Clexane until delivery?

[rainbow1982]

Hi all, I'm currently on lots of meds after 3 losses in 16 months (no children) I'm 9 weeks and on prednisolone, clexane, 5mg folic acid and twice daily progesterone pessaries. The plan is to stop it all at 12 weeks which petrifies me, in particular the clexane as I don't think there's any detrimental effects of continuing it and I really believe the losses are to do with my blood, despite tests coming back as normal.

Please could anyone tell me if the continued with clexane and had success? I asked my early loss nurse but she said it's not her decision and I should ask the doctor I had an appointment with Monday. This doctor was going to do another scan but I then got a phone call saying they're off sick and I have to just go to normal sonographer so I'm now super anxious as I don't know when I'll see the doctor and only have 2 weeks of clexane left.

If the nhs refuse it is there any way I can get it privately?

I started on your protocol and ended everything at 12 weeks except Clexane, which I stayed on until delivery. My specialists rationale was that they were concerned about the placenta (rightfully so, I was induced at 38 weeks and the placenta was starting to fail at that point). My baby was fine.
My pregnant was a high risk IVF pregnancy from the start though and I wouldn’t have continued if my doctor didn’t think I needed to - I certainly wouldn’t have tried to get it from somewhere else.

Hi
OP - sorry for your losses. I was diagnosed with APS and high UNK cells. I came off the steroids at 12 weeks but remain on clexane, progesterone and aspirin. My consultant will review progesterone at 24 weeks, the others I have been told 6 weeks post delivery. I think it varies depending on diagnosis and ongoing review of how your pregnancy is progressing. Another lady on here had an APS diagnosis and was taken off clexane at 12 weeks by her consultant but baby was regularly reviewed. Her daughter is now 4 months old.
I think discuss with your consultant there rationale. X

Thanks both, I'm finding it hard as we've not actually seen a doctor yet, just the early loss nurse who's lovely but cannot make a decision on clexane. I did convince her to let me stay on progesterone until 16 weeks. It frustrates me because it's their job which they can switch off to but this is our life and we have poured our heart and soul into holding onto this baby and if giving us some more injections puts our minds at rest I can't see why they wouldn't do it. If I come off it and lose this baby I will seriously lose my mind. Thanks again and congrats to you!!

I've had a similar med regime to you for 2 successful pregnancies. Both times I continued clexane to term. Prescribed by an NHS consultant intially then my GP carried it on. Good luck

I pushed my NHS consultant to keep my clexane going when they wanted to cancel it (I too got my bfp on a recurrent miscarriage protocol but through an ivf clinic) but they said it could potentially cause me to bleed heavily later on, and so replaced it with a higher dose of fragmin plus aspirin at 20 weeks and I have continued that throughout the pregnancy. The progesterone I got until 16 weeks.

With my successful pregnancy I stayed on clexane throughout and then had to continue for 3 months afterwards- by that point I was sooooo over the injections!

I was on prednisolone, 5mg folic acid and Clexane up to 12 weeks when I was weaned off the steroid and stopped Clexane completely. Like you I was terrified of it but discussed it with the consultant and she was adamant it could be stopped, and I was switched to 150mg aspirin. I am 24 weeks now and all going perfectly well :)

Mrs eg thanks that reassured me just in case they are adamant it's a no!! It just scares the hell out of u doesn't it as you know if you miscarry once it's stopped you'll blame that. I'm actually on 150mg of aspirin too so maybe I'll be ok. They might even say yes anyway, I'm just overthinking everything!! 🙄🙄I'm 9 weeks today and my losses were at 6 weeks, 9 weeks and 6 weeks so I just want the next few weeks to hurry the hell up!! 👍👍🤞🤞🤞🌈🌈🌈🌈