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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Hyperemesis Support

991 replies

LucindaE · 26/04/2014 20:20

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.

There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos/
Another invaluable website is:
www.pregnancysicknesssupport.org.uk/
If you need help in obtaining medication, this phone number is
brilliant:
024 7638 2020

Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy#!prescribinginfosub

I would like to thank Everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

OP posts:
Are your children’s vaccines up to date?
kalidasa · 20/05/2014 11:28

Thanks punk that is so helpful. I think my HG last time was at the severe end, I went into hospital for the first time at only five weeks and I threw up all the way through. I too powered through a host of drugs and drug combinations between weeks 5 and 9. I think I should probably have had a trial of steroids although I am a bit cautious about steroids in general as I was on them recently (for rheumatoid arthritis) and they messed with my mood.

So drugs-wise, yes I have cyclizine, ranitidine, pryidoxine and (a small amount of) ondansetron newly prescribed, as well as stashes of these and other things from the last time. I am already taking cyclizine at night and the ranitidine and pyridoxine each day, I know the ranitidine helps a lot with acid which last time wasn't really a prob until the second half, but this time I noticed heartburn alongside the nausea within a few days of conception (but my digestion has never gone absolutely 100% back to normal after HG). Last time I took metoclopramide for a long time as well but I have been told to avoid it as I had a lot of neurological symptoms and was probably on it much too long. I don't think it did much anyway.

I have really mixed feelings about ondansetron. I think it did, eventually, help keep me out of hospital, but it really wasn't a magic bullet, I continued to throw up a lot, and actually food replacement drinks made the biggest difference to me at that absolute worst stage (9-11 weeks ish), when I had been starving for weeks. I was on a massive dose of the ondansetron for ages and the constipation was absolutely unbearable, absolutely nothing worked apart from enemas. So even though I know I will need it I am not very keen.

As you say my plan is to start taking the ondansetron the first time I throw up and hope this avoids rapid escalation. Last time I completely lost control of the vomiting almost immediately.

We have thrown money at the domestic side of things: we have recently switched to a nanny, and we also have a cleaner once a week.

I'm seeing the GP tomorrow and I am going to ask if we can put in place a system of telephone consultations. Last time every time I got bad I had to go to the GP who would then send me to A&E and every single time it took hours and hours to be admitted even though they knew I was coming - there was no option to skip any stage. It was crazy as I would be very ill to start with and extremely ill after five hours or so on a chair in A&E unable to eat or drink. My last admission I was delirious by the time they finally admitted me, so confused that I couldn't manually take a tablet and in the end they injected me instead. It is very difficult to work round this though as it is a huge central London hospital (Royal Free). I have ketostix at home so can test myself for ketosis.

If I do end up in hospital I will try to arrange some sort of work around the first time for any subsequent admissions.

Unfortunately there is no HG clinic at the Royal Free as far as I know. It does have a big team and they seemed pretty good - I guess it's a big enough hospital that they do see even v. severe HG fairly regularly - but not absolute specialists. I found it quite demoralising in the second half of pregnancy that though they scanned the baby v. v. regularly as I was still being sick they didn't really seem to care how miserable I was! Even though I was on crutches/wheelchair with severe SPD for the last months as well. Actually consultants I saw in other hospital departments - e.g. rheumatology and haematology/thrombophilia - were MUCH nicer to me at that stage and seemed genuinely shocked.

Finally, do you know what you are having? Just wondering if the worse HG is sex-related (as some doctors say) or whether it's just a reaction to doing it again?

LucindaE · 20/05/2014 11:42

livingzuid and mrsnec Ahem! I'd better not tread on any toes and say why I personally believe in a female Creator. That advice sounds plain silly! Coffee with Hypeemesis!!!??? EnvyEnvyEnvyEnvy Shock.
Meerka I so agree. So many people, particularly those suffering most severely, find that only lying still helps, one reason why the Walk in the Park Good Fresh Air theory is no use...
Sasseh Was it you who managed a chip butty? Wonderful, and a typical Hyperemesis fancy when you can eat. (Well meaning advice: 'It's your diet that's causing it, you know'. Angry).
SunnyI hope not in hospital after that flight? I should have checked the time of your last post...
Kali It's sweet about OH. Crossing my fingers like anything over it not being worse than last time (is that possible, at least at the beginning??!!] Did they want to put you on steroids?
Punkstar I won't be annoying and say, 'Not long now...'
Apologies to anyone rudely overlooked.
Hope Everyone's coping. Headache sort of weather here, thundery...
xx

OP posts:
Meerka · 20/05/2014 13:13

kalidasa and Punk

Im wondering if it's worth asking Punk's consultant for any HG specialists in London for kali as a matter of urgency.

