Getting diagnosed with SPD

hurryupandgetout · 2015-03-09T06:40:02+00:00

I'm currently 33 weeks and since about week 20 have had bad backache. My midwife was pretty useless and told me this is normal and I'm now having physio privately which hasn't made much difference. But for the past 2-3 weeks I've had crippling hip/pelvis pain and pains down the inside of my thighs and some days I can hardly move. How did you ladies with SPD get diagnosed/help? Would it be better to speak to the GP than midwife? I'm lucky that I can work from home occasionally but with 4 weeks left at work I really need a formal diagnosis so I can put formal wfh arrangements in place. My next mw appt isn't for 2 weeks and I'm happy to wait but I fear she may be useless as ever so may as well see a GP sooner if that's how everyone else got help! thanks!

Rinkydinkypink · 09/03/2015 06:43

Midwife told me and referred me. There isn't a lot that can be done except techniques to stop it getting worse. A belt if needed and crutches.

I had all 3 and it still persisted and got worse.

Went a few weeks after birth. I was so relieved.

mum2benicole · 09/03/2015 08:03

I done a self referral to physo but to be honest its been a waste of time they gave me a support belt that didn't do much once bump was to big for that it was crutches which I couldn't use much due to having a toddler and now im on codiene but still finding night times the worst I can move forth pain and I cant go do shopping ectopic im going to try get the midwife to send me to the consultant to see what eyes they can do im at my wits end
Hope you get sorted x

TouchPauseEngage · 09/03/2015 08:24

I self referred to physio. It's very important that you see a women's health physio not just a bog standard one. Mine is able to realign my pelvis and massage my surrounding muscles to relieve the pain. I initially saw a normal physio who knew nothing about pregnancy related PGP. Is the private physio your seeing experienced in this area?
If you havent already check out the pelvic partnerships website for tips on how to minimise further stress on the joints. I think they have a helpline too so you could call and ask for some tips on getting see quickly. Good luck.

DilysDerwent · 09/03/2015 08:33

My midwife was the same, didn't take me seriously. By the end I was hobbling into her room and wincing as I sat down then she'd say something like "Make sure you walk upstairs lots to get things going."
My GP referred me to physio but it took a few weeks to get an appointment.

Original poster

hurryupandgetout · 09/03/2015 17:28

Thanks everyone.

To be honest I'm not sure if my physio is a specialist, I had a phone referral with our health insurance company and they referred me to this one so I assumed she was but she's not done much to help so I will double check.

Sounds like this is an area where loads of people suffer but it's still not dealt with very well - very frustrating!

But thank you for all your tips and advice and I hope we all get sorted soon x

OP posts:

Original poster

hurryupandgetout · 09/03/2015 17:29

Thanks everyone.

To be honest I'm not sure if my physio is a specialist, I had a phone referral with our health insurance company and they referred me to this one so I assumed she was but she's not done much to help so I will double check.

Sounds like this is an area where loads of people suffer but it's still not dealt with very well - very frustrating!

But thank you for all your tips and advice and I hope we all get sorted soon x

OP posts:

Original poster

hurryupandgetout · 09/03/2015 17:29

Thanks everyone.

To be honest I'm not sure if my physio is a specialist, I had a phone referral with our health insurance company and they referred me to this one so I assumed she was but she's not done much to help so I will double check.

Sounds like this is an area where loads of people suffer but it's still not dealt with very well - very frustrating!

But thank you for all your tips and advice and I hope we all get sorted soon x

OP posts:

Original poster

hurryupandgetout · 09/03/2015 17:30

Thanks everyone.

To be honest I'm not sure if my physio is a specialist, I had a phone referral with our health insurance company and they referred me to this one so I assumed she was but she's not done much to help so I will double check.

Sounds like this is an area where loads of people suffer but it's still not dealt with very well - very frustrating!

But thank you for all your tips and advice and I hope we all get sorted soon x

OP posts:

Original poster

hurryupandgetout · 09/03/2015 17:32

Thanks everyone.

To be honest I'm not sure if my physio is a specialist, I had a phone referral with our health insurance company and they referred me to this one so I assumed she was but she's not done much to help so I will double check.

Sounds like this is an area where loads of people suffer but it's still not dealt with very well - very frustrating!

But thank you for all your tips and advice and I hope we all get sorted soon x

OP posts:

Original poster

hurryupandgetout · 09/03/2015 17:32

Thanks everyone.

To be honest I'm not sure if my physio is a specialist, I had a phone referral with our health insurance company and they referred me to this one so I assumed she was but she's not done much to help so I will double check.

Sounds like this is an area where loads of people suffer but it's still not dealt with very well - very frustrating!

But thank you for all your tips and advice and I hope we all get sorted soon x

OP posts:

IdaClair · 09/03/2015 17:37

I suffer from conception but still didn't get onto the wait list for treatment until 2 weeks post birth. Until then I am given co-coda mol and a list of ways to keep my legs together.

'Thankfully' I suffer with it for 12-18 months post birth and then still twinge with my cycle after that, so I could actually make use of the pregnancy belt I was given after my baby was born.

Next time I am booking in prior to conception for my 2.5 year disability.

Still, I don't need to buy pregnancy tests, I know instantly when my hips collapse.

Original poster

hurryupandgetout · 09/03/2015 18:31

Sorry for the multiple posts my phone signal is about as rubbish as it sounds like the nhs are at treating this... 2 weeks post birth is shocking!!! can't believe it lasts that long either, I'm hoping (in the nicest possible way!) that you are an exceptional case because I really can't cope with this for another 12 months +

OP posts:

rosedavo · 09/03/2015 21:45

Ive found my midwife completley useless, i just go to my gp with anything bothering me, and he has refered me a couple of times to a maternity triage clinic to get double checked etc

WaitingForMe · 09/03/2015 21:55

I was able to self refer to a women's physio which was pretty good. Have you got wedge cushions? I used to take mine everywhere. I couldn't drive or sit in a proper chair without them (I had a soft one on top of a hard rubber one). I lived on my fit ball at home.

Mine eradicated after birth. The health visitor was worried because I was so happy when she visited at home. I calmed her of her fears by snarling that seven months of pelvic agony will give you a buzz when you can suddenly walk again.

youlemming · 09/03/2015 21:56

Midwife said the same thing to me but I got a referal throught the GP, all physio did was tell me how best to move about (legs closed and pivot in/out of bed or the car) but I was given a large tubi-grip which helped a lot as it gave so much more support than the bump bands from the shops.
As well as the tubi-grip I got a support from the Promedics website and together they helped get me through the last few weeks, luckily it went about 2-3 wks post birth.
But I did find it flare up from time to time, probably didn't help that I played rugby so running about on the hard groud at the start of the season was a big factor.
It's now started again with number 2 at 19 wks so I'm ready with the supports and trying to slow down and rest when I can.
You can get the tubi-grip for trunk size on amazon, the Easi-grip brand tend to be cheaper, sizes J/K/L.
Hope you find a way of dealing with it.

HootyMcTooty · 09/03/2015 22:00

Go straight to your GP and ask for an urgent referral to physio. Tbh I didn't find physio helpful at all and just had to deal with the pain. Take paracetamol, rest, don't spread your thighs more than absolutely necessary, be careful rolling over in bed (I found a MASSIVE pregnancy pillow really helped). Hopefully it will go once baby is born, mine went after a few days, but it's important that it's put on your green notes as it can affect how far you can part your legs during the birth.

You have my sympathy, SPD is torture!