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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

did You feel supported by services during miscarriage?

13 replies

Confused38 · 01/04/2019 17:21

So I found out I was pregnant on 14th Feb. On 28th March I had a miscarriage. I have never been pregnant before so this was my first pregnancy. I have been feeling put off by services following miscarriage and thought this thread would be good for people to talk about their experiences of miscarriage/loss positive and negative.

I started with the spotting ( brown and small amounts ) on Saturday 16th March. It would come and go and I had no pains. I thought it had stopped but it came back the next day. I contacted my midwife who reassured me this was completely normal and was ‘implantation bleeding’ so I didn’t worry when it carried on. I still had it after 5 days so I phoned the midwifes again and again they reassured me it was normal and that if I still had it by Sunday to call them back. By Sunday morning I had a bit of fresh blood which quickly turned back to brown old blood. Feeling quite anxious by now as it had been going on for 8 days which I thought was a bit long. So I called the midwife and she agreed and said she would arrange for me to have a scan on Monday and would call me with the details of when to go.

Monday lunchtime we arrive for our scan. I knew something was wrong as it was taking a long time and I’m a nurse so looking at scans I could tell there was a sack but I couldn’t see anything in it. She checked with how far along I thought I was and I was meant to be 11weeks. She ended up having to do an internal scan. It showed a foetus the age of 6 weeks with no heartbeat. She explained my dates could be wrong.
She said she would ‘sit us in a quiet room’ whilst she called the dr as I would need to go speak to the dr. So we sat in this room... small impersonal and it was like ‘the bad news room’ we hated it. I wish they had just sat us back in the waiting room. She came back after 5 minutes and said the dr was expecting us over in the main hospital and said we could ‘use the back door’ instead of going through the waiting room. At the time I wasn’t focusing but on reflecting on this treatment it made me feel like we were ‘not to be seen’ ‘something wrong’ almost felt ‘dirty’. If they thought they were saving our feelings then they shouldn’t have bothered this just made me feel awful .... we would much prefer to have gone via the waiting room.

The Dr was very good and said they didn’t know at the moment if this was a miscarriage or wrong dates...... that I would come back in 7 days and they would re scan me.

No information was given of ‘what to do if’ . I knew what was happening and grieved straight away. My husband held onto hope our dates were wrong.

The bleeding continued turning more fresh bright blood with small clots. Then I started with back ache and cramping on Wednesday. I took paracetamol and had warm baths and used hot water bottle. This seemed to help. I had called the midwife back and left a message ... no one ever called me back.... I didn’t know whether to go to hospital or stay home or at what point should I go to hospital. I just felt alone and having to fend for myself in a situation I had never been in before. I began thinking..... ‘wow, what do other people do who are miscarrying’ is there any clear guidance. By Thursday early evening the pain was getting so bad I couldn’t stand and blood was pouring out of me.... we just didn’t know what to do and I could get in a car so my husband called an ambulance.

I was in hospital for 8 hours..... stayed in A and E majors on a machine and they gave me iv paracetomol after 2 hours....... now I didn’t have the entinox as the paramedics had taken theirs the pain was so bad I was shaking, feeling nauseas and gripping the trolly so hard..... I thought I was going to pass out. The female nurse didn’t even seem to know why I was there... she asked me what I was in for ..... I felt awful telling her. Shouldn’t she know? When could I have my pain relief? When would a dr see me. After being moved to majors from minors I had a nice nurse and he gave me the pain relief. He gave me a load of bedpans to pass into when I used the toilet as he said they needed to know how much blood I was using.... yet in minors they hadn’t informed me of this and I had just been going on normal toilet and flushing.

After passing the foetus whole around midnight and giving the contents to the nurse an emergency nurse consultant came to see me. She was quite stand offish and very curt in her manner. She made a mistake by telling me that these things can be managed at home. And when my husband asked a question she snapped ‘and who are you’ this whole attitude annoyed me. Before my husband even managed to answer I looked at her name badge and addressed her by her first name and explained this person was my husband and that I am someone who has a very high pain tolerance level and that my plan had been to manage this at home as I had been doing the last couple of days. However, I felt losing a lot of blood and not being able to stand and feeling dizzy warranted an emergency in my books. I think she realised how she had come across and immediately said that absolutely that was why there was there and that I had done the right thing. Now the foetus had been passed I was free to go. However, blood was still pouring from me ...it was on their trolley so I suggested it would be safer to wait for a while to see if the bleeding lessended and I had heard them mention a blood transfusion. She agreed and I stayed another 2 hours and arrived home 3am.

I had been told to phone the scan department the next day which I did and they agreed to see me. On re-scanning it showed everything had passed. I was told I might bleed for a while but if I had any bad smell or increase in bleed to phone.

