debilitating nausea all the way through - I have an awful phobia of vomiting. The nausea has been so bad I've been hospitalised last week as I couldn't eat, and I actually have a termination booked. I want to keep the baby but I just can't live like this for another 5 months.
I've been given Cyclizine, Ondansetron and Stemtil. How likely is it that I'll continue to feel this way until birth? I don't move from my sofa most day, it's completely stripped me of the person who I was.
Thanks for reading.

abbs1 · 08/05/2021 13:09

@intheloudhouse oh bless you. 5 months seems to be a big turning point for a lot of sufferers. The thing that helped me was steroids. Honestly it changed everything. I was on them for 8 weeks the vomiting gone and nausea very minimal and after they finished i was on alternating doses of ondansatron and metoclopromide and it worked for me.
Youve gotten so far aleady i would definitely ask for 3rd line treatment of steroids as it was life changing for me after nearly daily hospital visits for iv medication and fluids to control the nausea and vomitting.

Deftly · 08/05/2021 14:03

Hello everyone. I'm almost 11 weeks and have been really struggling the last week with the sickness. I've been having constant nausea and retching (mostly just saliva/bile would come up) since 4 weeks and only in the last week has it progressed to vomiting. For the last few days I'm struggling to keep even fluids down most of the time. I went to a&e on Thursday as I hadn't been able to keep anything down at all the whole day. They gave me several drugs while there which helped but didn't give me the iv drip or meds as I'd recently had an allergic reaction to plasters after a blood test.

I was able to eat that night after about 10pm and felt better yesterday and kept everything down thankfully but today it's bad again. They prescribed cyclizine but it says inside the pack that they're not suitable if breastfeeding and I'm still feeding my almost 2 year old. By the time I picked up my prescription yesterday my doctors was closed so I wasn't able to call them for advice. I told the a&e doctor I was breastfeeding so I'm not sure what to do. Has anyone here taken cyclizine while breastfeeding? Is it safe? I'm struggling at the moment and feeling desperate for some relief.

This is my 3rd pregnancy. I've had some sickness in previous pregnancies but not to this extent and not so early and relentless. I just feel utterly wiped out and I'm currently lying down in front of a fan, trying my hardest to keep a cup of tea down.

LucindaE · 08/05/2021 19:18

intheloudhouse Welcome, and much sympathy. You have already had great advice from abbs1 about steroids. Sorry to sound obtuse, but have you emphasized to the medics that you are seriously thinking of termination due to the sickness? That might make them treat it more seriously. Also, do emphasize to them the number of heaves counting each as a separate vomit as it seems doctors often do. Otherwise, they can underestimate the extent of the sickness. Most sufferers get an improvement at some time between 15-21 weeks. It is true that some suffer throughout, but very few suffer as badly later on as they do in the first part. Some sufferers have a termination in the hope that they won't get the same symptoms or symptoms as bad in subseuent pregnancies, but unfortunately, with Hyperemesis, the chances are high that you will get it again. There is lots of support on here which I hope might give you a boost.
Deftly Welcome. That is really bad luck about the plasters allergy. Couldn't they think of an alternative, as they must have come across it before? The advice about cycliine online seems very ambiguous , on the lines of 'probably safe for short term use'. Have you managed to contact any medic today or someone at your EPU for advice about this?
abbs1 Great advice for intheloudhouse. I too was wondering about quietlyspoken08.

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LucindaE · 09/05/2021 18:02

Did I post before that I saw some sherbert lemons in a suprermarket recently, and that reminded me that I found them helpful for the dreadful taste in the mouth, along with good old fasioned barley sugar and parma violets and some flavours of travel sweets. How much those are sold now is the thing, though...

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LucindaE · 10/05/2021 17:45

intotheloudhouse Deftly abbs1 and others, how are things? Very quiet on here. But this thread always works in ebbs and flows.

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Ysa15 · 10/05/2021 18:16

Hello, joining this thread. I’m 8 weeks and I’ve already been hospitalised with HG. Never been so sick and miserable in my life, my partner works very long hours and I’m alone a lot. Just trying to get through the days. Had 2 days of respite from vomiting after my hospital trip but it’s back with a vengeance even on the cyclizine. Now back to struggling with sips of juice and keeping it down. I’m hoping and praying I end up one of the lucky ones it stops for on 2nd trimester? My mum had it and suffered up til birth, nearly dying in the process and it’s such a horrible thought.

Sending love to everyone suffering with this condition - getting through each day is like climbing a mountain.

abbs1 · 10/05/2021 18:52

@ysa15 welcome to this thread. We are all here to support you. I was in the same position as you and they gave me IV ondansatron which helped so much. Can you ask for some in hospital and then get them to prescribe tablets for home? They did it for me. Just make sure you have lactulose as it makes you very constipated. Just make sure you wake even in the night to take your next dose. Sending hugs. My last pregnancy my husband was away for 14 hours a day so it was very lonely. Keep us posted on how your doing or if you just want some company.

