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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Congenital Diaphragmatic hernia diagnosis (CDH)

2 replies

LianaS · 27/03/2019 07:09

Hello, I’m 17 weeks pregnant and found out at a gender scan that my baby has a diaphragmatic hernia! 😔 we’ve been to see a specialist in London and had the amniocentesis and are in the process of waiting to find out how serious the condition is- we don’t find out for another 4 weeks. Apparently We could be looking at a possible termination if the survival rate is too low or best case scenario baby will be rushed into surgery after delivery and then in hospital for up to 3 months in London. (We don’t live in London so will have to travel) all while managing a business, our 6 year old and dog. It’s all quite overwhelming. 😥.... the hardest thing right now is waiting and not knowing- everyone now knows I’m pregnant and I’ve just started to show- I walk my little one to school and back everyday and I have a constant flow of other mums asking me how I am, talking about how exciting it is I’m pregnant and all things baby related. I’m terrible at lying and want to tell people the situation so I don’t have to endure the pretence of everything being fine but at the same time I don’t because it’s al a bit much at the moment. There are 3 other mums in my daughters class all pregnant around the same time as me and that also makes it harder. I don’t want to tell them as I don’t want them to feel awkward around me. I would love to run away for 4 weeks until we know what’s going on but obviously that’s not an option! 🙄 🙈..... I’ve told two mums that I’m closer too which has helped but I’m not ready to tell everyone. My question is, what is the best way to handle this?
Thank you xx

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Are your children’s vaccines up to date?
DancingUnicorn1 · 27/03/2019 12:37

Hi,
I'm so sorry to hear you're in such a situation. Unfortunately I don't think I can be of much help but didn't want to read and run

I don't think there's any right or wrong ways for you to handle the situation as it's down to what feels right for you.
Personally I think I'd want to keep it between me and my closest friends/family as I can't stand pity glances or such like and I'd probably avoid other people a little. Blushpretty sure that's not the ideal way to deal with it but as I said it's wholly personal to you and how you feel.

I hope you receive good news in the coming weeks.

LianaS · 27/03/2019 14:35

Thank you for replying anyway, I was starting to feel more alone with it than I do already as it’s such a rare diagnosis it seems -so You’ve made me feel better X

I know that’s what I was thinking, it’s just hard to avoid people where I am as I’m in a village and while everyone is so lovely I’m Just having a mental war with myself on how to be. Maybe I’ll just try to keep a low profile for the next 4 weeks until I know what the situation is- at least then I’ll know where I stand myself and not be so confused! 🙈

Thanks again for replying X

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