I. Still bleeding and just lost 200 mls of blood so phoned a number I had been given... they said it was normal and not to worry.

Reflecting on the whole situation I don’t think there was much support for women who have miscarried. I’ve pretty much had to decide whether I should call a midwife, my gp, 111 or an ambulance with no clear guidance. This was exspecially nerve racking for never had been through this either. No services seem to connect up with me having to explain my situation each time I speak to someone. We recieved no psychological support from any professional services all I was told was go home, don’t walk, don’t work......
I’m hoping mine is an isolated experience because if it isn’t then this is very sad.

OP posts:
thecatsabsentcojones · 01/04/2019 17:39

I really feel for you. I had two very different experiences, we found out in my first pregnancy at 26 weeks that our baby was incompatible with life, and to spare her pain we opted for a termination. We felt incredibly supported by the medics during that time - everything was explained calmly and sensitively, second opinions were arranged speedily at the London hospital - although it was utterly traumatic we couldn't have had better care.

Fast forward a few years and I had a miscarriage at 14 weeks. It was pretty much as you experienced, not much was explained, I just assumed you passed the baby at home and went home but was in absolute agony. I was having reflexology at the time and it sounds woo but it was the only thing that helped - I went in barely able to stand with pain but it seemed to shift things on and soon after it passed. But i did feel very unsupported in comparison, to the point that I was absolutely phobic of becoming pregnant again and left in a state of anxiety for quite some time.

I get it slightly, miscarriage is really common and the hospitals are ridiculously overstretched, but I do think there should be a standard of how to explain what's happening and what the steps are. Miscarriage is very rarely talked about and I feel very strongly that this needs to change for a start. If I'd known what to expect things would have been easier.

I got my two lovely healthy kids in the end though, although I am still very fearful of pregnancy it was all worth it. Sorry to hear what happened to you, I know how awful it is.

Weathergirl1 · 01/04/2019 17:40

Hi OP, I can't talk from experience of this, but it does sound like you could have been much better supported throughout. The only thing I will say is that some people will have preferred to not have to go back into a waiting room of other pregnant women in the scan situation (I'd probably be in that group myself) - I guess it wouldn't be hard to give patients the choice though. Have you thought about complaining to PALS about your experience? If people don't report things like this then it won't change the way they do things.

Hoppinggreen · 01/04/2019 17:48

I’m sorry for your loss
My experience was awful. I was given the bad news at the EPAU and given a tissue and a leaflet and told to go home and let nature take its course. I then had to walk back through the Reception where ladies were either waiting for 20week scans or excitedly waving photos of their unborn baby.
We went home just for as long as it took to arrange a place at the closest Private Hospital where my care was wonderful. The NHS can be amazing but they badly let me down on that occasion.
15 years later and I am now on The Board at my local NHS Trust and one of the first thing she I did was to get the arrangements for the EPAU and the other maternity scan waiting rooms changed. It wasn’t a big thing but people were quite surprised when I suggested it as it hadn’t occurred to anyone it might be an issue. I suppose it wouldn’t unless you had experienced it.

Bambamber · 01/04/2019 18:21

I felt like I received a lot of support in my experience. When I had my first little bleed it was a Friday evening and I called 111 who referred me on to a+e. They did bloods and gave me painkillers and said it was a threatened miscarriage and gave me the option of being admitted to the ward or going home. I opted to go home as I wouldn't have had a scan over the weekend anyway, just been monitored.

I had a scan the Monday morning, and received the good news that my baby was alive and well with a healthy heartbeat, but no obvious cause for the bleed. I was advised that I wasn't out of the woods but things were fine at that moment in time.

I started bleeding again that Friday and phoned EPU who said normally they require a referral through A+E or GP but as I was seen earlier in the week with a threatened miscarriage, they would see me again. They booked me in for the following Wednesday for another scan and said if pain or bleeding got worse, phone the gynae ward, they would have my details and admit me if needed. The bleeding got steadily worse over the weekend and I passed my baby on the Sunday evening. My husband phoned the ward for me and explained what happened, they offered for us to come in but I refused. The ward then rang my mobile to just check with me personally that I was ok, offered me to come in again but I refused. They advised in that case monitor at home but if I soaked through more than 6 pads in 2 hours I was to go in immediately. I did soak through that much but still didn't go in as it started to slow.

On the Monday my husband phoned EPU to explain what happened and they pushed back my scan by a week so my body had time to pass everything, but again offered me to go in to be checked over but again I refused. He then phoned my midwife as well to cancel our booking in appointment. My midwife phoned my mobile later in the day to confirm the cancellation and wish me well. 2 days later I had a call from my GP to check how I was getting on and check if I needed to see anyone but I was fine.

