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Stem cells - banking your child's cord blood and tissue

16 replies

DanCares · 15/01/2018 15:20

Hello, I jumped on someone else's thread who was asking about storing their child's stem cells. But thought I would create a new thread to answer any questions and post a little information.

My field is stem cells research and stem cell banking.

Lots of people aren't sure if you can delay the cord clamping and collect CB&T.
You can but you can only delay the cord clamping for a minute or so, after this the amount of cord blood might not be enough for a viable sample.

I would always say to follow your own birth plan.

I see such huge benefit from banking cord blood and tissue. I am not lucky enough to have had children as of yet but when I do I will absolutely bank the cord blood and tissue.

I think the place where most people get a little lost with banking cord blood & tissue; is the difference between donating the CB&T to a trust or charity and banking it privately. It does get a little complicated.

If donate your CB&T to a trust or charity (say a blood cancer charity), a small sample gets taken to be researched on and the vast majority is banked to be used by someone else that has a (HLA or human leukocyte antigen) match to your child's stem cells. Obviously you then don't have access to the stem cells anymore but if your child needed treatment for blood cancer and if they are available then you could potentially use them.

If you bank your stem cells privately, at some banks a tiny portion is used for research but 99.9% gets stored for your child, their siblings and even you and your partner. These are then available for you anytime you need.
The amount of cord blood usually collected could be used for one treatment, possibly two, dependant on the size. Cord blood contains an abundance of HSC's or haematopoietic stem cells which can become red and white blood cells and platelets and then used to treat blood diseases and conditions.
Cord tissue on the other hand, I/we see as the future. It can be cultured up (grown) to provide lots more than 1 or 2 treatments and contains a lot more MSC's or mesenchymal stem cells, which can become bone, tissue, muscle, fat, cartilage.
So it is really important if you bank your child's stem cells to bank the cord blood and tissue (some companies only bank cord blood).

There is more to go into but if you do want to bank your stem cells there are 1 or 2 companies in the UK that I would avoid, for a number of reasons. I'm happy to let anyone know who they are privately.

I hope that covers most things, happy to answer any other questions when I get a chance.

Hope this helps.

Dan

OP posts:
Are your children’s vaccines up to date?
Potteryprincess30 · 15/01/2018 17:16

@DanCares it was me that started the thread and your wealth of information is very much appreciated. I was very excited when I saw this post as I asked about Men B shot a few weeks ago for a 7 year old, and although got some really kind and encouraging replies (as well as a truly heartbreaking account) I did not get any information from the actual medical community so to speak.

Feel free to private message me as I definitely want to donate the stem cells, cord, anything I can. I can't unfortunately spend any money on it but I do really want to donate. Especially as I read it can help children with blood cancer, I would feel so bad about all these things just getting incinerated and not used for the greater good.

I just need to know how to arrange it so PM me when you can

All the best

DanCares · 16/01/2018 16:28

Hi Pp30, I have PM'd you.

Hope that helps.

Dan

OP posts:
Windowgazer123 · 17/01/2018 00:32

Hi dan. It's early days for us- just 13 weeks - but this is all very interesting and informative. Thank you.
I will probably get in touch in the next 2 months when I've had time to look into it. Hope that's ok.

KimmySchmidt1 · 17/01/2018 04:32

Dan please can you explain to me how it would help a person to have stores their own stem cells if the genetic condition they suffer from related to their own genes, which are the same ones in the stem cells?

What is the point of having your own instead of someone else’s???

KimmySchmidt1 · 17/01/2018 04:34

Also please can you confirm what happens to storage and the costs of storage if the company that you paid to do it goes under and no longer exists? Who pays for the storage? How do they guarantee the samples will be stored properly after they go into liquidation?

Potteryprincess30 · 17/01/2018 09:44

Just google it. That's the only information he private messaged me. There's another thread on this I stared where people are discussing it.

Potteryprincess30 · 17/01/2018 09:45

@KimmySchmidt1 though if you message him a direct question i'm sure he'l help Smile. Going back to the other thread though now as i'm still non the wiser

DanCares · 17/01/2018 13:08

Hi WindowGazer, no problem at all.

Hi KimmySchmidt,

First of all to use someone else's stem cells you would need to be a HLA (human leukocyte antigen) match, which is quite rare. There is a minimum of a 1 in 4 chance that you'd be a match to your siblings, 1 in 200 you'd be a match to a parent and a 1 in 1,000,000 you'd with match someone unrelated.

If you are talking about collecting stem cells from your own bone marrow to treat a new or current condition then it would depend on your pre existing condition and the condition you wanted to treat. Do you have any more information or is this a hypothetical?

In relation to storage, it is paid for by the person storing the cells, the price is very similar across the board. It is about £100 a year (£50 for cord blood and £50 for tissue). I can't speak for all CB&T banks but certainly the ones I work with have insurances policy where if the company went into liquidation the samples would be safely transferred to 1 of 2 other stem cell storage facilities.

OP posts:
Berndfriede · 22/03/2018 16:29

Can someone tell me please if stem cells in cord blood and tissue can be harvested if there is a c section? And what happens if my hospital refuses to cooperate?

Bumblealong1 · 28/05/2018 06:55

Hi @dancares.
Are you still around? I have a few questions please.

giorgia119 · 11/09/2018 15:54

Hi Dan, I just MP you :)

IngridF23 · 26/11/2018 12:58

Could you please advise the name of the other thread, as I cannot find it. thank you

IvieDee · 13/06/2021 15:46

Hey Dan, following from an oldish post on cord blood and tissue banking. Thanks a lot for your informative post; you mentioned there are a few labs to avoid; so you mind letting me know which ones? I saw HTA issued a few on their website so hope they’re ok? Thanks a lot

ButterCookies2021 · 19/06/2021 21:29

Hi Dan, I just private message you. Thank you !

Rubyrecka · 20/06/2021 08:32

Hello I can't seem to PM you! Would you mind PMing me please and advising the companies who you'd avoid and who you would recommend? Thanks

FulhamMum1710 · 23/10/2022 22:18

Hi Dan,
i know you posted a while back but I am looking to store my cord tissue and blood when I give birth in February and wanted to know which establishments to avoid . I’m going to be giving birth at Chelsea and Westminster so any and all recommendations are welcomed ! Many thanks in advance !!

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