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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Hypermobility and pregnancy

7 replies

Sarahsarah3192 · 12/09/2017 20:09

Hi. I'm hoping someone could tell me if they have been in the same boat. Myself and my partner are trying to get pregnant, however I have hypermobility syndrome. My knees and hips dislocate a few times a week. When I was diagnosed my consultant told me I could go into premature labour at 6 months, as my body won't be strong enough to carry for 9 months. And even to get to this stage he said we may miscarry a few times :(. Has anyone else had this said to them? I would appreciate any advise
Thank you

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AnUtterIdiot · 12/09/2017 20:10

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YouCantArgueWithStupid · 12/09/2017 20:32

Hi op. I have EDS/hypermobility and like you hips and ribs sublax or dislocate often. I

YouCantArgueWithStupid · 12/09/2017 20:34

Sorry posted too early. My DD (first pregnancy) was born at 41 weeks, long but easy labour. And my second pregnancy (now 15 weeks) is going fine. I've never had any miscarriages. Only complication is increased dislocations due to the extra relaxin hormone whilst pregnant. Dr Kazkaz said the same to me but all has been good. Good luck!

kathrynelizabeth3005 · 12/09/2017 20:49

Hi there Sarah! I have EDS hypermobility type and was able to carry my baby to 41 weeks! I had, like you, been told by my rheumatologist when I was diagnosed that often there's no trouble getting pregnant but it can be a little tricky going full term and there may be complications. This honestly terrified me so I understand how you are feeling right now.

It sounds absolutely crazy but a huge amount of my symptoms cleared up throughout pregnancy and I had next to no joint pain for almost the whole time. I was amazed and I usually pop all kinds of painkillers (which I couldn't anyway because of being pregnant lol) and often have physio to help. I barely needed physio throughout the 9 months and was off codeine, naproxen and tramadol completely! Unfortunately, I did suffer with anaemia and was quite ill around the 30 week mark with this but that was just bad luck and could/would have happened despite my hypermobility! I often wonder if I was maybe just too ill with other things to notice my hypermobility symptoms but either way, they didn't trouble me at all! However, unfortunately my joint pain and EDS symptoms came back with a vengeance once my son had been born. I think it's something to do with the hormones raging around, at least that's what my GP said to me! And because of this, I ended up back on a lot of strong painkillers soon after the birth and wasn't able to breast feed as long as I had hoped.

What is very likely is that if you are in the UK and under NHS care you will be consultant led during your pregnancy so that you have extra appointments at the hospital as well as seeing the midwife at your doctors surgery. They will make sure baby is checked so he/she is growing properly, and that your cervix isn't becoming "incompetent" which could bring on early labour. Even if that is the case, you can often have a cervical stitch put in to help you stay pregnant. They also keep an eye on you and talk a lot about the birth and plans for it so that you don't end up with any injuries. What I mean by that is that it was all over my notes in big writing to look after my joints during labour- my hips especially as they are often my worst, and like you prone to dislocation.

What I can tell you is that straight from the outset of my pregnancy, I was extremely well looked after in terms of care, and every medical person I came into contact with was very understanding.

What ultimately matters though is your body and unfortunately, you won't know how your pregnancy will progress until you're pregnant. I really hope that like me you have no trouble getting and staying pregnant!

Sorry I have waffled on, this is getting super long! If you have any particular questions, please reply or private message me and I'll be happy to answer as best I can!

Sarahsarah3192 · 12/09/2017 21:17

Thank you everyone for their replies! Very much appreciated x

OP posts:
stealthbanana · 12/09/2017 21:22

I am hypermobile and also had an ok pregnancy - I took a lot of care and made sure I kept up Pilates and swimming whole way through to keep my hips strong etc. In the end i kept exercising right til the end - I went for my last swim 2 hours before I went into labour at 37w.

Birth wasn't great - my hip dislocated and I damaged my SI joint before ending up with an emergency caesarean as my DS got stuck (!) - but I am slowly healing and once I stop breastfeeding am sure it'll be quicker as I need all the relaxin to go before I fully heal.

In short - Good luck!

HeyJupiter · 12/09/2017 21:31

Hi OP, I have EDS-hypermobility type and currently 30+2 weeks pregnant with my first baby.

I've done extensive research around EDS and pregnancy and most of the risks around miscarriage and incompetent cervix tend to be in EDS-classical type rather than the hypermobile type. We are at an increased risk of premature rupture of membranes but to be honest my midwives haven't been too concerned. I'm not consultant led. My general joint pain has improved but I do have SPD which has been limiting and distressing at times. I'm also even more fatigued than usual.

This is very reassuring and trustworthy: hypermobility.org/help-advice/pregnancy/

Good luck, make sure you ask for any support you need but also chances are you will have a happy and healthy pregnancy!

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