unicornate uterus pregnancy - what to look out for?

[Mustang04]

Hi all,

I am currently 14 weeks pregnant (first child) after being diagnosed with unicornuate uterus. Its a rare condition where I only have half of a normal uterus and only one functioning tube. There are higher risks associated with this condition, like pre-term labor, higher risk of miscarriage and higher risk of fetal death due to poor bloodflow.

Evereything has been ok so far - but I live in Denmark, where care for pregnant women is very regimented. It's a great system for a normal pregnancy, but "edge cases" don't really get any attention.

For example, you dont get to see an OBGYN at any point, only one consultation with your normal GP on week 24. Besides that there is a scan at week 13 and one at week 20 with a nurse. You get assigned a midwife to see 2 times, and mine never heard of this condition. Birth is also handled by midwife and C-section is rare and discouraged.

So I don't trust that anybody is aware of what to do - and what to look out for.

I am looking for any advice regarding this - who should I talk to? what tests should I push for? what should they be monitoring?

Hello!! I also have a unicornuate uterus and am 23weeks pregnant so we're at fairly similar stages. Are you on the UU Facebook groups? I've found them very helpful.

Congratulations on your pregnancy - sounds like a good resource already suggested. I do find it hard to believe that Denmark doesn’t have any “high risk” care pathway - I would think you deserve at least a couple of scans to monitor the length of your cervix as I believe there’s a correlation with shortened cervix and preterm birth (for which there are treatments available) - and also some extra growth scans. Who is looking after you? They definitely have obstetricians one Denmark so there should be a way to get referred to one. Are there private scans available? I guess that’s another approach.
Hopefully the Facebook group suggested will have some up to date resources for you - google can give alarming figures for this kind of thing but actually outcomes will be a whole lot better than google suggests. Congratulations again.

I just found out today I have a unicornuate uterus and I have a 3 year old. We've been having a hard time making a sibling, but with my pregnancy(only one I've had) there wasn't anything abnormal about it, besides her being 1 week late and weighing 10lbs. We had her induced after a week because my husband was going on deployment the next week, and my doctors didn't monitor me at all with ultrasound, so the 10 lbs was a surprise.
Wish the best for both of you and hope your pregnancies are going well!