Had my scan done, given the all clear and given a leaflet for the miscarriage association and how to access mental health support if needed.

I honestly felt I received a lot of help and support and it really helped me through a really dark time. I'm sorry that you had such a crap experience, it's hard enough as it is without feeling unsupported

Confused38 · 01/04/2019 18:48

@bambamber sounds like you was well supported. Really great getting follow up calls.

@hoppinggreen yeah I guess people needed to be given the choice. I think I would have felt more comforted in the waiting room. There was only 3 other people in there and none of them was heavily pregnant. I’m not sure if it would have made a difference if there were heavily pregnant people.

@Weathergirl1 I have thought about PALS. Maybe when I m feeling stronger I’ll contact them.

@thecatsabsentcojones I’m glad you had a good experience

OP posts:
MilicentBulstrode · 01/04/2019 19:03

Mine was different when it initially happened, staff in a&e were great.

Early pregnancy unit were good too but I agree after confirming there was no hope I was kind of left to manage by myself.

I think the time that stood out for me was with my pregnancy immediately after the mc, at my 12 week scan I cried when I saw the heart beat.

Not a full blubbering wreck but just a few grateful tears. The sonographer was horrible; snapped at me what is wrong??

I explained my previous experience of scans; no heart beat, mc etc. She snapped back I know I've read your notes.

I was a bit like Confused that's worse then I could accept ignorance, but you just excused yourself as heartless.

I know they probably do this a lot but I don't think people know how much a mc can affect you.

I agree there could be so much more done to support women who go through this.

I found a lot of support on forums (unfortunately hadn't discovered MN) spent days reading and looking for hope.

All the best OP and anyone else going through/experienced.

Babycakes1989 · 01/04/2019 19:10

I’m so so sorry for your loss and that you had a bad experience in regards to how it was dealt with/how you were treated. I have mixed feelings after having a missed miscarriage in July last year. After excitedly turning up at our 12 week scan we were told that our baby had stopped progressing at 8 weeks. The nurses were lovely that day and a lady took us into a room and told us to come back on the Monday to discuss our options and gave us a leaflet - she also told me she had had miscarriages and has also got 3 beautiful children. On the Monday we waited 4 hours to see a short and stressy doctor who asked what we were going to do despite not being explained what the options were. We waited so long as heavily pregnant women sat in the waiting room alongside us took priority as their baby’s were still alive and kicking away inside them - mine wasn’t. I can’t explain that knife in the heart situation but I can tell you it’s made me stronger. The following week I turned up for the D&C procedure and arrived 5 minutes early for my time slot and got told off by reception for entering the building as the doors were not meant to be open despite me explaining what I was there for before hand - the doors were not my fault and she was a rude cow!!! Luckily I was dealt with with respect and dignity by an absolute angel of a nurse who made my 4 hour hospital visit as kind as possible. Personally for me I’ve always wondered if something should be mentioned at that first 8/9 week booking appointment with midwife. It’s all sunshine and roses and you are made to believe nothing bad will happen. There’s hardly any info given about the what ifs but I do understand that could make a lot of women scared stiff so it’s a tough one. Fast toward 9 months and I’m 15 weeks pregnant again and all is well so far. After I had my 12 week scan I got taken into a room for bloods to be taken and it was the lady who we had to speak to after my bad news the year before. Me being an emotional mess said you probably don’t remember me but unfortunately I seen you last time for bad news now I’m here with good news and I’ll never forget your kind face and reassuring nature last time - you were lovely. It was bizarre. I wish you all the very best for the future OP , us women who have been through this horrible horrible event stick together and we feel exactly the same ❤️ Your never alone in how you feel Xx

Cookit · 01/04/2019 19:13

I think there are lots of issues but one is that different hospitals and trusts have different policies. So, I knew that I had had a MMC because of a private scan but I then went to GP to refer to EPU because I thought that was what you did. I didn’t realise initially that I could have just walked in, which would have saved a lot of time. Other hospitals however absolutely need a referral from either A&E or a GP. How are you supposed to know?
I found the process ok, I was scanned regularly as I did expectation management and scanned after I’d finally bled a lot (didn’t use hospital for that, it was just like a very heavy period for me luckily) but as there was still tissue I had to have surgical management after another month or so of expectation management. I felt informed of all the choices I could have made and I asked to wait as long as they’d be happy with. It ended up being months and months but this was my choice.
No one was over sentimental with me but for me I wanted that and I was happy with the medical language. This is probably something they struggle to get right as everyone probably wants a different approach. Surgery was an ok experience, considering.

Next one I lost earlier and naturally so I didn’t even talk to medical professionals. I just managed at home and confirmed a negative pregnancy test after.

