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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Amniocentesis??

3 replies

1greentea · 17/12/2019 09:47

I just wanted to hear of any stories from anyone who has had an amnio?
I'm 22 weeks and had one yesterday, mainly for cystic fibrosis as she has a small head and an echogenic bowel.
I don't really know how to feel at the moment. Just reaching out to anyone? Xxx

OP posts:
MockingJay27 · 17/12/2019 17:39

@1greentea I'm sorry I didn't have one myself. But my mum had one when she was expecting me. I was high risk for spina bifida I think but all turned out to be fine. I know it's hard but try to stay calm. I know my mum said it was a very difficult and upsetting time. But she need not have worried xx

Alderaan · 17/12/2019 22:20

I had an amnio at 18 + 3 due to a higher risk of Down's. I was absolutely terrified.

The procedure itself was quick and painless and the consultant was lovely and clearly very experienced.

A couple of days after the procedure, we received a phone call saying that there was no sign of Down's Syndrome. We were obviously very happy, and we also found out baby was a boy. It was also our wedding anniversary so really felt we had something to celebrate.

The following week, however, we received a phone call from the hospital saying that further analysis of the sample taken had shown a fault with one of the chromosomes. We were referred to the clinical genetics department in another city, and had to wait a few more days to learn any more.

At the appointment, we were told that they had found a partial deletion of one of the genes and that this could indicate a rare genetic condition called branchiorenalotto syndrome which can cause kidney failure, deafness, and facial deformities. The samples were then sent to Great Ormond Street for further testing. We were distraught, and I wasn't sure I wanted to continue the pregnancy if my child was to have a lifetime of suffering.

A week after that, I received another phone call from the hospital revealing, unbelievably, that detailed analysis of the sample from the amnio had shown that there was no fault at all. Our baby is genetocally healthy!

I'm 36+3 now, and it's been a rough ride. (other reasons too, but not relevant to the amnio). Given the choice again, I'm not sure I'd have had the amniocentesis after all. It caused a hell of a lot of unnecessary worry and pain only to be totally inaccurate with its findings.

Alderaan · 17/12/2019 22:21

Just reread your post - our baby has bowel issues too, but this wasn't picked up until much later.

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