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Original poster

Referral scan - worried!

16 replies

MultipleMama · 20/09/2014 22:04

I had one in my previous pregnancy but I expected it due to complications.

This time it's completely thrown me. At 20 week scan they said they were concerned about his grown and slightly worried about his lungs. They've got me down for 2 week growth scans. I had one earlier this weeks and was told his still smaller than they'd like but they'll just continue to monitor. This morning I received a letter through with a date for a referral scan. Now I'm worried because no-one mentioned a referral!

The scan is dated the same date and time as my growth scan so I'm guessing they've changed the details?

Please tell me not to panic because now I'm overly anxious trying to figure out what's wrong!

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Original poster
MultipleMama · 23/09/2014 12:16

Phoned to check and enquire and they informed me it's something to do with a bright mass on the baby's lungs being picked up on my scan!!! Confused

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Tipsykisses · 23/09/2014 12:30

Hi multiplemama ,
Sorry you are going through this , I know it's hard but try not to panic .

I had a terrible time in my first pregnancy after a scan showed something that needed re checking , I was also scanned every 2 weeks .
I was worried all the way through but my DD didn't have the condition they thought was showing on the scan .

Do you have someone with you ?
When are you going back ?

Jodie1982 · 23/09/2014 12:33

Oh you poor thing, I'm sorry to hear your scary news. When is ur appt? I can't begin to imagine how worried and scared your feeling, I just want you to know that I'll b thinking of you n your bubby. I have no past experience of any problems like yours, i just couldn't ignore your worrying post.

Jo 19+3. X

Original poster
MultipleMama · 23/09/2014 13:45

Yeah, I called DH up freaking out and said he'll rearrange his working hours to fit around my appointment which is booked for 8am 3rd October.

DH has freaked me out further by bloody researching bright masses on google and sending me links via email. So not helpful to me but his coping method!

Hoping it's nothing serious! Xx

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Tipsykisses · 24/09/2014 10:54

Looking through Google will bring up all sorts of worrying info that hopefully won't be relevant to you but will worry you sick !!

Any chance of a private scan or at least bringing the date forward ?

I'm so sorry you are having all the this worry , it's so horrible waiting & not knowing .Thanksx

Original poster
MultipleMama · 24/09/2014 15:02

Well, I phoned up about the scan and asked if they had an earlier date as I was panicking and worrying only to be told that I should have been seen by a fetal medicine specialist within 4 days of my 20 week scan Confused so the lovely lady has put me on the urgent list and they'll call me if there's a cancellation.

I'm so annoyed and confused, and now, freaked out. How the hell did my referral get mixed up, when they'd obviously booked me in for a growth scan?!

DH told me that he's not surprised the sonographer didn't mention anything about referral because I never asked I forgot that where I live, they don't volunteer information you have to ask for it Blush

It's been nice being able to "talk" about it here, without DH bombarding me with bloody google research Grin and thank you Thanks x

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Original poster
MultipleMama · 24/09/2014 18:00

They called back. I'm in at 10am on Friday as someone made a cancellation.

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WhyOWhyWouldYou · 24/09/2014 18:27

Best of luck for Friday.

Original poster
MultipleMama · 26/09/2014 11:58

Gunna make this short as I can't really talk/write about it without crying.

Our baby has pulmonary sequestration with a CCAM (which has more than tripled in size since my 20week scan). And due to it's size it has began to push against his heart. I will be monitored weekly for hydrops and growth size. They think from the measurements, blood flow etc. It is highly unlikely the CCAM will shrink or stop growing... it's a waiting game.

(X-posted).

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unhappyfatmama · 26/09/2014 12:00

Im so sorry

Original poster
MultipleMama · 26/09/2014 15:40

Thanks. Just a bit of a blow, tbh. We hoped it was just another needed rescan. Trying not to let it effect us too much. Nothing we can do as of yet. Flowers

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WhyOWhyWouldYou · 26/09/2014 16:22

I'm so sorry. I don't really not what to say.

WhyOWhyWouldYou · 26/09/2014 16:22

*know not not

Original poster
MultipleMama · 26/09/2014 16:31

Neither do we, why. Just cuddled and discussed it the best we could. We've decided to carry on as normal and continue to enjoy our pregnancy and baby and deal with whatever comes our way with solid positive thoughts. We have beautiful DC who we are getting our full attention instead of two wallowing parents. All we can do, really :)

I go back tomorrow for an echocardiogram (or however you spell it Grin).

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Jodie1982 · 26/09/2014 17:18

I'm so sorry for you and your partner honey. Wishing your little one all the best, I'll be thinking of you. I don't know what to say. Life is so cruel at times. :(

Original poster
MultipleMama · 26/09/2014 19:33

It is. But babies with CCAM have a great survival rate these days. So we're optimistic, our goal is 28 weeks and then we'll go from there :)

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