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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Original poster

Never-ending miscarriage

22 replies

Bettie2192 · 17/10/2019 15:33

I had a non viable pregnancy confirmed via scan 2 weeks ago and I started bleeding 2 weeks before that, so have been bleeding for 4 weeks in total. Every time I think it’s stopped it comes back. I’ve had some clots but not very big ones. Also some thick stringy blood like it’s mixed with CM. Can be pink, red or brown, heavy or light, there is literally no pattern at all. I’m just so fed up of bleeding, it’s making me depressed and I cry every day. I just want to move on but I feel like my body is so out of control and I can’t do anything about it. EPU aren’t bothered because it’s not ‘heavy’ and my last home preg test a week ago was negative. I’ve had no support from them at all, no offer of a follow up scan or anything. I read online about other people bleeding for a few days or maybe a week and just feel so frustrated and upset that mine is dragging on. It’s like nothing in my life can go right, I can’t even miscarry right! Some similar experience would be comforting right now.

OP posts:
Original poster
Bettie2192 · 17/10/2019 16:00

Also my lower back is really hurting again (I haven’t had this since the first couple of weeks of the pregnancy/loss) and my breasts are really sore, especially the nipples.

OP posts:
mouse1234567 · 17/10/2019 19:21

Hi OP. I feel for you. I had a similar experience after my first round of IVf. I bled very heavily for a week or so then it seemed to stop for a few days and then I had medium flow for over two weeks, then whole thing went on about a month and I was barely pregnant, my HCG never rose above 270 and it was never further along enough to be seen on a scan. I really hope your bleeding stops soon, as you say you just want to move on and it’s so hard both physically and mentally.

Currently pregnant after my second round of IVf and had a heavy bleed yesterday so think I’m back in this awful boat again. Good luck.

snowflakeeel · 17/10/2019 19:33

Sorry you're going thought this. I'm curious as to why they have let you bleed this long. I had a MMC at 12 weeks and had to have medical assisted miscarriage at 14 as nothing wanted to budge. My miscarriage experience lasted 2 weeks and was like a heavy period. The back pain passed once I expelled the tissue. I wonder whether you may have retained some stubborn tissue. They wanted me back for an internal scan after a few weeks to ensure all was back to normal. May I ask how far along you were?

lumpy76 · 17/10/2019 19:42

Just wanted to say I've had the same thing. Really just hang in there! I passed the sac at 8.5 weeks pregnant on the 29 th Aug. Bled, went to spotting 3.5 weeks later got what I though was a period...then have bled/spotted for another 3 weeks!! Neg pregnancy test. Went to EPU last Friday and they said don't worry - negative test so just wait. Give it another 8 weeks!!!! Anyway the last 2 days I've finally stopped spotting!! Finally!! In total over 7 weeks of bleeding/spotting. Now waiting to see if I did have a period or not...which would mean I'd be due one in less than a weeks time! Dr in EPU said it may have been a period or may not...but mainly just to give hormones time to settle. My GP (I went before just going to the EPU who have a walk-in service and treated me for one of my mmc) was utterly useless and said I must have retained products if I was still spotting...referred me for a scan...

Original poster
Bettie2192 · 17/10/2019 20:49

Hi all, thanks for your messages. I was only about 3-4 weeks along when I started bleeding so it’s a very early one. I just don’t understand why it’s so slow :( I have rang EPU twice to tell them I’m still bleeding and they just keep saying it’s normal. I’m desperate to try again and feel like I’m losing valuable time waiting around for bleeding to stop :( they haven’t suggested going for anymore scans, I feel like if I ring in another week they still won’t be bothered.

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Mum2b2020 · 17/10/2019 22:50

Hi @Bettie2192 mine in May lasted 26 days, mostly of heavy bleeding. It was the worst thing I've been through and felt so difficult not being able to discuss it, or anyone in my family understanding what I was going through. It finally finished after I passed the sac. It took a while for my body to reset so I waited until I had my first period before trying again, but 3 months later I was pregnant again and am now 15 weeks. My fingers are crossed for you. Wishing you all the best.

Mum2b2020 · 17/10/2019 22:54

I should say I was 8 weeks when I found out but it was a mmc so I was only 4-5 weeks along.

