Heart shaped uterus, preterm surveillance

[Bluebutterfly90]

Hi,
I'm currently 13+3 weeks pregnant and I have a heart-shaped uterus. I found this out 2 weeks before finding out I was pregnant, and was told that it was mild, I had an early scan at 6 weeks because of my 2 previous losses and my uterus shape. At that scan they told me that they couldn't see the heart shape and that it must be mild and unlikely to cause me problems.

Last week I had my 12 week scan and this time I was told it could clearly be seen and they gave me a referral and a leaflet for a preterm surveillance clinic. I just got my letter from the clinic and they have put my appointment down for when I will be 20 weeks pregnant (despite the leaflet I was given saying they like to monitor from 14-24 weeks).

I also suffer with anxiety, which I have mentioned at all my scans and midwife appointments. I'm really struggling with no-one explaining how bad my risk is, just giving me a leaflet with all the awful things that could happen on it and then saying "Ok see you in 7 weeks!" basically. The leaflet they gave me mentions I could need to have a stitch put in, and isn't it better that I get seen before 20 weeks?

I want to call someone about this but I don't know who to call and I don't want them to think I am making a fuss but now I'm walking around terrified that I could lose this pregnancy at any moment and I don't know what to do.

Hi, I have this as well and two of my three pregnancies were without any issues until delivery - when the babies were not in good positions so I ended up having c sections. I did lose one pregnancy, but have no idea if that was due to the uterus issue, it seems unlikely as it was before the 12 week mark. My bicornuate uterus was not diagnosed until after I had delivered the second time so I had no surveillance in any pregnancies. I just wanted to say, please don’t worry. In all likelihood all will be well. I have since read that even with this condition many women deliver naturally, so there’s nothing to say that won’t happen to you as well. I think both times mine just didn’t have the space to turn to get into good positions for delivering. I really hope everything goes smoothly for you

Thanks for the response, @ThomasinaandSeptimus.
It's really hard to get a grip on what my actual risk is, because a lot of the statistical information is very scary, and then I see a lot of women saying they didn't even find out about it until after their children were born.
I kind of wish I didn't know about it.
I have called my midwife to ring me back on the non-emergency line to ask her about my risk and also how to manage my anxiety.

That sounds like a good plan. Hopefully she can reassure you and give you some more information.