Very worried after 12 misscarriages.

[Desperatelywanttobeamum]

Hello please could you help as I feel I'm not getting the help and support I feel I need.
I am currently pregnant again, and have been getting pains and brown blood which I have read and been told is normal. But this morning when I wiped I had red blood. I phoned my EPU and they told me it's normal to spot during pregnancy (which I understand) but given my past history surely they should be doing more to put my mind at ease and help me. I think I am currently around 5/6 weeks (I have a scan next Monday). Please could any of you ladies please help me and advise what I should do next as I am extremely scared that I will misscarry for the 13th time.

I have never had a miscarriage so can't imagine how scared you are but I had brown discharge with dd and I've had it again this weekend (8 weeks pregnant) I spoke to midwife this morning and I have a scan tomorrow at epu to check. I wonder if they're not scanning you yet as probably wouldn't be able to see the hb yet as to early and they don't want to panic you more so would rather make you wait a week (I know the waiting is awful ) I really hope alls okay with the pg, good luck

Did you have the same symptoms in your other miscarriages ( pains, brown blood)?
I have similar symptoms and am getting scanned tomorrow - am 6 week 2 days
I think that most ecu will not scan before 6 weeks
Fingers crossed for you

After that number of losses I'm guessing that you are under consultant care or under your local recurrent miscarriage clinic. Have they not been able to advise you? Obviously there is nothing that can be done to change the outcome but I would have thought that they could offer you a scan this week rather than waiting another full week just to see if there is an appropriately sized gestational sac and fetal pole.

Maggie try not to worry brown blood is old blood and my midwife didn't seem worried just booked me in to epu to be on the safe side good luck tomorrow!

Thanks feeling fatty ( feels very rude calling you that lol)
Did you get any lower back pains around 6 weeks - it's like a dull ache - I aren't complaining if it is normal and baby fine then bring it on I'm just worried that it is mc onset x

No I've never had these symptoms before my previous mc's have been mmc. I am under a consultant at my local hospital. I've been asking to be referred to st Mary's recurrent miscarriage unit but they have told me they would only do the same tests and things as what they are doing. No one wants to help me and I'm scared.

I understand there is nothing they can do as it's too early but still just a bit of compassion would be great.

Mary's might do the same tests but they will probably know who to send you to in order to get more help.

Stick to your guns. Get the referral! Good luck.

And I will cross my fingers that you aren't mc'ing.

Hi desperately, here for hand holding.

Your EPU sound shockingly shit, I absolutely agree they should be doing more to put your mind at ease. I've had 5 losses and am week 10 on my 6th pregnancy and I'm an absolute basket case, I would not take well to being told to come back in a week!

At my EPU they scan at 6/8/10 weeks but I can go in at any time with any bleeding/pain/discharge for a scan also. The most I've ever had to wait is 24 hours at the weekend, when no scanner was on duty.

I'm wondering if they have put you off till Monday as they don't think they will see much on a scan till then as it is too early, or if they are just crap....making you wait an entire week seems madness to me. Have they given you a proper reason to do with dates etc?

Where in the country are you? (PM me if you don't want to say on here).
I'm wondering if we can find you somewhere else to self refer to. I only know about London ones but I'm sure by the collective power of MNet we can come up with something.

What tests have you had on you? Have any of the previous pregnancies been tested to see if they were genetically viable? There is a big difference between losing babies that were genetically OK (suggesting perhaps implantation/ clotting/ immune response problems which can be treated) and babies that were never genetically viable.

Maggie I didn't with this pg but did have at 6 weeks with dd and had scan and all was fine. Weirdly I had a private scan sat just before this all started happening and all was fine so quite reassured by that but will hopefully see bean okay in the morning as will you.

Op could docs do bloods to check hcg rising? I know it's hard my mw was lovely this morning so sorry if yours doesn't seem nice, maybe ask to change? I wouldn't try to get an earlier scan as before six weeks with no hb I don't think it would ease any worries just increase them. Really feel for you

Also if their policy is not to scan till week 6, they could take blood from you today and wednesday for hcg testing- this would (a) tell them when they could expect a scan to show things accurately (b) if it is rising correctly or not rising, or falling indicating a problem. Refusing to do anything to help is shit.