Original poster
Bettie2192 · 18/10/2019 08:21

@Mum2b2020 thanks for sharing your experience, I’m on day 29 now and actually haven’t seen anything yet this morning but I’ll check again later. Sometimes the bleeding doesn’t start until I’ve been up for an hour or so. So fed up of having to deal with it every single day. I’m not sure how I’ll know when everything has passed, I have inspected some ‘material’ but don’t really know what to expect.

OP posts:
Sherlock30 · 18/10/2019 11:25

Hi! Im relatively new so bare with me
Im so sorry you're going through this i really feel for you
I had the same i had a 12 week scan on Monday but the baby had died at 6 weeks. I have had on and off spotting but nothing heavy. Im due another scan next Thursday to see whats happening but i just want it to be over now.
How are you feeling now? I hope you're ok xxx

VisionQuest · 18/10/2019 12:30

You may have retained products of pregnancy. I don't want to alarm you but I had a very similar situation and I bled for almost a month on and off, sometimes heavy, sometimes light.

I came home from work one day feeling very strange and then started passing enormous clots (the size of my hand) and haemorrhaged.

They should be scanning you again to make sure there isn't anything left.

Original poster
Bettie2192 · 18/10/2019 12:37

@Sherlock30 so sorry for your loss :( I’m ok today I’m not actually bleeding but I wouldn’t be totally surprised if it came back. Hope yours will be over quickly, that’s good that they booked you in for another scan, I didn’t get anything :(

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Original poster
Bettie2192 · 18/10/2019 12:39

@VisionQuest it has crossed my mind that I might be retaining products but why are the actual professionals at the EPU not realising this is a possibility?? Just don’t understand why they aren’t bothered. I feel fine right now but the moment I feel unwell or it gets worse I am making a nuisance of myself to whoever will listen!

OP posts:
Original poster
Bettie2192 · 18/10/2019 21:06

Does anyone know why I might have really sore boobs? It’s only come on the past few days but they really hurt! My pregnancy tests are negative so there’s no hormones left in me. I only get sore boobs when I’m due my period but I can’t possibly be due on yet, I’ve only just stopped bleeding from miscarriage today!

OP posts:
VisionQuest · 19/10/2019 08:40

I think the problem is that they tend to get fixated on what's 'normal' rather than investigating the possibility that it could be something else.

That's exactly what happened with me. I was told it was normal on more than one occasion until it became apparent that it really wasn't normal. They only listened when they saw the size of the clots coming out of me.

I'm sorry to ask this but do you feel like you have actually passed the pregnancy? Or have you just been bleeding? How big are the clots?

Original poster
Bettie2192 · 19/10/2019 11:24

@VisionQuest not very big, maybe like the size of a 5p up to a 10p. I didn’t have clots for the first week and a half, then when they did come there was a lot of them even though they were small.
Today is my second day of no bleeding so I’m hoping it’s over.

OP posts:
VisionQuest · 19/10/2019 16:29

How far along were you?

GandTisgoodforme · 19/10/2019 16:46

Hi OP

I’d ask to get a scan, I was bleeding in a similar fashion to how you are describing and I had retained products - I had a negative pregnancy test the whole time whilst the bleeding occurred (13 weeks!) and I had to demand help from the hospital in the end as they kept fobbing me off..

rubyroot · 19/10/2019 16:56

Go back to your hospital and insist that you have a scan and/or hcg levels tested. I had a lot of bleeding but that was after a tfmr at 13.5 weeks. I bled on and off for almost 3 months. As yours was so early it does sound strange that you are still bleeding son mucb

Original poster
Bettie2192 · 19/10/2019 18:14

bleeding has stopped the last 2 days, shall I just wait and hope it’s over? I had a negative test last Friday

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GandTisgoodforme · 19/10/2019 18:28

@bettie2192
If you’re getting clots etc then i would insist on a scan. I had intermittent bleeding, stopped for a few days then clots again when I had retained tissue, and also a negative test. Hope you get some answers soon

rubyroot · 19/10/2019 19:43

You need to do what you feel is best, you could just go to Dr's and ask for hcg test to put your mind at rest. I had negative test but my hcg hadny gone back to normal

Original poster
Bettie2192 · 19/10/2019 19:54

I’m so confused :( if the bleeding comes back then I will ring EPU and insist on some help. Otherwise I’m gonna assume it’s finished.

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