Please or to access all these features

Add post

Watch this thread

Save thread

Start a new thread

Flip thread

Hide thread

My feed

Active Unanswered threads

Getting started FAQ's

Unanswered threads Acronyms Talk guidelines

Hide shortcut buttons

Talk

Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Flip

Original poster

IVF Pregnancy. MoMo twins

12 replies

AmIamum10 · 04/09/2020 15:16

I got pregnant with momo twins. MoMo technically means, two babies in one gestational sac without a separating membrane between them.

The risks are huge. The maternal fetal medicine specialist here in New York isn't very positive. I am at my 12th week. Seems like they are recommending pregnancy termination without actually saying it. I'm devastated. This is my first pregnancy after 5 years of trying and subsequent IVF.

IVF ICSI comes with it's own risks. Then we have twins in the same sac. There are huge risks with the babies growth, twin to twin transfusion syndrome and other birth defects. Seems like they will have be admitted at 25 weeks and get the babies out at or before 34 weeks followed by NICU for the babies.

I understand not many of you would have encountered this or will have any information. I am just venting and need some support.

OP posts:

Addler · 04/09/2020 15:36

I don't have any experience carrying twins, but I am a mono/mono twin myself. I think back when I was born they didn't really know the risks or consider it such a high risk, my mother only had a few extra scans and was induced at 36 weeks but that was due to not being able to walk, pre eclampsia and my dad only being in the country for a few days before going back to sea.

We had a very mild case of TTTS, I was born fat and red and my sister was pale and a touch smaller and a little sickly, but we were still 5lb something so great weights for twins of that gestation.

Other than that it was a very easy pregnancy and birth.

I know this isn't how things are conducted today, but I hope it might be of some comfort to you of the possibilities.

Original poster

AmIamum10 · 04/09/2020 15:47

@Addler

We had a very mild case of TTTS, I was born fat and red and my sister was pale and a touch smaller and a little sickly, but we were still 5lb something so great weights for twins of that gestation.

Other than that it was a very easy pregnancy and birth.

I know this isn't how things are conducted today, but I hope it might be of some comfort to you of the possibilities.

Thank you very much Addler. Ignorance is a bliss in some cases. The internet is screwing me up. I think you had answered me in one of the earlier threads I posted when I got the BFP as well. This cannot be a coincidence that you read both my posts and replied.

My husband is really hopeful. He probably wants to keep the pregnancy. How is your sister and you doing now? I hope you both are perfect

To make twins worse I am twin myself. Fraternal at it. I did not enjoy growing up as a twin. Me and my twin sister were pit up against each other all the time. The comparisons and all. I am worried abt my children as well. Although it is the least of my worries now.

Do you know if your mom had a membrane between the twins at all?

OP posts:

20viona · 04/09/2020 15:49

My friend had this happen last year. Every week was touch and go but she made it to 31 weeks and now her girls are 9 months old and thriving. Good luck to you.

RosettaR · 04/09/2020 15:55

@Amlamum10 I don't have experience of this but I have read about it, as I'm pregnant with twins myself and it's not been confirmed whether they are in separate amniotic sacs - the midwife thought she could see a membrane when I got scanned at 7 weeks but that was too early to be sure. They are definitely identical as we did ivf and we only had one embryo.

So I just wanted to pass on sympathy really. I know the risks are higher but I think the chances of everyone being healthy are much better than they used to be thanks to all the advances in neonatal medicine. Good luck working things out.

eurochick · 04/09/2020 15:56

Obviously your medical team knows more about your particular case than anyone here but in case good news stories help my bestie had identical twins from icsi. There was some uncertainty as to whether they were in one sac or if there was a membrane between them - the sonographers couldn't decide and I don't recall what the final outcome was. No doubt the pregnancy was tough, physically and mentally. Her waters went at 31 weeks and she was taken to a hospital a couple of hours from as it was the nearest place with two nicu beds available. But she was discharged and hung on to 35 weeks. There was some ttts but they both made it. Her boys spent a short time in scbu but are now strapping nine year olds.

I hope you have a good news story to tell one day too.

Addler · 04/09/2020 16:48

@AmIamum10

My sister and I are very close. There were a few issues growing up, with regard to alway being seen as one half of a pair and not as individuals, and we had trouble allowing things to be different for us and not expecting things to be equal constantly. So that's something we've had to work on as adults.

Now we're very close, message every day and see each other often.

Original poster

AmIamum10 · 04/09/2020 16:58

@Addler Absolutely understand. I and my sister are very close as well. Closest as it can get. I can totally relate. The same issues as you had when we grow up. We live in the same city, work for the same company and are dear to each other. We even see each other every day.

Just that the growing up part was hard as we were seen half of a pair :)

OP posts:

Original poster

AmIamum10 · 04/09/2020 16:59

Thanks to all of you for responding. I have an appointment next week. We will know better by then. I ll update here :)

OP posts:

NM86 · 21/09/2020 21:28

@AmIamum10 was there any update?
I’ve also just found out I’m having Mono twins after our first round of IVF. So nervous and scared.

Original poster

AmIamum10 · 24/09/2020 20:41

[quote NM86]@AmIamum10 was there any update?
I’ve also just found out I’m having Mono twins after our first round of IVF. So nervous and scared.[/quote]
I have been contemplating since you have posted if I should answer you or not. It's been killing me.

I had to terminate my pregnancy. The mfm in NY recommended us to do so. The risks were too much to handle for us. I am not sure how healthcare and the costs are in where you live.

I know this is not encouraging news for you. When I was pregnant with mono mono, I was looking for a lot of information. So I am writing on what happened to us. If it was a naturally conceived mono mono the risks are still there, albeit a little low. ICSI/IVF comes with it's own risks.

We were also hoping to see a separating membrane. Did not happen. We had to do a d&c. My husband and I were/are devastated.

I recommend you to listen to your doctors. Let me know if you need more information. I do not want to now list the risks our mfm gave us unless you want to know. I know how you feel. I'm sorry.

There are some success stories as well. Healthcare costs in US are a little complicated and it could have bankrupted us despite having insurance. So we had to think about that as well.

OP posts:

NM86 · 25/09/2020 12:04

Thank you @AmIamum10 and I’m so sorry for your loss. This is such a hard and emotionally draining rollercoaster.
I sadly found out this week our Mono twins didn’t survive. I had some slight spotting and went for a scan and we found they both no longer had heartbeats. My husband & I are absolutely devastated as I’m sure you’re also. This weekend we were meant to be celebrating our news with family and now I’m just laying in bed waiting for the impending miscarriage to come on. Life can be so cruel but I believe it will happen for us and for you.
Take care and all the best x

Original poster

AmIamum10 · 25/09/2020 14:06

@NM86. I am so sorry for your loss. Take care. I wish you all the best in the future. I am sorry again

OP posts:

Flip