anyone out there suffer from hypermobility syndrome??

[Stom91]

soo, i suffer from hypermobilty sydrome which is rather pain full at times.. been off work since mid august and having to start my mat leave early in october due to barely being able to walk.

ive been reading about it can cause you to have a rapid labour (this is my first pregnancy) i also find that local anaesthetics wear off rather quick or dont work at all.. ... it also says that sometimes epidurals don't work ( im not planning on haviing one but its good to find out all the facts)

i just wondered if there was anyone out that that suffers from it and how their pregancy/labour went.
itll also be good to find someone that understands. i find that because people cant physically see theres anything wrong with me, they tend to assume im faking it.

my first mw didnt have a clue what it was, my second thankfully knew what i was talking about (was surprised i hadnt seen a consultant yet) and has booked me in to see a consult in a few weeks.

sorry if this is long winded

No not really as it's really painful.... Our. Ligaments can't hold the bones together properly so muscles pick up the slack... Which makes living painful... Things over stretch and can dislocate easy in some cases.

I'd give anything not to have it.

I have it badly (hips & back in particular) and was advised to have a elcs - so I did :)

Ps an early elcs - much better

And yes it is better in terms of labour being quicker - problem being that you totally screw up your hips/pelvis to enable that, so really best avoided

I have hypermobilty and sufferers from SPD/pgp from about 20 weeks in previous pregnancy. I was signed off work from 26 weeks as unable to sit/stand/lie for long periods.

See a physio, get a support belt, put a pillow between knees and a duvet under sheet it really helps the aching hips. I found acupuncture very useful for helping symptoms.

If something hurts don't do it!

Slightly scared as 8 weeks pregnant and have already had twinges. No idea how I will run after a toddler when I could barely get out of bed or to the loo last time!

Sorry to hear about your pain :(

I have it too but had been doing Pilates for a couple of years pre-DD's arrival. I managed quite well and was doing yoga and Pilates until 40 weeks.

Labour was quick ish (8 hours from first contraction to birth, delayed an hour or two by unrelated complications) but I just used a TENS machine and was fine.

Afterwards however my symptoms are noticeably worse and I have permanent knee and foot pain from HMS. I do play a high impact team sport though so it's my own fault. I'm no longer doing Pilates which doesn't help...

Good luck with the birth OP.

Labour was very short. Under an hour waters breaking to delivery would have been quicker if she wasn't so big so needed an episiotomy and then she flew out!

Thanks what is pgp? I've been signed off since 22 weeks. I'm 27 now... Getting fed up of being in pain...

Today has been awful I really duno how I'm going to cope the next 13 weeks!

I'm seeing a consultant in a few weeks so. I'll see what advises? I'd like her to come a week or 2 early. Only because she's due 21st December lol and that's too close to Xmas!! Lol

Pelvic Girdle Pain, also known as SPD (symphis pubis dysfunction, I think) and pelvic instability.

Ahh thanks. .. I haven't been told I have they.. But there's still time lol

I'm hyper mobile, I can dislocate my hips at will etc.

Labour was 4 hours, but 4th degree tear :(

Only from reading this am I realising there could be a link!

Good luck with your pregnancy.

Thanks... I can bend really well but I can't dislocate anything.... I do keep twisting my Ankle because of it.. Next time i do it i could snap it as it's so weak :S

Yeah maybe worth checking it out if you have another baby...

Thanks xx

No more natural births after a 4th degree tear, second baby arrived two years ago by c-section!

Do you mean that you go over on your ankle a lot? Again something that I do that I hadn't thought was related, my ankle often seems to collapse on me. I just thought I was a clumsy mare.

yeah exactly that, i used to do it alot in primary and secondary school, (didnt know i was hypermobile til i was 12) so that possibly why.. i then fractured it from going over on it... they said i do it badly again it'll break badly/snap..

yeah, i would say its related.... every bone in my body cruntches... when i eat you can hear my jaw crunching, its awful.. dp as to sit across and not next to me as it freaks him out lol.. xx

Are C-sections scary? x

Sturdy shoes for you!