The level of sickness last time plus the fact that you've started to feel worse already is what makes me think that you might need specialist consultant care right from the beginning. mainly for the physical aspects but with severe HG you need supportive professionals too and while your doc is obviously superb, he's a GP not a consultant specialist.

If not, I may be able to chase someone down myself but it's an extremely long shot. punk's consultant is a much better option.

PunkStar · 20/05/2014 13:13

During my first pregnancy Kali I was treated the same...after 20 weeks when I was functioning a little better but still absolutely miserable with it (I did go to work but would then vomit around 5-6 times on these days) no one seemed to care. The obstetrician I saw at 22 weeks just said it should get better soon and that I should have a growth scan but then pretty much left to fend for myself. I found it terribly depressing and stopped approaching any health care professionals about it. I don't think anyone knew what to do with me.

Having a caring consultant has really helped. I suggested when I saw him yesterday that I could try and reduce/come off steroids prior to delivery and he quite strictly told me not to. Advised me there was no point risking a further decline at this stage and nothing would be gained. Quite refreshing compared to the doctors who won't prescribe anything and then want you off it as soon as possible if they do. My consultant is a physician too (metabolic medicine) perhaps they have a better bedside manner than obstetricians (my OH is a physician and he would definitely say medics are better in this department than surgeons ;-)

I really struggled with ondansetron too. I found the constipation horrendous and it didn't always settle the vomiting, it had no impact whatsoever on the nausea and I still continued to lose weight on it.
Only high doses of pred settled my vomiting completely and I've had ups and downs since getting below 30mg and certainly below 20mg. However I did persevere and I've been on 7.5mg since six months. It's not perfect and I'm sure I would be a lot better if I'd stuck with 20mg but it's a compromise I'm happy with and I have managed some quality of life.

I think the telephone consultation is a great system and it helped me. Rather than A&E can they not refer direct to gynae and you go straight to the ward? Perhaps it is too busy for that and the wards are full?
It's the last thing you can cope with in full HG. The thought of what you went through terrifies me, it's hard to rise from your bed at that stage let alone sit for hours in a brightly lit, noisy A&E. I truly hope you don't have to go through anything like that again :-(

I'm having another boy, so increased severity not related in my case. My consultant says each pregnancy is different as it's a new placenta and that is the likely suspect in it all. He also says it causes thyroid dysfunction, which can add to symptoms 'sick thyroid syndrome'

Hope it goes well with your GP tomorrow. Good luck :-)
Hoping that this is not so bad for you this time. You are very brave. I am not doing this again, my courage has left me. I am going to volunteer with PSS once this is over. I can't stand the thought of other women going through this with little support.

Lucinda I'm only surviving at this point because I'm so so nearly there....friends are even texting me with countdowns :-)
13 days....

PunkStar · 20/05/2014 13:34

A quick search....
I've come across a Professor Redman on the HelpHER site, he is the only Prof other than Prof T who I see listed as a HG specialist in England. He has a published paper on HG. He is also an obstetric physician (like my prof) which means they are so much more comfortable dealing with steroids.
He works at John Radcliffe, Oxford....is that too far?

PunkStar · 20/05/2014 13:37

Your GP could fax a referral tomorrow...?

PunkStar · 20/05/2014 13:44

My vom free run has come to an end :-(
Bile and blood :-( :-( :-(

LucindaE · 20/05/2014 14:13

Oh no, Punkstar! Red blood not brown, Mother Hen hopes (but you know all about that; you are one veteran!)
xx

OP posts:
kalidasa · 20/05/2014 14:31

Oh no punk I'm sorry you've been sick. Bile is the worst. But thanks so much for your post. Yes, I'm afraid Oxford is too far - we are in (fairly central) north London, regular appointments in Oxford would be an absolute nightmare, that's a horrible journey at the best of times. The one good thing about the Royal Free is that it's at the end of my road!

Yes, they didn't seem to allow referral direct to the ward, even though each time the GP would speak to an on-call obs/gynae person so they knew I was coming. It was odd the doctors seemed to believe this would allow me to circumvent at least some of A&E but it absolutely never did, even with a letter from the GP in hand. The gynae ward was indeed often extremely busy, and once I ended up admitted to a general ward instead because it was completely full. The wait to be admitted truly was awful, and I find it quite scary to be honest. The first time they'd run out of drip stands (!) so I waited ages and ages for a drip and in the end my (tall) friend who had luckily come to sit with me had to stand and hold it!! During my last and longest admission they did finally give me a direct number to the EPU and said I might be able to arrange to go straight there for rehydration, but as it happened I never had to test that out.

