Molar Pregnancy

[PhDPepper]

So I have posted a few times now with pictures of lines and in the January 2018 group. I just want to make people aware of the symptoms.
I got a bfp with an incredibly strong line 2 days before AF and they got stronger every day.
I had some weird bleeding on tuesday it looked like prune juice (sorry if tmi) and lots of pain so went to A&E where I had 2 negative tests and they said I had miscarried and to go home.
The morning after I tested at home and got a very strong positive test.

I continued with the weird bleeding and pain so I rang the Early Pregnancy Unit on Friday and begged for a scan because I kept having strong positives at home but the pain was intense but also my pregnancy symptoms are insane, I can smell something a mile away and the nausea and vomiting is ridiculous.

Long story short they scanned me and I have been diagnosed with a molar pregnancy where an egg with no genetic information was fertilised and it's grown like a giant tumour and filled my uterus to the size of a football. I'm having it removed on Tuesday because there's no beds in hospital over the weekend.

I feel so strange because I still feel extremely pregnant but I now know it's not a baby it's a growth and it's disgusting I just want it out of me!!!

My point is, you know your body and if it doesn't feel right push to be seen and get someone to listen.
The photos I've attached are at 2 days before AF, the Day AF was due and 2 days afterwards

These were the tests I got after the negatives in A&E.
Turns out the tests we've been using for months in various departments of the hospital are faulty but that's a different thread all together

I remember reading about molar pregnancy way back when I had DS - it sounded horrific.

There are no words really - hope Tuesday comes round quickly for you

Molar pregnancy isn't very high profile. It can be extremely upsetting. Hope you are ok op. Have they explained about the monitoring afterwards?

OP. I had bleeding when pregnant with DD and it was misdiagnosed as a molar pregnancy. Although it was only for a few days, I remember the worry and feeling that something alien was inside me. It really did frighten me and I shared the feeling of just wanting it gone.

I hope everything goes well on Tuesday and that you are given good follow up care.

Hiya thanks for reading! I'm alright I know I have to have blood tests every week for a year and if levels don't go down or go up again (they're currently at 120,000) then I'll need chemotherapy for a few weeks to kill it all off because it can grow back. The scan photo was just horrifying though!

I feel so cheated and disgusted but also so sad because I'm only 5 weeks but I had already started to wonder about what this baby would do and be like and what kind of personality it would have etc.
And to find out that there never was one :( it's an odd feeling but I'm going to take use of the counselling that they have offered me.

Good luck on Tuesday, when you will be able to put this unfortunate happening behind you. I am sorry that this has happened to you.

Your risk of chemo is really low so don't focus on that, most people's levels drop without extra help. My levels were just over a million at diagnosis and we're 63000 two weeks after the removal but still did not require chemo.
The follow up care is excellent and they are very reassuring

That is meant to say were, no we're

Also, it's unlikely a year, it totally depends on how quickly your levels drop.

It sounds scary at first but isn't as frightening as it seems and will soon be your norm to be sending weekly wee samples off

@Frecklesfrodo123 thank you so much! There is so much to take in at all the appointments I think I've just picked up a few words.
How are you doing now?

Really sorry to read that you're going through this.

Re monitoring your hcG levels, you'll have weekly blood tests until the hcG levels drop to zero. If no further treatment is required, you'll need to give a monthly urine sample for 6 months, to check your levels remain low.

If you need chemo, you'll have a weekly blood test to monitor your HCG levels. Once your HCG levels are normal, the frequency of blood tests increases to monthly for 6 months, then it moves to bloods and urine tests every quarter.

Tests then eventually move to providing a urine test every 6 months for life.

I'm on lifetime urine tests.....

Support and future info can be found here:

www.molarpregnancy.co.uk/info.html#treatment

Hi Pepper

I had a Molar pregnancy 18 years ago, it was an awful shock at 12 weeks I was huge everyone kept commenting which was upsetting when I finally got my first scan at 14 weeks it was confirmed. I had it removed that afternoon, I went from being pregnant to not. The worst part is because there was never actually a baby I felt I had no right to grieve which was so hard. I had my bloods tested for 6 months and my hormone levels went back to normal so no chemo phew!! Back then nobody really had heard of it before so trying to get information was a nightmare. Anyway I now have to teenage boys happy and healthy. You will feel lost for a while but I promise it will pass if you need to know anything else DM me. Big hugs and don't worry xx

Gosh, never heard of this. Thank you for posting and best of luck

I had one 8 years ago. Found out at my 12 week scan. My levels went back to normal over the next year, with urine tests each month. All fine now. And I've had a baby since. It'll be ok OP.

Bless you, this sounds horrendous, thanks for sharing and raising profile. All the best for the operation next week and beyond xx

So sorry you're going through this. I had a molar pregnancy last year. Found out at 10 weeks after bleeding.
I was monitored weekly then fortnightly to begin with and then monthly. My HCG levels dropped to normal without treatment 4 months after diagnosis and I was told I'd need another 6 months monitoring to ensure they stayed down.
I actually fell pregnant 2 months later and am currently feeding my 9 week old DS. I'm telling you this because I thought it would take ages to conceive again and at one point was too scared to even try (even though I've always wanted to have a baby.) It is a horrible thing to go through and hardly anyone knows about it so it's hard to find people to talk to about it.
There is a thread on here that was active last year - I'm sorry I don't know how to link on my phone.
I hope you're well cared for on Tuesday.

Thank you all.
I'm so conflicted.

We'll get through this and try again when we're ready, I'm only 25 so plenty of time to heal and try again xx

It's just a shock isn't it, I've only known other people experience it online so can feel a bit lonely at times at first, good luck and hope all goes well for you

Hope yesterday went as well as it could have PhDPepper.

Thank you I've been a bit out of it. It went well :) feel a bit numb and incredibly sick but first stop on the way to getting better 😃

Good luck, and hope the sickness ends soon.