Hi everyone.
My name is Becki.
On the 18th September I delivered my beautiful son via emergency c section.
He died 4 days later after fighting.
I'm still trying to process what happened to us with the syndrome.
Nothing about it was normal.
My poor baby got sick around week 21. The amniotic fluid was low and his growth had slowed down. None of which were out of the normal range or cause for concern.
I was a little bloated but that was all.
Me and my husband went on our baby moon to Naples where we honeymooned. I was so exhausted but travelling whilst Pregnant I figured this was normal.
About 2 days in I began to experience a pain I cannot describe. It would come in waves every 2-3 hours and last anywhere from 45minutes and one held me for 6 hours. We were in another country with no pain releif and a language barrier that needed something more than ordering food and coffee. I was constantly being sick and remember thinking id wet myself. That was the last of my fluid going.
My poor son was curled up in a ball holding on. Finally we went to a hospital after the pain waves were getting closer together and I was getting weaker. They immediately scanned the baby and told us it wasn't related and to go home and take paracetamol. So we did. I rode it out for another day or 2 calling the hospital back in England and told them to expect us.
We were admitted for gallstones.
The pain was still aggressive and my blood pressure was perfectly healthy and consistent. I was just exhausted and vomiting continuously. But we put it down to the pain. Morphine wouldn't budge it.
3 days later I was told my blood work was life threatening and was rushed down to a high dependency unit.
I was put on IV magnesium sulphate and given steroids for my son's lungs. I was 26 weeks and 3 days gestation.
They told us there and then our son had 0-3% chance of survival.
Every single day my levels would drop or elevate either end and I was dying. They prepped blood transfusions and researched more as they still didn't know what was killing me.
Still normal blood pressure.
Still no protein in my urine.
To look at I was just tired but sitting up and talking.
I held on. Rode it out for days when I was finally blue lighted over to a specialist unit who had a team waiting for me and for my son on NICU.
We held out for another day as once again my levels stabalised enough to consider a c section. Then they dropped and kept dropping and I was told I'd be delivering within the hour or we would lose both of us.
The c section went perfectly. And my son came out crying as loud as he could for a baby weighing 460grams.
I was still sick and recovering on a labor ward having hourly bloods and observations whilst my husband spent his hours between the 2 of us.
A day after I went to see him. He was so tiny. And off the ventilator. I had so much hope, love and pride for my tiny mighty son. I fell completely in love with this beautiful tiny person.
But he was sick and they kept telling us.
Day 3 was full of hope. He was responding to medicine and his kidney's had kicked in.
But we got called down to the NICU at 5am the next morning and we just knew.
They removed the ventilator he'd been put back on and we were told all there was left to do was cuddle him. Just be there for him .
So we did. He died in my arms.
I cannot find the research online. It's all we've done since leaving hospital a week ago and there is nothing.
None of my consultants knew what this was or had seen it presented like this before.
I just can't accept im alone in this.
Please.
Is there anyone else?
Please. Please reach out. I need to know this gets better. I need to know if happens again.
Has anyone suffered this awful syndrome and gone on to have healthy pregnancies and babies?
Thank you for reading. I hope no one shares this story but if you do then im sorry and im here.
Thank you.