Are your children’s vaccines up to date?

Set a reminder

Please or to access all these features

Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

'Just one of those things' - reality check needed....

21 replies

BeastieMcB · 14/09/2017 16:02

I'd like help ascertaining whether I'm A) an awkward patient that every dr/midwife dreads or B) I'm being let down by the system (or C - both!).

To me, this isn't 'normal' for pregnancy:

Regular waking at 1am/2am - normal, ok (had insomnia with DS1) - pounding heart (it's the heart that wakes me up), followed by a shortness of breath and a burst of adrenaline, so I feel I need to stand up and move (I know - sounds odd). Loss of blood pressure after a few minutes - legs go cold and I need to lie down. Vomiting. Don't sleep for the rest of the night because heart continues to pound.

I could handle those episodes. But the next day I feel like I've got the most incredible hangover: it's not just tiredness (that I can handle), its brain fog/confusion and a feeling like my body is on fire from the inside. I cannot work, or do much apart from sit on a sofa on days like that.

These episodes have been happening throughout the pregnancy. First I thought it was just first trimester weirdness, but then it got worse - not better. They were happening 5/7 days, now a bit less (2 or 3), but they're starting to happen during the day too (the weird loss of blood pressure/vomming episodes and feeling about to faint).

I have been going for successive blood tests. I was anaemic (according to GP, midwife said usual for pregnancy - erm, does that really make it ok then) - but iron tablets prescribed by GP have got my levels back up. The GP can see signs of significant inflammation in the body (and I've had other weird bloods results re size of cells) so has referred me to haemotology - again, midwife says that it's normal for pregnancy so nothing's wrong. One time, the lab results returned with a host of !!!!!! alert marks on it - just got told it was all normal for pregnancy (what's the point in doing the tests then)...

Every time I see the midwife I feel like I'm expected to get on with something that - to be honest, if I wasn't in a freelance situation where I control my own work load - would have pretty much got me fired by now. Just because I don't tick the iron box (or now don't) or any other boxes (I also have low thyroid function, but she says within hospital range, but not according to the British Thyroid UK information OR nice guidelines) As it is I am badly behind on my work load and facing financial loss because of it.

This is really impacting on my life and health and I am not going to be able to cope with this and a newborn at the same time. I just want some support and what I hear when I get told it's just 'one of those things' is basically - 'we don't want to do anything apart from the most basic of investigations.' GP is being understanding but he says there are limits to what he can do (i.e. he can't get me an urgent appointment with anyone) and I need to insist on it from the midwives.

Finally, I snapped. After being told that - once again - that I was absolutely fine, I've insisted on a referral to obstetric consultant. I fear that I was too abrupt and pushy - she certainly doesn't like me now, but I didn't know what else to do. I just feel so fed up.

My gut instinct is that it's not directly pregnancy related. I feel that this is a sulfite allergy that I've developed (as elimination diet has certainly helped reduce the instances and I feel like my body is having an immune response to something) but midwife and GP look at me as if I'm completely and utterly nuts. And I'm not looking forward to being told that I'm fine by the consultant, but at least it's a start.

Honestly, I can put up with a good deal health wise and battle through. I wouldn't be this concerned about it if it wasn't pretty horrible to go through. AIBU?

OP posts:
Are your children’s vaccines up to date?
thingymaboob · 14/09/2017 16:36

Have you been referred to an obstetrician / maternal medicine?

BeastieMcB · 14/09/2017 16:48

As of today, I am being referred to what she termed an 'obstetric consultant' - which I assume is the same thing...I very firmly and very grumpily insisted on it, despite being told that it wasn't relevant for me. I felt bad for being so abrupt with the midwife. I felt that there wasn't any other way of getting the point across.

OP posts:
museumum · 14/09/2017 16:52

Have you been tested for gestational diabetes? I recognise some of that description from when I had problems managing my blood sugar levels.

Nan0second · 14/09/2017 16:55

I think you need a 24 hour tape of your heart to make sure that its rhythm is normal whilst you are having these episodes +/- an echo.
from a consultant obstetrician.
(If both of those are normal, then I would be saying it's a weird pregnancy thing)

BeastieMcB · 14/09/2017 16:57

Thanks museumum - that's interesting....
They didn't find any protein in my urine so I never did the Big GD test. So I guess I'm not GD.....? Maybe something to raise with the consultant though.....

OP posts:
Freezingwinter · 14/09/2017 17:00

The size/shape of your cells - any further info on this?

What's your blood pressure? Have you ever had a finger prick blood test done? An Ecg?

BeastieMcB · 14/09/2017 17:02

Oh hello Nan0 - going in for an ECG in walk in, but I don't think there's anything wrong with my heart (but how would I know right.... ) Feels like the heart is a result of something happening rather than cause - so fully expect to find nothing from it but def worth doing...

Oh no PLEASE don't tell me its just a weird pregnancy thing....because I'm pretty convinced that this is going to keep happening and I don't want to be left feeling like this AND with a newborn. So desperate to get to the bottom of it before the arrival....

Sad
OP posts:
BeastieMcB · 14/09/2017 17:04

Haven't got the results in front of me but I have enlarged cells and low RBC (but not low iron now).

