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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Pregnancy post IUGR, placental insufficiency and loss

5 replies

Vikasjourney · 24/01/2020 14:23

Ladies, this story has a happy ending. Albeit times when I felt like maybe happiness just wasn't in the cards for me.

I wasn't thinking of sharing painful memories - it is easier for me to push unpleasant experiences under the thick rug of my mind's basement - but if even one of you can relate and get some "I can do it" energy from my story, then it is worth reliving some of those moments.

In (very) short, DH and I went through almost a year of no conception, two miscarriages and a pregnancy termination at 25 weeks due to severe IUGR, placental insufficiency and a brain abnormality which would have resulted in permanent disability and pain to the child. There, I said it all.

Before the IUGR diagnosis was established at 21 weeks, I was in a careless, excited and extremely happy mood. I was pregnant. I was way beyond the 12-weeks mark, and so outside of the miscarriage red zone. My 20 weeks scan went well and all the doc said was "congrats, healthy baby". Great. Then I went to a further ultrasound - because we had insurance coverage for the pregnancy and so it was free so hey why not - and got the meanest coldest shower I ever have. My whole world was literally flipped. I came out with an entire array of new and scary terminology which I did not fully understand. Fear and confusion took hold of me until full blown panic set in. I researched the web and god informed on PAPP A levels, probability curves, survival chances. I turned to forums for hope. Docs dragged the situation for another few weeks of monitoring and tests, but really there was no hope. They suggested the possibility of termination. I felt like I was murdering my baby. I cried for a week. I prayed. I lost hope. I accepted defeat.

The injection which stopped her heart was the single loneliest and most difficult moment I have confronted in my life (so far). I gave up on my baby - that's how I felt. All my rosy hopes turned into grey, muddy reality. I was in despair. The walk home from the hospital is all blurry. I couldn't see the pavement in front of me from the tears. I spent that sleepless night in tears and cries. I spent the entire next 24 hours hating myself, the entire universe, God, gods, destiny, everything and everyone.

That late in the pregnancy, be it a stillbirth or a LTOP, you need to deliver the baby. You are induced and you give birth. I was so tired of living at that point, that I just wanted the nightmare to be over. Do whatever you gotta do, I don't care about anything anymore.

After the delivery, I started searching for answers. Not satisfied with blaming bad luck anymore. We consulted the best in the field, been to numerous scans, MRIs, done blood test, urine tests, placental tests, genetic tests.... nothing. No traces of an explanation. Docs kept telling me it was better this way.

They kept saying the same thing when I didn't get a positive pregnancy test for about a year. Then when I had two early miscarriages.

When I finally got pregnant and reached 12 weeks, I was elated and terrified. Every scan and test would give me a panic attack. I kept expecting the worst - hell, that seemed to be my destiny, right? Wrong. To my big surprise the pregnancy went relatively problem-free. I was induced at 38 weeks because docs wanted to be conservative about it still. I gave birth.

I have a son. I HAVE A SON! As hard as it still is for me to believe I made it, it is true.

Whatever your hardship is, however far the light seems to be, don't lose hope and don't give up. A tiny step at a time.

I am wishing you all the very best of luck.

Vika

OP posts:
Vikasjourney · 24/01/2020 14:25

I would love to hear your stories. and if you are in need of a chat, I would be honoured to be there for you.

OP posts:
Delbelleber · 24/01/2020 14:46

What a horrible heart breaking time you've had.
Congratulations on your son Flowers

Vikasjourney · 24/01/2020 15:37

Thank you dear. It’s been as low as it gets. Luckily life turned the page for me.

OP posts:
sadtoday21 · 24/01/2020 16:47

Thank you for sharing your heartbreaking and beautiful story. I cried reading it and I’m so happy you got your rainbow baby in the end. Congratulations on your beautiful son!

Forgive me for asking, but I’m really anxious after my own losses. How could the 20 week scan not pick up IUGR or placenta problems and then a 21 week scan did? I just don’t understand how one week could make such a huge difference without any other signs something was wrong sooner.

Vikasjourney · 24/01/2020 19:37

There were about two weeks gap between the two scans. We had the 20 week anatomy scan at 19 weeks 4 days with the NHS, and then at 21 and 2 days the private one. There was one real red flag, ie a low papp-a identified at about 12 weeks, but we were told not to worry about it because all the rest looked fine.

Biggest miss on the NHS side was the brain anomaly - they didn’t notice that at all. With regards to the fetus size, I think it was a combination of bad scanning and the situation worsening all of a sudden... that’s the only explanation I found

Be strong. I am wishing you all the best

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