The only real negative I would say was that I just felt a bit in the dark initially about who you’re supposed to talk to and how to initiate the process.

I’m glad the EPU waiting room was very separate waiting room. I spotted someone I knew in the main waiting room and that would have been awful.

Mistymeow · 01/04/2019 20:24

I’m so sorry for your loss and to read what you went through. I had an awful experience with my first mmc last year, the sonographer was cold and clinical and made me feel stupid because I didn’t know how I could be 9 weeks when there was no embryo. This year sadly I had a second mmc but was under the care of a different hospital. I knew what to expect this time but I had to call 111 at 4am because the pain was so bad (similar to your experience, shaking with pain). They advised me to go to a&e where I had the most amazing care. Was given morphine straight away, then examined by a gynae doctor who admitted me to the ward. I was seen by the consultant on the morning round, scanned, then told there was still a lot of blood. I had surgery that day (my choice). They even cancelled someone’s op so I could have mine, and I was fussed over by kind nurses who brightened me up. I was discharged and the whole thing was over in 15 hours. This is the care you should have had and I’m so sorry you didn’t. Please do send the feedback, they need to hear it so they can improve. I regret not complaining about that first sonographer, she made me feel awful. I hope you’re recovering well and please take care x

physicskate · 01/04/2019 21:07

I was told by my gp to 'have more miscarriages' while having a miscarriage. It was my second (both were very early on). I'd gone to see him because I was so dizzy I couldn't walk straight and he said that in order for them to run any tests, I needed 'more miscarriages.' Not what I was asking for. At all. What a fuck.

Needless to say, I would never again see him.

Ambs81 · 01/04/2019 21:56

Sorry for your loss OP, it’s a really tough process.
I had a miscarriage last November at 8weeks. It started at 11am and by 3pm I passed everything. I got to EPU who were just closing, I found them to be great on the whole but on return appointment a little bit stand offish/ cold.
To play devils advocate, I think how you are looking back on your experience is really subjective to your own pain and disappointment.
The same lady that scanned me after my miscarriage (who I described at the time as a cold bitch) scanned me for my early scan in my current pregnancy- she was lovely and remembered me from my miscarriage.
She said we were the first ‘happy scan’ she’d had all week (it was a Friday) and I really thought what a hard job that must be- delivering devasting news all day, scanning tummies not knowing what you’ll find or what to say. I know I couldn’t do it.
In regards to treatment, sadly miscarriage is just so so common- and pains and blood loss is just part of that process. Ordibarily blood loss is a medical emergency, but in this situation it isn’t - you don’t need to measure blood loss after a miscarriage, it’s different for everyone. I had contraction like pains after my mc which were awful but as I’ve previously given birth I could manage it knowing it was womb contracting - so everyone’s experience and response to these pains will be different.
I really support the nhs and having lived in a country with only private medical care we are really lucky to be able to access free health care in a crisis situation.

LittleChicken11 · 02/04/2019 00:55

I had a mmc in Dec and didn’t receive any support. We went for private scan at 7+4, but only measured 6wk so were advised to come back in 1 week. Which we did. Unfortunately there was no growth nor heartbeat. We were put into a side room while the sonographer tried to ring the epu on our behalf but got no answer. She left a voicemail asking EPU to ring me next day to offer management options. They didn’t. This was the Friday (21st) before Xmas. I tried to ring the EPU on the Saturday but only got answering machine. Finally on Monday they called me, but said as it was Xmas hols they couldn’t see me for an appt until the following week (3rd Jan), and advised I would probably miscarry naturally at home in the meantime. They said it would just be a heavy period.

I began to spot on Xmas Day and steadily bled heavier until 30th Dec when I was bleeding massively and passing clots the size of my hand. After 3 hrs of this we decided to go to A&E (after calling 111) as I was soaking through 4 pads an hour at least. Waited at A&E maybe 1 hr, then was and to EPU, waited another hour with waiting room of pregnant ladies. Was seen at 11.30pm by nurse who said Doc would be with us soon. Saw no-one until 1.30am when I went in search of midwives to ask could I just go home. Finally got scanned and some tissue removed then were able to go home around 3am. No aftercare or follow up appt.

Three weeks later I was still getting BFP so rang EPU so an appt was booked for following week to check for treatises products. However the day before the appt I got a BFN and the appt was cancelled.

Two days later I began to pass huge clots again and was soakin through 3 or 4 pads an hour. I rang the EPU to be advised it was either retained products, a new MC, or my period and I’d just have to wait it out!

I felt completely isolated and clueless during the whole process, and never got offered any management options.

Confused38 · 02/04/2019 11:28

Thank you everyone for your input. I think I have felt more comforted by this website which is great in a way as so many women supporting other women who have been through similar experiences. Thank you all for that.

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