Cyst behind baby's eye

[girlmama2021]

I'm pregnant with my second daughter, due in Feb next year. I had a routine scan last week at 27 weeks (as I have a pre-existing condition they did this extra scan to check all was well with the baby and she hasn't inherited this. She hasn't but they have spotted something unrelated to my own condition). To be honest, as the first two (12 and 20 weeks) scans had all been fine, I was expecting this to be fine also, but it turns out baby girl has a cyst behind her eye which has pushed the right eyeball out of place by around 2-3cm so far.

This condition seems pretty rare as none of the sonographors had ever seen this before, but an mri later that day seemed to confirm it as a cyst. I'm now waiting for them to speak with the team at Gt Ormond St who can hopefully shed a bit more light on it all.

The difficulty is, because none of the team I've spoken to so far have ever seen this, they don't have much of a potential outcome to go on. I'm terrified of googling this and making my anxiety about the whole situation worse by reading the wrong sort of thing. I was just wondering if any other mums had experienced anything similar, and what the outcome was for you?

Oh goodness @girlmama2021 i can only imagine what youre going through right now!! [Flowers].

As you've said - What is happening to your DD2 is rare and whilst I can't offer experience on this I can tell you that GOSH is absolutely AMAZING. I didnt want to read and run. Hopefully someone else can help.

[Flowers]

Sorry @girlmama2021 I don't have any helpful experience and I'm not medical, but didn't want to read and run.

Have they said when GOSH will chat to the team and when you will get some more info from them? In the meantime, I think you're doing the right thing by not googling, I'd try to stay off that for now - the real professionals (GOSH, I echo that they are amazing, I have connections with them through my work) will be able to walk you through everything soon and I'm sure they'll be able to reassure you about any next steps to take for your lovely little one. Even if this is really rare, I work in a healthcare children's setting and we care for children with super super super rare conditions. Even then, there are amazing experts who can feed into plans and who really know their stuff.

@girlmama2021 I don't have experience but I wanted to say that I'm sorry you are going through this and you have all my best wishes x

My dad had this as an adult. You can see in photographs it was pushing his eye out of position as it was on the inner side of the socket. They had no idea what it was and feared it was cancerous. It turned out to be a simple sebacecous cyst and was surgically removed with no effect on eye or socket. His surgeon had never seen it either and he was a famous facial surgeon who worked on the 'boy in the jungle'.
I wish all the best for you and your little girl, PM me if you want his name and the hospital, it was a very long time ago, early 80's and my dad passed away 20 years later of heart disease but they may still have information.