Hello, so pleased to find other people who have experienced this, the pain I've been in throughout pregnancy has been really isolating and all I kept getting from NHS was there is nothing physiological wrong and it was just 'normal' breast pain... sort of implying it was in my head?!? But there was nothing normal about the pain! I've had a hot water bottle on my breast for months! Going to work, in zoom meetings, taking to shops. In screaming, crying pain most days, 5 spasms during day and awake 3/4 times a night, each lasting 10-30 mins. When at work or on public transport it was humiliating just hiding under my coat crying. It made life really limited, not wanting to go out.
It took a lot of research to find out what it is and had to be quite pushy. I had a cyst a few years ago which may have interacted with it. Breast clinic didn't want to know, GP had no clue, Midwife referred me to infant feeding team (3 times) who didn't pick up the referral, consultant didn't know/didn't really listen just prescribed co-dydramol which was often too slow to kick in. Ended up signed off as couldn't focus or reliably work.
It was only after I got an email address for a midwife friend of my antenatal class teacher and sent them all my research and symptoms that finally the consultant prescribed nifedepine. It has been an absolute life transformation.
Just demand it! It's safe and has ended months of really not enjoying pregnancy. Feels liberating to actually start thinking about baby and me now not being in pain so much.
Other things that helped - a vigorous massage of the upper chest with almond oil before bed, stable temperatures, tried magnesium oil but can't tell if that helped. Flask of water and hot flannel to warm up in the loos if out and about.
Anyway just sharing in case useful.
This website also great: ibconline.ca/information-sheets/vasospasm/
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