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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Baby has severely small chest- please help :(

61 replies

MisssC3025 · 06/02/2020 11:23

We would really like some advice, help or similar stories to help us during this tough time.
At anomaly scan, we were told our baby boy has short long bones (off the chart) in both arms and legs. In addition, baby's chest was measuring "severely small". We went to three different hospitals and our last appt was yesterday at King's College hosp where three specialists and consultants told us the same thing. So overall we have had 6 people in the last month highlight the same problems. We have been told by all of these professionals that our baby is highly unlikely to survive, as his lungs won't have space to breathe when he takes his first breath.

We are broken 💔 confused and in denial.
We have been given an option to terminate. Every hour, our minds flicker between "termination is the way forward" to "no it's not the end we need to see it through".
If anyone has gone through similar to this or exactly the same or just can support us in anyway we would so greatly appreciate it.
We feel so alone despite having the most wonderful family and friends. We know the decision lies in our hands 😢😢

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MisssC3025 · 07/02/2020 21:15

@imamearcat hi thanks for posting. I appreciate your honesty. Will see what our heart decides when it's ready. So far DP is set on going full term ... myself ... I'm going back and forth every 5seconds 😔

Xx

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MisssC3025 · 07/02/2020 21:17

@SweetpeaOrMarigold thank you for your post! We will be going to see someone at the hospital next week and we will ask as many questions we can think of!

@ASureSign thanks for your post.Very hard 😔💖

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MisssC3025 · 07/02/2020 21:19

@Oulu hey and thanks for your post. His breaks my 💔 that she went through this ! I can completely understand this and why she chose to do this 💔 that's what's playing through my mind too! DP is certain to go full term, but atm I think he's really holding onto hope! Breaks my heart. Never seen him so low 😔

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MisssC3025 · 07/02/2020 21:21

@notapizzaeater thanks for sharing this story this also breaks my heart 💔 I can't believe people have to go through this torture 😔😢 I'm so glad she went on to have 2 healthy children after. I know we will be in that position one day 🙏🤞🏼

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MisssC3025 · 07/02/2020 21:23

@YappityYapYap thanks for posting! What a turn around story for your friend to have how wonderful! I hope in future he won't have further complications and he an continue enjoying life! I'd love this to be our case.. but who knows. 😔 they were very brave for sure 🙏

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PurpleFlower1983 · 08/02/2020 07:26

I’ve no advice but I just wanted to say how sorry I am that you’re going through this Flowers

MisssC3025 · 08/02/2020 14:03

@WelshMammy123 hi again. Wow it's so rare to find this anywhere online. All I keep coming across are short long bones or other skeletal problems... hardly finding anything that's both short long bones and Bell-shaped chest 💔 so thank you again for reaching out.

I can completely understand why your DH chose not to see her. I guess neither of us will know how we will act when the time comes.

I'm having an extremely low day today. Pretty much shut myself away from anyone. I've never been this type of person.. I'm usually so open with expressing my feelings. However this is a feeling I've never experienced. I know there will be days of lows and normal days. Everyone is saying one day my heart will know what's the best option, but I just can't see that happening right now. The longer we leave this decision the most likely we will go to full term and see. I just don't want him suffering 😔

Thank you again. Lots of love x

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MisssC3025 · 08/02/2020 14:04

@Bluerussian @PurpleFlower1983 thank you for your post 💖

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MisssC3025 · 08/02/2020 14:05

@LisBethSalander07 thank you for reaching out and sharing your story. I'm so sorry you had to go through with this 💔💔

You're so brave. I'm glad you had positive memories from it despite how sad it must have been.

Thanks for sharing it really helps 💖😘

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Whereland · 08/02/2020 14:12

I'm so so sorry you are facing this

MisssC3025 · 10/02/2020 14:27

@Whereland thank your for your thoughtful post 💖

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