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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

EPU run by psychopaths?

13 replies

hazeesh12 · 13/12/2018 18:45

Hi everyone!

I'm totally new but so angry right now I needed to find out if someone else has had this experience.

I'm finally pregnant (5 weeks) after three years, thanks to the amazing assisted conception unit at Guys hospital.

On Sunday I had a bit of a bleed, freaked out and went to the early pregnancy unit (EPU) at St Thomas's, which is linked to Guys.

Having waited for about five hours (during which time the bleed had stopped), I had a scan in which the sonographer a) tried to shove the probe up my urethra to the point where I had to guide it in myself, then b) told me she thought it was ectopic (I have sealed fallopian tubes - go figure).

They did my bloods and the next day, called me to say my progesterone was far too low, at 36, (she said it should be 60) and my HCG level was far too low, at 285 (it should be 1,000, she said). 'Is it a non-viable pregnancy?' I asked. 'Well...' she replied.

Obviously I freaked out and called the IVF clinic, where a nurse laughed at me when I asked for a follow-up with my consultant. '285 is fine!' she said. 'All we care about is that it's rising - come in for a blood test tomorrow. And forget the progesterone.'

In the end, the HCG went up to 641 in 48 hours, and we did another scan where we saw something that looked like a little blob in my lining (not my tube). Then we did another test today, about 46.5 hours later, and it had risen to 1,074. 'It's fine,' the doctor told me. 'I wouldn't be worried just because it hasn't doubled.'

This evening I got a call from a nurse at St Thomas's - because the two are linked, they get the results through as well. She told me that because it hadn't doubled, 'it sounds like a failing pregnancy'. I had a bit of a go at her for saying things like that to people who are in very vulnerable positions. Maybe it is a failing pregnancy - but right now, we don't know, surely. Lots of people's HCG levels don't totally double in 48 hours and it's fine. In the meantime, my anxiety levels are sky high, which isn't going to help the pregnancy.

Anyone else had this kind of experience with St Thomas's, or any other EPU? More than anything, I'm just incredibly angry that they think it's ok to tell people who have been through three years of trauma that their pregnancy is failing when they aren't absolutely certain.

Please tell me I'm not alone!

OP posts:
GailLondon · 13/12/2018 18:53

Wow - that is very tactless of them! Your numbers sound great and increasing nicely, I certainly wouldn’t describe it as a ‘failing’ pregnancy unless the numbers were going down, and even then I wouldn’t give up hope immediately.

Loopytiles · 13/12/2018 18:57

They sound tactless, but checks in early pregnancy are not an exact science, they gave you their opinion.

Anxiety doesn’t cause miscarriage.

Loopytiles · 13/12/2018 18:58

Realise how stressful it is, have been at EPUs a lot, hearing good news and bad.

Hope your pregnancy is uneventful!

Courtneybrown · 13/12/2018 19:03

Your numbers sound very similar to my third pregnancy he is now a happy thriving one year old boy with his temper tantrums lol

hazeesh12 · 13/12/2018 19:04

@Gail - thank you for being so reassuring!

@Loopytiles - I get that they were giving me their opinion, but it was delivered very bluntly and felt like they were just dismissing a pregnancy I had already been told was viable. I don't know if they understand the anxiety IVF patients go through just to get to the point where we get a BFP. I thought it would be ok once I got my BFP! Seems like that's not the case!

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Patchworksack · 13/12/2018 19:11

Congratulations on your BFP! I've had more than my fair share of EPU visits and I think a lot of the staff have just lost any empathy with what someone worried about their pregnancy is feeling. It must be a tough place to work with a lot of people getting bad news, perhaps they are protecting themselves emotionally by being cold. I hope everything works out for you. Flowers

StargazyDrifter · 13/12/2018 19:19

Sorry to hear, they sound thoughtless and insensitive.

I'm with another London hospital, and non IVF, but have a history of losses so know the EPU well. If anything mine are a bit too reluctant to label something as failing/ectopic (had both) until they are 110% sure. Yes that means a period of uncertainty, but it is how it should be, because all of this isn't a precise science and emotions run very high. Glad you've got some sensible people IVF-side.

I'm 10 weeks now but at 4 weeks thought I was having another ectopic for various reasons. We couldn't see anything on the scan at 4+3, but could at 4+5 - a tiny dark blob. This then grew and developed by 7 weeks into a slight less tiny baby-shaped blob with a heartbeat. At 10 weeks it has dot-like fingers and toes and all is on track. Crucially, at 4+3 EPU were very firm with me that the results are inconclusive and until there's a trend/something has been seen in the wrong place, we assume all is well.

Everything crossed for you and your bean, OP!

Russell19 · 13/12/2018 21:47

My friend went to EPU after a car crash at 10 weeks. She was told that there was nothing they could do and if she bleeds it probably means she's lost the baby.....I was shocked. Why are these medical professionals so blunt?! Surely they should at least try to reassure but be honest at the same time x

PBobs · 13/12/2018 22:06

They do sound tactless/blunt but to be honest I prefer that to fluff. Although I know it's not for everyone. My stand in obgyn told me at my first appointment (4+4) to "remember that at this point you've a 30% chance of miscarriage". It was a bit of a shock but I appreciated knowing the facts and being able to prepare for either outcome. My regular obgyn is back and she's amazing but also pretty to the point.

I hope you have good news going forward. It sounds like you've been on a tough journey so far. Good luck!

StargazyDrifter · 13/12/2018 23:10

I think the degree of bluntness is a tricky thing to judge and unvarnished candour in these circumstances should not be the default position. Everyone is different, including with each pregnancy. While with my first one I was all 'just tell me now, is it not good?', three losses later in the same year, I really appreciated the default careful handling because I am far less resilient. Less risk of damage starting from a position of care than the other way around.

NotNowAudrey · 15/12/2018 08:11

How are things now OP? Xx

Bunnybigears · 15/12/2018 08:18

Im sorry that you were dealt with that way it sounds awful. I visited EPU in the early weeks of both my pregnancies and the nurses there were amazing.

hazeesh12 · 15/12/2018 09:01

Hey everyone, thanks for your very generous and sympathetic posts. I’ve just decided not to be anxious until my scan (6 weeks) on Tuesday. Am very, very nervous about the scan itself but have had lots of symptoms which have made me feel a little better. Think it doesn’t help that I have a strong infertility community of people who have been very unlucky, so my mind keeps straying to them.

@bigbunnyears I’m glad they were nice to you!

X

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