@LucindaE im waiting on my BFP at the moment but wanted to be on here to support others as I know how much of a lifeline this page was for me in my last pregnancy.

LucindaE · 11/05/2021 17:32

Ysa15 Welcome. Sorry you feel so isolated and are suffering badly. You've already had great advice from abbs1 . I so agree, you need something sronger than Cyclzine, do approach your GP or the hospital for stronger meds. Hopefully, you will not suffer as badly as your mother as there are more effective meds these days. There is lots of support on here. Here is my normal spiel which I hope might help. Most sufferers find that they improve a lot at some point between weeks 14 and 20. Even those who are unlucky enough to suffer throughout generally are not as ill later on as they are in the first part. A good anti acid can make a surprising difference to the sickness. Kesostix are worth buying online or from a chemists, as while they aren't they best test of dehydration, hospitals take them seriously. When reporting on the vomiting to doctors, remember to emphasize the number of heaves in each vomiting session, as doctors tend to count these as 'vomits' and this can lead to their underestimating the severity of your symptoms. Besides drinking through a straw, here are some drinks that have helped others: full sugar flat coke (if you don't find it too acid), ice lollies, the juice of tinned fruit, Lucozade, apple juice, Ribina, Dr Pepper, soda water, Elderflower water, tonic water, ice cubes, Iron Bru, lemonade, lemon squash, orange squash, orange juice (if not too acid), fizzy orange, 7Up, isotonic drinks, sips of chocolate milkshake (maybe soya), fizzy water, apple juice, Robinson's fruit drinks, Rubicon sparkling mango drink , raspberry Lucozade sport and frozen ice cubes of flat Lucozade sport . Foods of a sort include tinned fruit, cuppa soup, nibbles of crisps and chips, cheap ice cream, Scotch pancakes, bagels and biscuits and slices of melon and mango.
abbs Silly me, of course you are TTC. All luck with that. Your input is really appreciated.

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Marnie1234 · 11/05/2021 17:43

Hi everyone, just a update I’m 14+3 today and had my second hospital trip yesterday with another 4keetones in my urine :( 2 bags of fluid and anti sickness and they had gone and I was able to come home, finding it really really difficult at the min Iv had this from week 6 and can’t remeber last time I ate a meal 😭😭 I just want my apetite back and I want to enjoy being pregnant I’m not enjoying it at all iv been thinking about terminating and I not having any other kids again.. I’ll never have anymore watever happens I can’t suffer like this anymore I’m heart broken and all I do is cry, Instagram doesn’t make things better every pregnant lady is happily eating and enjoying it I think it’s started to affect my well being now :( xx

abbs1 · 11/05/2021 18:20

@Marnie1234 oh hun, please don't give up. We are all here for you. What medication are you currently on? Could you request third line treatment for HG which is steroids? I was in the same place as you and steroids were a game changer! I finally felt a bit human again.
When i was suffering i tried my best to stay off social media easier said than done as it made me feel even worse and more depressed.
Keep reaching out to us here for support. There is also the charity pregancy sickness support who you can call and talk directly to someone who has been through HG they can even offer a support peer if youd like someone to speak to or text on a regular basis.
Sending big hugs 🤗

@LucindaE im out for this month so will see how next month goes. You are probably aware already but its HG awareness day on Saturday so lots of stuff going on fb, Instagram etc for support for women suffering right now

JessicaM2021 · 11/05/2021 18:57

Hi all, just checking in. I went to the doctor last week and he increased my Zofran dosage plus added in promethazine as I was incredibly dehydrated again. That combo isn’t perfect but I will say it’s helping some. I’m still nauseous 24/7, but vomit is down to once a day. I also just found out the gender, and we are having a girl 😊.

I’m so sorry to hear you are struggling so much @Marnie1234 You sound exactly how I felt until they put me on a lot more medication. I would say fight to get more or different medications. They are life changing. I avoid social media/pregnancy stuff because it is really depressing. I even have several friends I just absolutely cannot talk to right now because they either don’t believe me or think I’m exaggerating. It’s not good for my mental health to hear that kind of stuff right now.

Good luck next month @abbs1 !

LucindaE · 11/05/2021 19:57

Great advice for Marnie1234 from JessicaM2021 and abbs1.
I can't improve on it.
abbs1 Indeed, it is Hyperemesis Awareness Day on 15 May!

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abbs1 · 11/05/2021 20:17

@JessicaM2021 aww thank you. My cycles seem all over the place atm so im hoping im lucky next month.

Im glad the new medication is working a bit for you. I found the best combination for me from 5months onwards once my sickness settled after a very rough ride including needing steroids was ondansatron then 4hours later metoclopromide and did that round the clock even set alarms at night but if i forgot my medication i ending up being sick again. Keep asking for different options to see what works best for you. Nausea is just the worst and so draining. Big hugs 🤗

Ysa15 · 11/05/2021 21:06

So sorry for everyone suffering right now.

Think I will need to phone gp or maternity unit tomorrow as getting unbearable again. Can’t keep anything down. It’s just absolutely miserable and I’m barely functioning.