Planned c-section was lovely, nothing but really nice memories, very relaxed. Up and about the next day and back at playgroup/ shops etc within a week.

Hope you find a way to ease the pain soon, I know some people use support belts and such.

yeah im going to get one wheni get paid next week...

yeh never wear heels, always in my trainers. lol..

maybe a c-section is worth thinking about then :) xx

thanks me too.. had enough now lol xx

Hello! Signing in as another EDS/hypermobility type III sufferer.
My pregnancy was fairly medicalised as I was scanned weekly until 19 weeks to check for potential membrane ruptures. Everything was fine and I progressed well although SPD was an issue for me.
My notes had NO VENTOUSE written all over them in red for both mine and babies well being. Ventouse deliveries are dangerous for babies born with EDS and I was adamant I wasn't having forceps either.
Eventually induced at 40 +10 and had a 53 hour labour resulting in a natural birth although with epidural. I had a mobile epidural and it was fab. I could feel enough to bear down and push and move around the room and I gave birth on a birthing stool.
As is customary in my family my placenta didn't come away and I had to have a manual evac. Not fun, and worth checking whether it's an EDS/hypermobility thing, I'm not sure. It made a minor tear fairly major and I had a partial vaginal prolapse but that is now quite well recovered. Also quite normal for EDS ladies as it's ligament related.
A relatively good recovery and dd is now nearly 4 and displaying all the signs of EDS III but otherwise healthy and happy.

thanks for commenting!

yeah i dont want to be anywhere near a ventouse or forceps!!
im really hoping for a waterbirth / c section (if i have too)

im super worried about tearing :(

This link to the hypermobility syndrome association website may be helpful for you and give you some things to speak with your midwife about.

I will say try not to worry about tearing but it did happen to me - BUT if you look at the number of people who have posted on here that are hypermobile only a couple of us have had bad tears so the very unscientific odds are ok.

thanks, ill take a look :)

yeah, knowing the luck i have, itll probably happen lol..

yeah im trying not to worry, this is my first pg everything is so new to me x

I'm hypermobile - I can face one way from the knees up while feet are pointing the opposite direction and dislocate shoulders at will - both of which are fabulous party tricks.

While I was pregnant with twins, all went well until a week before they were due and I damaged a ligament (or was it a tendon??) in my fanjita-area. Not fun. The MW did tell me what it was called, but I forget now but apparently it's more common if you are hypermobile and also if you are under more physical stress, ie with twins. Made me feel like I'd been booted in the ladygarden and had to walk sideways like a crab for a few days until the pain became less extreme.

Labour itself was sloooow (induced) and intensely painful even when waters had only jjust broken and I was only 2cm dilated but epidural worked like a dream.

Pregnancy two (with one child) was easy-peasy in comparison. No fanjo-mishaps and epidural during C section was fine.

Best of luck.

I have hyper mobile knees, shoulders and hips. No idea how they'll affect labour as I'm currently 25+2 with my first.

However, on Saturday I managed to dislocate my knee and rupture my lateral collateral ligament by simply rolling my foot literally millimetres so am now in acute pain, in a leg brace and only allowed to take paracetamol :(

I have hyper mobility syndrome quite badly apparently (although I have no idea what this actually means as I know very little about it)

I was induced eventually. Baby had a bad reaction to pessary. Heart rate dipped repeatedly over 8 hours ended up getting rushed for ELC. The hospital had never sent for me for a Anesthetic assessment so I was given epidural which worked. Although I was fully able to move and walk less than a hour post op.

I wil be having a ELCS next time.

I've got hypermobility syndrome. 3 fast labours (4.5h, 1.5h 2h) and a C-section. I find my waters usually break a while before labour starts which is common with HMS.

miss may be worth you taking a look at the link above :)
Thanks for the comments... Really hope labour isn't too bad I'm getting worried now...