Sorry guys I probably should have already explained that in the last 2 weeks I have been visiting my EPU I had a scan on 3rd and they couldn't see anything. They then done the HCG which was 732 then on 5th the HCG was repeated which was 935 then it was repeated again on 7th which was 1200 they then rescanned me on 8th and found a gestanial sac and a yolk but no foetus, which is why they have re booked me for next Monday. My LMP was 19.11.13 which would make me around 8weeks but my scan doesn't match this.
I'm sorry I am just a mess right now as I feel they should be helping me. When I phoned them today they said it was normal to spot and to phone back if it gets heavier. They also said they couldn't scan me everyday because if it's going to happen it will happen regardless, and to wait till next week.
I just feel this isn't the right way to deal with someone who has had many previous mc.

I don't think that the type of counselling/emotional support that you need is what they will be good at. But maybe GP can find you the right professionals in another branch of NHS?

Hi desperately, sorry you're having tough time. Did you not get a specialist referral automatically after the third miscarriage? Have you/partner been tested for possible causes? I've had 4 MC, I know the wait for a scan is unbearable. You should be being seen by a specialist midwife and if you aren't then I think get it sorted with GP.

My husband and I have had many blood tests, and all things have been normal. I am under a consultant at my local hospital. In previous talks I've had with him he's not really that interested in me till I'm 12weeks then he will put a stitch in, but until then looks like I gotta ride this out! :(

Desperately, I think you need more help than you are getting. Agree with lljkk. Are you in London, I can recommend a really good service to help if you are.

Rising HCG a good sign, also the fact that they could see more on second scan than first.

Dates are a bit of a worry, on what date did you get a positive pregnancy test, can you remember?

I think llj may be right I feel you do need help and someone to talk to but unfortunately I don't think an epu can really provide this. I also don't think there's much more they can do before your scan. This isn't to say I don't think you're going an extremely tough time but realistically I think there hands are tied. I really hope things work out okay and the scan brings good news

Ah sorry desperately. Wouldn't it be nice if there was an easy answer. We had all the tests and it showed nothing wrong; the 4 MC following DD1 were just 'shit luck' as one consultant succinctly put it. I agreed! Who knows why but we got our DD2 in the end, despite some scary bleeding and aches. I do hope all goes well for you. Crossing all fingers and toes.

They are being rubbish. I'm guessing that with your slow to rise HCG levels and earlier scan which doesn't correlate with your dates they are expecting the worse but with your history and understandable anxiety they should be offering you a scan around 7 days after your last scan to see how the pregnancy is evolving.
I think you need to either take up the offer of getting help to find a different EPU, exaggerate the amount of pain/blood you are experiencing and go straight in without calling first, or see about getting a scan privately. Makes me glad not to be in the UK any more when I hear stories like this.

I'm 28.
My positive test was 23 dec.
I'm waiting for a phone call from my GP to see if there's anything he can do, as he knows my history as he's been there since my first mc.
I really can't remember what tests I've had but I've had many they take around 5 pots of blood from me every time I've misscarried. My GP put me on 75mg aspirin and cyclogest after my 3rd/4th mc.
I'm in kent but London is a short journey for me, I would travel the world and spend thousands if it means I get answers and possibly a baby at the end of it.

im going to be bluntly honest here. i had a friend who has been going through the same for years. 10 mmc. local consultants crap. st marys didnt do much. nhs seem to fund limited range of tests.

eventually she went private. diagnosed within weeks as having high natural killer cells and straight onto treatment regime. now approaching end of first trimester with a good outlook.

in total for the consultations, early scans, and medication, this process will cost around £4000.

12 miscarriages is not a coincidence, you are being treated insensitively, your fertility issues are not being investigated thoroughly, and the nhs are failing you. if theres any way you can afford it, go to harley st and seesomeone at the forefront of new research.

failing that do as much reading as you can and try and push the nhs into doing more tests eg natural killer cells.you have a right to be referred to whatever hospital you choose as well.

feel angry and sad on your behalf. i hope this time its all ok but i cant stand to see someone go through what my friend did and hope you are able to find better support and treatment.

Oh desperately it must be so difficult fx for a baby in the very near future