Marnie1234 · 12/05/2021 14:48

Thankyou, I have rang to speak to someone today because I really don’t want to terminate and she reassured me that it can go in a pattern and that if it stopped at 15 with my little girl it might do it again but could go on until 16, I’m petrified it’s Guna last longer are all way through woman who have done this all way through need more then a medal ❤️ .. she’s asked me to try the pins aswel as my medication and said i shouldn’t sit and suffer and that’s all I do I feel like Iv given up! I’m not even forcing food down at the moment cz I just can’t I know I’ll End up back in the hospital soon I can’t help but feel so sorry for myself and when I’m better I don’t think I’ll ever sit in my bedroom AGAIN I’m sick of being here and I miss adventures with my little girl so bad and our girl trips I can’t count how many times Iv cried today girls! Xxx

Marnie1234 · 12/05/2021 14:58

Thankyou, I have rang to speak to someone today because I really don’t want to terminate and she reassured me that it can go in a pattern and that if it stopped at 15 with my little girl it might do it again but could go on until 16, I’m petrified it’s Guna last longer are all way through woman who have done this all way through need more then a medal ❤️ .. she’s asked me to try the pins aswel as my medication and said i shouldn’t sit and suffer and that’s all I do I feel like Iv given up! I’m not even forcing food down at the moment cz I just can’t I know I’ll End up back in the hospital soon I can’t help but feel so sorry for myself and when I’m better I don’t think I’ll ever sit in my bedroom AGAIN 😭 I’m sick of being here and I miss adventures with my little girl so bad and our girl trips I can’t count how many times Iv cried today girls! Xxx

LucindaE · 12/05/2021 21:30

Marnie1234 Much sympathy. Try and take it one day at a time. 'This Too Shall Pass'. You are giving your little girl a priceless gift in a sibling, which will make up for this period of comparative neglect. I am not sure what 'pins ansel' is; I may be being obtuse.
Ysa15 Sorry to hear of that. That sounds like a good idea. I hope you get relief soon.
abbs1You may already be doing this, but I remember that I used the vaginal mucus method along with the the cervical cap as an additional form of birth control - and it was handy being able to tell my fertile times with that when I wanted to ttc. It occurs to me that if your cycle varies, that might be the best system to use to trace your fertile times? You used to b e able to get that information from an outfit called Woman's Health back in those pre-internet days, but it must be available onliine somewhere?

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MimPimMim · 13/05/2021 17:31

Hi everyone, just checking in. Have had a few relatively better days recently but struggling today - have been in bed mostly Sad Hope everyone else is holding up ok.

Going to have to go back to work for financial reasons in a couple of weeks and absolutely dreading it. I’ll be almost 16 weeks then and not sure how I’m going to manage it. I was off for longer last time and that was hard enough when I went back. I also had a more sympathetic manager last time so really not sure how this is going to work. I work from home, so that’s something at least. Has anyone got any return to work tips please? Any support very much appreciated, thank you.

LucindaE · 13/05/2021 20:18

MimPimMim Mother Hen Lucinda always fusses and clucks and says 'Don't go back until you feel better'. Is it financially imperative that you go back? Will you have a staggered return, even if you are working from home? I hope someone can advise you about how best to manage a return to work when suffering. A few good days is often a good sign of more and a possible turn around to come. Is there a HR department at your workplace or a union, as they ought to be able to help if you feel that your manager isn't understanding about a pregnancy related condition.

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MimPimMim · 13/05/2021 20:52

Unfortunately, yes Sad I can probably manage one additional week but that would leave me with no buffer for any sickness later on. Really don’t know what to do and finding it all very stressful. Don’t think I will get a staggered return in terms of hours but possibly in terms of workload, which might help. Good idea to speak to HR, I will have a read of our organisation policies too. And thanks for the sympathy Lucinda, I really appreciate it Smile Having a miserable day today and in some ways it’s harder to have a tough day after a couple of marginally better ones. Hard not to feel a bit defeated Sad

snapple21 · 13/05/2021 22:26

Quick update from me I delivered my hyperemesis baby on Tuesday with an elective c section. I had a girl, and I'm so pleased to report the sickness was gone by the time I was in recovery. My appetite is slowly returning. It feels like forever when you're pregnant and ill but I now feel it was so worth it.

JessicaM2021 · 13/05/2021 22:50

Congrats @snapple21 !! I’m so happy for you and also to hear your sickness is gone. Congratulations 💕.

LucindaE · 14/05/2021 19:39

snapple21 Congratulations. Happy news! Welcome to the Pink Castle at the end of the Hyperemesis horror experience. Thank you so much for updating us with your encouraging message. Enjoy every minute of your baby girl. Flowers Star Smile [cuppa]
JessicaM2021 How are things with you?
MimPimMim I hope you can work something out with HR. I can see why you'd want to keep a week in reserve. At least you'll be working from home and avoiding the horrors of the daily journey, worrying about the proxomity of office loos, etc.

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