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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

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Original poster

Any positive PCOS pregnancy stories?

24 replies

Cafeaulait27 · 17/10/2020 22:19

I’ve recently had my first miscarriage (on Wednesday, after finding there was no heartbeat at 9 weeks last Thursday) and alongside all the physical and emotional pain that comes with that I’m also terrified for the future. This was my first pregnancy after 6 months of trying and I’m 32.

I have pcos and I’ve been reading a lot about how pcos women are much more likely to miscarry as well as struggling to conceive. This seems to be due to both hormonal imbalances and poor egg quality.

I’m so scared that I’m going to struggle to get pregnant again and when I do it’s going to end in another miscarriage ☹️

I have pretty much all the symptoms apart from the fact that I’m not overweight. I’m on metformin which regulates my cycles.

If anyone with pcos has any positive stories I would love to hear them xxx

OP posts:

Irre247 · 17/10/2020 22:33

I am so very sorry for your loss

emmab96 · 17/10/2020 22:35

First of all I'm so very sorry for your loss it really is a pain like no other sending lots of love! But there is hope I have PCOS and I was told that I may struggle to conceive but I did fall pregnant sadly my first pregnancy also ended in a miscarriage I was about 6 weeks pregnant but I went on to fall pregnant again 6 months later and I now have a happy healthy little boy and I'm actually currently pregnant again which was a happy accident it was failed contraception so PCOS doesn't always have to mean you can't fall pregnant or carry a baby I also have lots of friends 30 and over who have been told they wouldn't be able to conceive due to PCOS but they all have multiple children so don't give up hope just yet! I wish you all the luck and hope you get your rainbow baby soon!xx

Grumpy19 · 17/10/2020 22:42

Sorry for your loss OP.
I have PCOS and didn't have a period in over a year before finding out I was expecting DC1 (I was waiting for my period so I could begin Clomid when I got my first ever BFP) We had been ttc for 2 years before that.
I am now expecting DC4 (I am 37) and thankfully have never had a miscarriage.
Don't give up hope.

Original poster

Cafeaulait27 · 17/10/2020 22:56

Thank you so much guys, so pleased to hear your positive stories.

I’m feeling really quite depressed and sad. As well as still being in shock that the miscarriage happened and still reeling from the physical pain, I am feeling quite downhearted about next time. I think I a lot of it has to do with the fact that my mum had 4 miscarriages before having me, I’m worried that I have a long road ahead ☹️

OP posts:

Juniperandrage · 17/10/2020 23:07

It took me twenty years to conceive but I had a healthy pregnancy and she is just perfect

peachgreen · 17/10/2020 23:14

Me. I conceived fairly easily the first time but lost that baby. Second time took us 7 months (in fact she was conceived on the due date of the baby we lost) and had a completely straightforward, easy and enjoyable pregnancy. She's now almost 3. Sorry for your loss, OP. Best of luck to you.

Blackbear19 · 17/10/2020 23:18

My story DS1 after 6 months trying and cycle after a very early loss. Conceived naturally. DS2 after 4 years, 6 rounds of clomid, 3 IUI, 2 IVF, I was 41 when he was born.

My friend tried for years, got DC1 on round 6 of clomid and got her DC2 on round 1.

My sis got DC1 after IUI, and DC2 was natural.

It will happen in time. But start the ball rolling with the NHS as it can take ages to get anywhere.

Monday55 · 17/10/2020 23:29

Really sorry for your loss OP. I don't have PCOS but when I was searching fertility supplements I kept coming across myo-inositol which seems to be a miracle cure for some PCOS sufferers. Have a read of reviews from users on amazon or Google.

OnceUponAFairyTime · 17/10/2020 23:32

I’m so sorry for your loss. I have PCOS and I have a toddler lying asleep next to me as I type, conceived at 40yrs as well so there’s hope.

ellerman · 17/10/2020 23:37

I have PCOS, I have 3 children, no. 1 conceived easily, no. 2 conceived after 9 months of no periods, used cervical mucus method to predict next passing egg and no. 3 happy accident in my early 40s. I didn't have any medication. Wishing you well in this journey.

awaynbileyerheed · 17/10/2020 23:47

Sorry for your loss! I was diagnosed with PCOS when I was 19. I'm now 36 and had my first baby 4 months ago. It was my first pregnancy and I fell pregnant on the second month of trying. My pregnancy was very straightforward and uneventful with no complications at all.

I was told I would need help to conceive but thankfully that wasn't the case. I quizzed my GP about any increased risks of miscarriage or complications and he informed that the biggest hurdle with PCOS is actually conceiving.

Wishing you all the best x

SockQueen · 18/10/2020 00:28

I was diagnosed with PCOS after a year of TTC for DC1. Got pregnant on my second cycle of Clomid. Healthy (enormous!) baby, breastfed for 2 years. I didn't even know that PCOS could cause breastfeeding problems at the time.

When it came to thinking about a second child, we started trying without any anticipation of it working, fully expecting to try for a year before going back for more Clomid. But somehow I got pregnant naturally after about 5 months and had another successful pregnancy, big baby and breastfed him for 13 months.

These are just my experiences and everyone is different but as you can see, plenty of women with PCOS do have successful pregnancies. Good luck!

MrsB16 · 18/10/2020 01:54

I was diagnosed with PCOS, my first pregnancy was conceived after 6 months of trying but I had a miscarriage at 9 weeks. My periods didn’t return after my miscarriage but I discovered I was pregnant again 10 weeks later. My 5 week old is currently snuggling on my chest. I would also second myo-intisinol. I started taking it after about 5 months of trying and fell pregnant on month 6. I started taking it again soon after my miscarriage and also fell pregnant again very quickly. Both times I conceived I had also started a very strict healthy eating regime but I am in the overweight category of bmi. Good luck, I hope it will happen again soon for you.

