Polyhydramnios

[Robs20]

I had a scan 2 weeks ago and twin 1 has excess fluid (it doesn’t say in my notes how high/ how much). I had the diabetes test on Friday and waiting for results.

Does anyone have any experience/ stories about this. Same twin also had higher NT measurement at 12 week scan, whilst the nipt test came back as low risk, I am worried both of these could indicate a genetic problem (unlikely to be the same condition, but dd1 died from a rare genetic condition so I am on high worry/ alert).

I’m seeing the consultant again on thursday, is there anything specific I could ask? I read somewhere that the higher fluid could be due to the baby not swallowing. Is that something they can see on a scan?

Thank you!

Hi Robs, I've been lurking on these boards for awhile, never posted. I'm from the U.S. and came across MN while searching for others with increased nuchal translucency and positive stories. At 12 weeks, mine measured 3.7mm. CVS results came back fine, as did fetal echo. I'm 28 weeks now, and the anxiety has not abated. So I empathize with you completely.
Did you do a CVS or amnio? Those would be able to diagnose a broader range of genetic causes, though not all. That being said, I do remember reading somewhere that both increased NT and polyhydraminos can be associated with Twin to Twin transfusion syndrome. Is that something your doctor has brought up with you? I'm not at all medical expert, but I do believe they have some possible ways of managing that, if it is the cause.
Sending you lots of good vibes and positive thoughts that it all turns out to be nothing, and just the baby keeping you on your toes!!

Hi @georgiablue good to hear that all of your tests have come back ok. Fingers crossed for you that the higher NT was just one of those things.

I didn’t have a cvs/ amnio - the nipt test came back as low risk so consultant didn’t think it was necessary (and the risk of miscarriage doubles in twin pregnancy). I thought about having it anyway to look for other genetic conditions, but if this baby has the same condition as dd1, it wouldn’t show up (the condition was so rare it cant be tested for).

I’ve had 2 fetal cardiac scans and both were ok. Don’t think it is TTTS as they are non-id twins. Hopefully these are all just unrelated coincidences but my mind is fearing the worst.....

Oops @georgiablue2 meant to tag you!

Referring to your swallowing question..

If baby has Tracheo-Oesophageal Fistula (TOF) and/or Oesophageal Atresia (OA) it is occasionally picked up antenatally. More commonly it's not until after birth. It's a pretty rare condition so polyhydramnios doesn't mean that there is a issue. Ask though! They may be able to reassure you, as sometimes you can see baby swallowing on ultrasound.

My eldest has TOF/OA, but was diagnosed after birth. I had polyhydramnios and was told "there may be an issue with swallowing, but probably not". Happy to answer any questions if it would help.

I had polyhydramnios. Glucose tests came back negative so it wasn't gestational diabetes. I was bloody huge and uncomfortable for most of the third trimester and was always on edge that my waters would break when out and about. The consultant said that if they did i had to call the hospital and get on all fours with my bum in the air!

Thankfully they went at home in a rather spectacular fashion. Baby had no condition that had caused the extra fluid.

I had it in my first pregnancy and its didnt actually cause me any problems and my son is perfectly healthy now. I just had extra scans and they kept a good eye on baby

Hi @mummymummymummummum thanks for sharing, that is interesting to know. Strangely, I heard of TOF, one of the babies in nicu had this when dd1 was there. Is everything ok now (did surgery resolve the issues)? I will definitely ask about this on thurs and if it is possible to see if the baby is swallowing on a scan (not sure if this is possible or not!).

@Pinkflipflop85 that brings quite an image into my mind!! I hope that doesn’t happen - dd1 had to be evicted at 40+6 so hopefully these babies don’t arrive early.

@Lou2120 so glad to hear everything worked out ok.

@Robs20 Ah I see. I'm sorry you're dealing with this additional stress! It does seem like mild polyhydraminos tends to be nothing more often than not, so I've got my fingers crossed for you that that is the case!!

There is a more common TOF which is a heart condition

My eldest is doing pretty well. We've been fortunate that she hasn't required further surgery since her initial repair. Occasionally food gets stuck, but generally when she rushes and doesn't chew properly. She's seen annually by her surgeon, but no real concerns.