Blood pressure historically on the low side (my whole life) without any problems before, or in last pregnancy. I obviously don't know what happens to my blood pressure exactly during these episodes (as it's not being measured) but I guess it's going lower with the legs suddenly cold, feeling like I'm about the black out feeling....

OP posts:
Freezingwinter · 14/09/2017 17:13

Sorry but this doesn't sound normal. I'm no expert but I am a nurse! Any abnormal blood results need further investigation. As a minimum I'd expect further blood tests, a blood film, urine test, Ecg, diabetes screening, finger prick blood glucose. Your midwife sounds half soaked at best! When do you see your consultant?

bbpp · 14/09/2017 17:13

Are you on any medication? I had a reaction sort of similar to that with codeine

BeastieMcB · 14/09/2017 19:46

@Freezing I see them in about a month - I'll be pretty much on my due date by then but at least it's something. I guess there's nothing sooner. My GP has suggested that the next time it happens that I just go and sit in A&E, which would lead to cardio investigations to rule out the most immediate things, but this doesn't seem ideal (to be fair, it wasn't like he was recommending it) and I have charge of my son so that's difficult to effect. But if it continues to get more severe I think I might have to....

bbpp again, interesting - I actually had a similar reaction to codeine pre pregnancy (and don't take it for that reason) but I'd forgotten about that....I wonder if that's something more to do with the fillers than the drug iykwim.

OP posts:
WineAndTiramisu · 14/09/2017 20:02

A good option would be to buy a cheap BP monitor, they usually also do your heart rate.

Use it during these episodes, as it will give the consultant a lot of information regarding what is happening during them.

NotAUserNumberSoNotATroll · 14/09/2017 20:06

Are you sleeping on your back or your left side?

If you're on your back baby and uterus weight can slow blood flow returning up to your heart which would drop your blood pressure and could make you feel like this

AccrualIntentions · 14/09/2017 20:09

Thanks museumum - that's interesting....
They didn't find any protein in my urine so I never did the Big GD test. So I guess I'm not GD.....? Maybe something to raise with the consultant though.....

Protein in your urine (or lack of) wouldn't be anything to do with GD. I do think blood sugar is worth exploring, some of the symptoms you describe sound a bit like a hypo.

Nakedavenger74 · 14/09/2017 20:12

What are you eating for dinner or late at night? I developed a horrendous allergy of MSG that is present in Chinese and Thai food, cheese, crisps etc. Gives me those exact symptoms especially the pounding heart.

Mintykat · 14/09/2017 20:21

I had some similar heart pounding episodes during my pregnancy and it was due to my thyroid was struggling a bit (has since gone a bit haywire 1 year postpartum). I'd ask if they've tested your TSH levels?

sourpatchkid · 14/09/2017 20:58

I had this. I also had GD and have low blood pressure. I didn't find out what it was (to be honest I assumed it was just one of those pregnancy things)

If it helps at all - if went away immediately as DS was born. I got the best night sleep on my life that night!

ieatchocolate · 14/09/2017 21:35

I had gestational heart problems. If your heart is pounding - whatever the cause - then having a 24h monitor doesn't sound like a bad start.

Mine was diagnosed with an ecg. Showed up straight away.

BeastieMcB · 14/09/2017 22:28

sorry AccrualIntentions getting mixed up - never found sugar in my urine should have said. So I never got tested. I will ask about blood sugar though - sounds like its similar as there seems to be a few people out there saying the same thing....sourpatchkid - was it your first? I had rough patches with DS but absolutely nothing in this league. And the fact that I can be fine on some days suggests to me that it's not pregnancy if that makes sense.....

Mintykat - I have borderline hypothyroid results from TSH and T4 and I have read that they're actually way over (TSH) and under (T4) what they should be in pregnancy according to info on the British Thryoid website and NICE guidelines. In general, I would say I have similar symptoms to hypothyroidism - but I don't know if these 'episodes' would also fit with that diagnosis. GP doesn't know. Midwife says thyroid within the range her hospital sets for pregnancy so there isn't a problem.

Nakedavenger74 - yes, I think it's food, sulfites and soldium carbonate and other preservatives (Potassium Sorbate) - or at least it's part of the issue (has happened a few times without). Cutting out these has helped reduce episodes, but not gone completely - although some people have said that these things are often hidden in products (i.e. lining packaging etc) so it's difficult to tell if you're completely avoiding. But midwife and Dr both think I'm nuts when I say this....Please tell me that you are now better after giving birth. If it is food, I cannot live like this - it's severely restricting what I can actually eat (not the amounts I should add!)
But it does feel like an autoimmune response - if that makes any sense at all. A bit like when your body responds to a bee sting. Something is going crazy....

OP posts:
Mintykat · 14/09/2017 23:07

From memory my TSH was 4.9 during pregnancy when I was having the palpitations although from more recent testing has been fluctuating between 5.0 and 10 - it fluctuates with days giving me hypo and hyper symptoms as I have hashimotos and my thyroid seems to be burning out.
I've had to refer to NICE guidelines with a few GPs and its been quite frustrating. I really wished I'd pushed for more answers during pregnancy - you would definitely be within reason to ask for an endocrinology referral if your results aren't within the guidelines.

sourpatchkid · 15/09/2017 08:39

Yep Was my 1st preg. It was awful so if you can treat it I definitely would

New posts on this thread. Refresh page