Interesting about thyroid - my thryoid went very odd but they didn't seem too bothered about this, they said it was normal with severe HG. They kept an eye on it and it did indeed eventually return to normal later in the pregnancy. My Dad is a retired doctor and he actually specialised in endocrine stuff (so lots of funny thyroids) and he also said it was normal in that situation.

I would happily pay to see a good consultant privately at this stage for advice on how best to handle things, but evidently they are thin on the ground.

Thanks everyone for all the support and suggestions. 3w6d and I haven't thrown up yet!

Saraswati · 20/05/2014 14:52

kali totally unrelated but I've been to the royal free many times to see a specialist for this weird thing I have (will out myself if I say what it is it's so unusual) and I love that area! DH and I have to spend several days there on occasion and we are put up in hotel by the hospital so I dont have to stay on a ward and its so lovely. How nice to live there. Oxford is a nightmare, I'm now under the care of a consultant there for the same issue and even though we live close by in reading, the journey is a nightmare. The hospital is very good though although I've had no dealings with gynae/obs there. Hope the sickness stays away for you as long as possible.

Managing a little better today, the thought of picking up the meds later is getting me through the work day. Have only been sick twice today before I left for work which is a vast improvement. Would you ladies say there is a peak for the sickness or was it just bad the whole time? My gp said it may peak from7-10 weeks then calm down if I'm lucky but I've got to prepare myself for the possibility that it won't.

I'm 8 weeks today, trying to focus on the fact I've got a private scan booked for a week on sat and I can find out if everything is ok and this hasn't all been for nothing. Although thinking about it too much makes me too nervous and more nauseous, argh!

livingzuid · 20/05/2014 14:53

punk nooo :(

Very quickly dashing on as I am sleeping on and off (very strange day) but there is this Guardian article which is interesting on ethics in doing clinical trials in pregnancy. I made a comment with all our links and some of the other comments on women who struggled with hg and were turned away are :(

www.theguardian.com/lifeandstyle/2014/may/18/pregnant-women-get-sick-too-medication-safety-risk-pregnancy#comment-35900288

Saraswati · 20/05/2014 15:00

Sorry totally didn't read the thread! punk That sounds horrible you poor thing! Please go and lie down in a dark room! And kali your treatment in hospital sounds really awful! I have everything crossed you can avoid that this time. You are a warrior going for a second child! I've not suffered half as much as you guys and I've already said to DC they'll be no more (so he's praying for twins now!)

Saraswati · 20/05/2014 15:06
  • DH not DC, I think I need a nap!
Oklahoma · 20/05/2014 15:50

Sara most of us have found it peaks in the first ish trim but never really goes away. I'm 17 weeks now and can just about function so long as I basically do nothing. At my worst I couldn't move from the bed/sofa and couldn't keep anything down at all. I'm still very sick in the mornings but can usually keep food down in the afternoons so it has definitely improved.

Kali & Punk I feel like such a wimp for complaining after what you guys have been through.

kalidasa · 20/05/2014 16:40

saraswati the absolute worst bit for me was weeks 8-11; thereafter there was gradual fractional improvement but I was still very ill through till about week 18 and it never went away for me (actually it got worse again from 30 weeks onwards, but that seems to be more common in women who are at the severe end at the beginning). The best bit for me was weeks 25-30 or thereabouts. But there does seem to be some correlation between how bad it gets and how long it lasts. If you are still making it into work at 8 weeks you are doing fantastically well and I think you can hope for some real relief by mid-pregnancy - just ignore the people who say it'll disappear like magic at 12 weeks!

But yes, we are v. lucky and live in a lovely bit of London! I lived in Oxford for years but actually I loathe the place!! It is beautiful though.

Still haven't thrown up but not sure how long I'm going to be able to say that. Am eating some truly disgusting crisps as I had a weird idea they might help but I think I possibly misjudged that one . . .

Am considering actually counting how many times I throw up this pregnancy with the thought that every single one is one closer to the last one . . . (though have to admit I threw up a bit after DS was born too, very unfair!)

So grateful for this thread. I know you'll all be with me all the (very very long) way . . .

Oklahoma · 20/05/2014 17:02

Kali I started off tracking how often I was sick but it got so depressing I stopped. I wouldn't recommend it.

How does anyone with HG get through it without this thread!?

Meerka · 20/05/2014 17:21

They're traumatized for life

starrynight123 · 20/05/2014 17:50

Hello!! Feels as though I've been away forever, even though it has only been a few days. So much to catch up on and, first things first - congratulations Kalidasa!! Wonderful news that you are pregnant and, like everyone else, I can only wish you the best of luck with coping with the hg this time around.

