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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Gastroschisis

3 replies

Kerri99 · 01/10/2013 21:37

Hi ladies..I'm 23, expecting my first baby and found out at 13weeks that it had gastroschisis. I went for my scan as usual, and after doing all the measurements etc, the technician said she was a bit concerned about an abnormality on the baby's belly. I had to go back the following afternoon to see the specialist who confirmed it was gastroschisis. Since then I have been very worried. I watched an episode of midwives where one baby had a similar condition and was ok after the operation, but in all honesty it didn't really make me feel any better. I'm hoping everything will be ok but I'm a natural worrier and can't help but feel scared and anxious when I think too much about it. I have to go for scans every 4weeks now and went for one today at 16 weeks. The baby is growing well and there hasn't been negative changes with the gastroschisis, so I'm trying to take some comfort from that.
My boyfriend and family keep telling me I shouldn't be so negative and they're sure everything will be fine, and I know they're probably right, but I don't think anyone can understand unless it's happening to them.
I wondered if anyone had any experiences they can share with me. My main concerns are that I maybe won't be able to bond with my baby when it's first born, if it gets whisked away. I'm also worried that with a natural birth I may cause damage to the external bowel (although my Dr. told me today that once the head's out the rest comes pretty quickly and there shouldn't be a problem, but I still can't stop worrying). I'm also worried about the baby during his/her operation. Would really appreciate any advice or stories. Thank you x

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Are your children’s vaccines up to date?
Peacenquiet2 · 02/10/2013 09:39

Hi kerri, am i right in thinking this is a conditiin which literally means the babies bowels have remained outside the abdomen? First off you would'nt be normal if you did'nt have some worries and concerns about your baby, thats natural and shows you're a good mum.

From my understanding of the condition it's not very uncommon and is easily resolved once the baby arrives, i think they suspend the bowels in the air till they naturally go back inside and then just stich up the hole.

Im sorry i dont have any personal experience of this but did'nt want to read and run. Hopfully someone will come along who has more indepth knowledge/and/or first hand experience of this and can reassure you.

But keep trying to think positive, it seems the doctors are'nt massively worried which is always a good sign.

Kerri99 · 06/10/2013 21:54

thank you very much for responding anyway. really appreciate it. I'm hopeful all will be ok but don't think i'l stop worrying til the day I bring him/her home x

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Donna1989 · 12/10/2013 17:54

hi hun just joined this site so if I've posted wrong sorry lol but I've had personal experience... I was at my 20 week scan finding out the sex of my baby and I kept looking at the nurses face as she kept looking funny she then said to me 'bare with me 2 minutes I'll be back' me worrying staight aeay to ehy she left the room she came back with another lady introduced as a doctor this doctor confirmed that my lil girl actually had gastro and that I shouldn't worry and had appointents every week my little princess was also on the small side so I know how u must be feeling scared and feling like its all my fault I went home cried everyday as I was constantly worried and scared of every nighle, pain that I was having... coming un to the third trimester of the pregnancy nor could I relax or sleep so was worn out at 32 weeks I started t get contractions every 5 mins went to hospital and they rushed me on a drip and gave baby steroids this stopped labour and we lasted another 2 weeks (be aware gastro babys tend to cme early) so at 34 I gave birth naturally to a 3lb8oz baby girl I couldn't relax during birth which caused tension and nervousness so I was cut slighlty to help get her out (so relax) lool but other than that as soon as her head emerge her body just fell out lol ano gross Shock but my lil girl was taken away from me straight away and was given the treatment she needed she is a strong bean breathed straight away by her self and was kicking away lol it was 6 hours later I got to see my girl she was beautiful so small my miracle she had lots of monitors coming from her to monitor her breathing and heart rate, there was also a large condom (silo) coming from my babys belly button and tied to a metal light above her, in this was all her bowels it wasn't as scary as I thought it wud be so just stay calm. it took them a week to put her bowels back in her tummy and layed her umbilical cord back over for it to heal she difnt have no stiches nor has she got a scar just an owty belly button lol my baby girl was aloud home a month later when she gained good weight and was over5lb my girl is near her 3rd birthday and is so intellegent lol so my tiny tot the only thing that she suffers with due to her gastro is reflux but its easy to settle I hope I have helped slightly try not to be too worried as they are stronger than u think. Grin Smile

oh and one warning Do Not Read wats online doesn't help xxxxxx

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