Original poster

Cafeaulait27 · 18/10/2020 03:20

Thank you everyone, I hope it happens for me next time, I don’t want to have to do this again ☹️

@MrsB16 your first pregnancy was very similar to mine - I’m sorry for your loss, but congratulations on your baby ☺️ Please could you let me know which myo inositol you buy? I did take some for a short time when I came off the pill and my periods didn’t return, but it made me extremely dizzy and sick so I stopped. It was some tablets off amazon, which I worry were dodgy. I also then tried powder from Zita West but my periods still didn’t come back so I stopped again. I only got my period back once I started metformin. Thank you xx

OP posts:

Original poster

Cafeaulait27 · 18/10/2020 03:26

@awaynbileyerheed congratulations! Wow, this is how I wish my pregnancy could’ve been ☹️

Pcos is nearly always listed as a reason for miscarriage, even on the nhs website, and after digging deeper this appears to be due to having more poor quality eggs than the average person. In my experience gps often don’t know much about pcos. I’m so glad it worked out for you ☺️

OP posts:

Blondie1984 · 18/10/2020 03:27

Victoria Beckham reportedly has PCOS and she’s had 4....

aToadOnTheWhole · 18/10/2020 07:49

One almost four year old who was conceived on cycle 4. And 18 weeks preg the with one conceived after six cycles (but using myo-inositol and clomid as I hadn't ovulated in over a year at that point.)

I believe metformin and myo-inositol are similar/the same. Would also recommend using glycemic index diet as it regulates insulin production which can also help. I've heard others having success using keto.

I am so sorry for your loss

chaosisaladder · 18/10/2020 08:03

OP, I am so sorry for your loss. When you already have a known fertility issue, it can feel like the odds are stacked against you.

I have PCOS. I have 2 DC and am (unexpectedly) pregnant with my third. After my 2nd DC, I had a scan was told I was lucky to have had her as my ovaries were just covered in cysts - the lady doing my ultrasound said they were the worst she’d ever seen

Between my first and second DC, I miscarried and so, so far I fit with the 1 in 4 stat. I know lots of other women with PCOS and they all have children. All of them. Some roads were longer than others, but we all got there.

For context - my periods got better after having the DC, but earlier this year they randomly stopped again - around Feb I think was my last. I got pregnant in August after one careless night.

Don’t give up hope.

reimah · 18/10/2020 11:00

Hi OP,

I’ve got PCOS and I miscarried in April earlier this year, I thought it was because I didn’t carry on the metformin, or maybe I have hormonal imbalance due to the PCOS, that’s why my baby didn’t make it.
But it’s one thing I had to accept, I couldn’t do anything to change it

I’m currently pregnant now, had metformin everyday (doctor didn’t tell me to) and progesterone pessaries twice a day. At the 12 week scan, the consultant said, I must stop taking the metformin and stop with the progesterone at 15 weeks.

Wishing you all the best, PCOS ladies can make it, it just takes us a little longer

Original poster

Cafeaulait27 · 18/10/2020 12:14

Thank you everyone this is all really encouraging.

@reimah thank you and I’m sorry for your loss. I hope I can get further next time like you. I thought the metformin would help me (and I know it does help my cycles) but I guess it wasn’t enough this time. How did you manage to get progesterone after only one miscarriage if you don’t mind me asking? I would really like to get progesterone next time and find out if I should also be taking low dose aspirin.

I feel the same way as you did - my gut is telling me that my body/hormones couldn’t support this baby. I wholeheartedly believe it was healthy as things were going well at first, but I feel that my body stopped it from developing.

I’m really pleased for you that this pregnancy is going well for you xx

OP posts:

reimah · 18/10/2020 13:51

Hi @Cafeaulait27

Thanks for your kind words, I requested it at the EPAU at a scan after my miscarriage.

They did say it’s not prescribe it until a 3rd miscarriage, but I said I cannot wait for that.
I needed a peace of mind, because I was scared my body will fail me again.

I asked my consultant about aspirin, they said it’s needed for those who are overweight or smokers.

Hope that helps xx

Original poster

Cafeaulait27 · 18/10/2020 13:58

Hi @reimah thank you for advising ☺️ I feel the same - I don’t want to have 3 Miscarriages before anything is done.

What’s your metformin dose if you don’t mind me asking? I’m on 1000mg (started on 500) and I’m wondering if it should be increased really as a lot of people seem to be on more.

I have an appointment with my nhs specialist on Thursday (we were on the waiting list for clomid when I got pregnant) so I will ask her about progesterone for next time.

Did you start taking the progesterone as soon as you got a positive pregnancy test? And did you get the prescription in advance, in anticipation of becoming pregnant again?

How far along are you now? You must’ve felt so relieved at your 12 weeks scan.

Thank you so much xx

OP posts:

sumtash · 22/06/2022 11:14

Are there medication that you used

Waitwhat23 · 22/06/2022 11:45

It took me over 3 years to conceive (and losing around 3 stone seemed to help) but my wee one is now 2. Was on asprin throughout (existing high blood pressure) and when I read about possible link between PCOS and a higher rate of miscarriage (though bear in mind, none of the studies are particularly conclusive), I asked about progesterone but was told by my GP that it's not routinely prescribed (Scotland). Have asked many times over the years to go on metformin but am always told no.

I had an early scan and even my husband could see that one of my ovaries was completely covered in cysts while the other (where the corpus luteum was) looked fine so I assume that egg came from there).

Have to agree about GP's generally not having particularly good knowledge about PCOS. Have only met one who reads research and journal articles to know more and I was given my diagnosis 20 years ago.

Big hugs to everyone who has suffered losses x

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