I'm back at my mum's place now and can't do much typing because I've got rsi in my wrist and it is agony :-( Too much tapping away at my laptop at an awkward angle while in bed. But, it has been a lifesaver to be online and to use this thread.

I'm feeling a bit worried because for the last two mornings, I haven't felt quite as nauseous as I usually do. I'm 28wks along now and wondering if I have finally reached a plateau with the sickness, or whether this is some sort of blip, after which it will return to 'normal', i.e., awful nausea and sometimes being sick as I have been for the last few weeks. The baby seems to be fine, wriggling and kicking as usual, so I'm not too worried about her.

Has anyone else had this 'blip' at this sort of stage (28wks)? Or any other stage? Does the nausea/vomiting come back again soon?

I'm so nervous!!!

livingzuid · 20/05/2014 17:50

If there is a problem with your thyroid they will give you medication to regulate it. Pregnancy related thyroid issues tend to clear up very quickly after birth. It's just a hormone replacement. Mine is pre existing so I am on it for life but it is far better to feel normal than feel dreadful due to the thyroid malfunctioning. I actually have to see my specialist again tomorrow as my psychiatrist is concerned about one of my levels.

So many doctors! I see the consultant tomorrow and I hope I can get an induction date. I spent all day in bed today pretty much although I made it up to collect Dh from work and that wiped me out again. Back in bed now. It's been some time since I felt this crap. I don't know if it is thyroid, hayfever and cold or a combination of all three but I feel dreadful. My nausea has been bad too.

With regards peak of hg, mine was around week 12. Then second trimester was better and just this last month I have had nausea and the odd bit of vomiting. It's getting worse as I get closer to my due date.

livingzuid · 20/05/2014 17:59

Around 28 weeks I was enjoying myself starry :), it was one of the better times moving from second to third trimester. If the baby is wriggly then there is nothing to worry about :)

Saraswati · 20/05/2014 18:01

Thanks kali I seem to have it easy compared to some of you on here! I feel positive that I can still work (don't get sick pay either so I'm lucky I can!). The nausea is worse than the sickness, I just don't want to eat anything but I've only lost 5 pounds so far and my bmi is still just in the normal range so my gp wasn't too worried, just need to get these meds! Bloody pharmacy was shut by the time I left work so I'm going to go in late tomorrow to make sure I get them.

I like the thought that every time I'm sick it's one closer to holding my baby (if there's anything in there, sometimes I feel like I'm imagining it!)

PunkStar · 20/05/2014 18:03

There's a HG clinic at The Royal London in Whitechapel....might be worth getting in touch Kali unless your GP has some local knowledge?

Bit of a lie down helping. It's so frustrating :-(

I think without this thread you just get pretty depressed. I couldn't face writing on it until I was around 14 weeks. I was a lurker prior to this though!

Red blood Lucinda I think it's just a battered oesophagus.

Kali it's intersting what you say about peaks and troughs, I've followed a similar pattern, maybe week 22- 30 showing a good enough lift to persuade me to work one day a week (a struggle but the psychological benefit was enormous) but from week 30 an increase in severity, although nothing like pre 20 weeks.
Prof didn't bother checking my TFTs (he is also endocrine but his big focus is diabetes) as he said he knew they would be abnormal due to the hyperemesis and not something that would need treating other than by managing the HG. It's interesting stuff!

In a Prof paper they comment that 80% of women remit around the 20 week mark (by remit I think they mean symptoms dramatically reduce but perhaps not cured) and 20% have full term hyperemesis. These were all ladies classed as severe and requiring steroid treatment. So, the odds are good!

I'm counting on this disappearing after placenta removed....it did last time, like absolute magic. I'm sorry to hear that for some it still lingers :-(

starrynight123 · 20/05/2014 18:08

Thanks, living! I was starting to panic that it was some sort of mirage and that the hellishness of hg would start to re-assert itself tomorrow or something. God, I so need a break from it all. So glad to be finally getting one.

PunkStar · 20/05/2014 18:11

Living I checked out The Guardian article. Really interesting, I don't suppose there is an easy answer other than more education and research.
I've felt terribly guilty about being on pred despite having a very reassuring Dr who puts me under no pressure with it. It's all my own doing and he would have been more than happy had I stayed on a higher dose, however he did say he was impressed by my reduction :-)

Eeee hope you get an induction date (but equally hoping that if a failed induction they will progress to a CS?? Definitely ask them the back up plan....just thinking about Meerka's situation)

Meerka · 20/05/2014 18:29

punk it doesnt completely go always, but for me it's like .. 2% of what it was. not pleasant but you know what? its actually a nice reminder of just HOW much better I am and how much better life is.