At our 20 week scan, the sonographer picked up a tumour at the end of our baby's spine, immediately diagnosed as a Sacrococcygeal Teratoma (SCT) by the doctors. They gave a 50/50 probablity of survival at the time because SCTs are extremely unpredictable. Following surgery soon after birth, our little baby is now a healthy happy energetic 19 month old toddler. She actually started crawling very early on, about 6 months old. The only possible side effect she has now is constipation, but this may just be due to her age and not an outcome of the tumour or surgery. It is also managed well with Lactulose. We won't know more about her weeing side of things until potty training. She will always have a scar from her surgery, but in the grand scheme of things, it is the best outcome we could have hoped for since the day we received the schocking news.
I am very sorry to anyone having to go through such a diagnosis, and particularly to those where the outcome was different. As it is so rare, I would be interested to hear from other mothers of surviving SCT babies (especially about any outcomes they have had), and of course happy to answer any quesitons for those going through it. I can only answer based on my own experience, because every SCT is different. I should add though, that if you are going through it, forums and google are perhaps not the place to get your information, I preferred academic papers.