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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

_________PLEASE READ______________VASA PRAEVIA_____________PLEASE READ________________

14 replies

RTKangaMummy · 28/03/2007 17:50

According to official figures, vasa praevia kills at least one baby in every 2,500 - more than 300 a year. Undiagnosed, it is fatal in 95% of cases, but almost every baby survives if it is picked up by ultrasound scanning.

At present scanning for Vasa Praevia isn?t part of standard procedure. However Sharon and Nick are campaigning to make a scan for Vasa Praevia routine. Vasa praevia can be picked up in a normal ultrasound, but most hospital scanographers are not trained to look for the condition, and it isn't part of the Royal College of Obstetricians and Gynaecologists guidelines for them to look for it. Sharon and Nick want scanographers to be trained and detection of a possible problem to become procedure.

If vasa previa is diagnosed, delivery by C section before labour begins can save the baby's life.

What expectant mothers can do:

As scanning isn't currently standard, it's worth knowing that pregnant women are high risk if they have any of the following symptoms:

Those risk groups include women with painless bleeding during pregnancy or those with a low-lying placenta - as Sharon had. IVF mums, those with a bi-lobed placenta and multiple pregnancies are also potentially in the risk group. The following women are also at risk:

  • Those with painless bleeding (at any stage in pregnancy)
  • Those with low-lying placenta or placenta praevia
  • Those with bi-lobed or succenturiate-lobed placenta
  • In-vitro fertilization (IVF) pregnancies
  • Multiple pregnancies
  • History of previous uterine surgery including c-section

Sharon says: "We want every pregnant mother to have the scan - but we don't want mums to be to panic. The important thing is simply being aware because vasa praevis is an 'avoidable tragedy'

If anybody does have any concerns they can ask their hospital to scan for vasa praevia - some hospitals will be happy to oblige, others may refer you to a private clinic, whilst others will be able to assess your risk and tell you whether a scan is necessary or not.

For more information please go to:here is the website please take a look

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Are your children’s vaccines up to date?
RTKangaMummy · 28/03/2007 17:51

According to official figures, vasa praevia kills at least one baby in every 2,500 - more than 300 a year. Undiagnosed, it is fatal in 95% of cases, but almost every baby survives if it is picked up by ultrasound scanning.

At present scanning for Vasa Praevia isn?t part of standard procedure. However Sharon and Nick are campaigning to make a scan for Vasa Praevia routine. Vasa praevia can be picked up in a normal ultrasound, but most hospital scanographers are not trained to look for the condition, and it isn't part of the Royal College of Obstetricians and Gynaecologists guidelines for them to look for it. Sharon and Nick want scanographers to be trained and detection of a possible problem to become procedure.

If vasa previa is diagnosed, delivery by C section before labour begins can save the baby's life.

What expectant mothers can do:

As scanning isn't currently standard, it's worth knowing that pregnant women are high risk if they have any of the following symptoms:

Those risk groups include women with painless bleeding during pregnancy or those with a low-lying placenta - as Sharon had. IVF mums, those with a bi-lobed placenta and multiple pregnancies are also potentially in the risk group. The following women are also at risk:

  • Those with painless bleeding (at any stage in pregnancy)
  • Those with low-lying placenta or placenta praevia
  • Those with bi-lobed or succenturiate-lobed placenta
  • In-vitro fertilization (IVF) pregnancies
  • Multiple pregnancies
  • History of previous uterine surgery including c-section

Sharon says: "We want every pregnant mother to have the scan - but we don't want mums to be to panic. The important thing is simply being aware because vasa praevis is an 'avoidable tragedy'

If anybody does have any concerns they can ask their hospital to scan for vasa praevia - some hospitals will be happy to oblige, others may refer you to a private clinic, whilst others will be able to assess your risk and tell you whether a scan is necessary or not.

For more information please go to:please have a look at this website

< See more Health

.

OP posts:
southeastastra · 28/03/2007 17:55

i had placenta previa but haven't heard of vasa praevia at all. can't get link to work rtkm

RTKangaMummy · 28/03/2007 17:57

.

here is the new link

.

OP posts:
southeastastra · 28/03/2007 18:08

the story is so sad i'm so surprised this isn't more widely known

Hopeitwontbebig · 28/03/2007 18:13

My nuchal scan showed what looked like bubbles or cysts on my placenta. Could this be what it is?

RTKangaMummy · 28/03/2007 18:14

The couple who lost their baby were on ITV THIS MORNING today talking about it

OP posts:
RTKangaMummy · 28/03/2007 18:20

Hopeitwontbebig sorry I don't know

I guess you could ask at next check up

They said it would be ok if it is caught before birth

The couple on TV baby would have been ok if they had been ready and also given her a blood transfusion iirc

OP posts:
RTKangaMummy · 28/03/2007 18:24

I mean the baby would have been ok if the doctors were ready ie have paeds there and the blood ready rather than 25 minutes later

I think that is what they meant

OP posts:
RTKangaMummy · 30/03/2007 14:38

bumpity bump

OP posts:
VictorVictoria · 28/09/2007 11:01

Just reviving this thread as I was diagnosed with vasa praevia yersterday at my 22 week anomoly scan. Anybody had it diagnosed antenatally? apparently its pretty rare and often not diagnosde - I was lucky enough to be at the Fetal Medicine Centre where they have pioneered the detection of it.

Have googled it and spoken to my conultant so know what the impliations are (not great but manageable ie c-section at 35 weeks with possible bedrest before) but would welcome anyone else's experience

LiegeAndLief · 28/09/2007 13:31

I have no experience of vasa praevia but I did have a csection at 34+3 (for pre-eclampsia) if you want to talk to anyone about that aspect. Good luck with your pregnancy, I hope it goes as well as possible.

rozzyraspberry · 29/09/2007 09:45

Victorvictoria - have no experience of this but on Feb ante-natal thread too and just wanted to bump this for you.

Sounds like it's a really good thing that you've been diagnosed with this early on as as I understand it the reason for the campaign was that if it was diagnosed before birth it could be managed? Must still be worrying for you though and I hope someone more helpful than me comes along soon.

agalch · 29/09/2007 10:00

I was booked for a home birth but my midwife sent me into hospital to deliver as felt the membranes round the babys head when she did a stretch and sweep felt "wrinkled".

Had examinations and scans etc but consultant couldn't be sure that i didn't have it. Eventually had my membranes ruptured in theatre(was prepped for emergency c-section) in case i did have vasa praevia but luckily for me i didn't.

Went on to labour normally and had a wonderful birth.

Very worrying time.I didn't think the figures were 1 in 2500 tho.I thought my MW said 1 in 10,000.

It's awful that it is so easy to diagnose and so many babys lose their lives because of it

blacktreaclecat · 20/04/2012 07:43

Very old thread but worth bumping up I think
I have a posterior partial placenta praevia (29 weeks). Also an ivf pregnancy and a history of uterine surgery (3 D and Cs). I asked my consultant yesterday to do a colour Doppler but she wouldn't because Vasa Previa is "vanishingly rare". Also I will be having a CS anyway so it doesn't alter my management.
I have booked a private vasa praevia scan for a week tomorrow.

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