Still bleeding at 8-9wks - your thoughts? Hughes Syndrome (Sticky Blood)?

[Happysurprise]

I have been bleeding for 9 days now, I have had two scans a week apart and there is a heart beat although measuring smaller than the date I calculated and the growth between the 2 scans was smaller than expected.

My mum has Hughes Syndrome (AKA Antiphospholipid syndrome or Sticky Blood) which can lead to miscarriages. However these can be very successfully prevented by taking small doses of Aspirin. However I dont want to take aspirin if its not required (potentially, I guess it could make the bleeding worse if its not Hughes as it thins the blood). Does anyone have any experience of bleeding with Hughes? What were your symptoms during pregnancy?

I am doing alot of guess work here because I have called the midwife team and left a message yesterday morning (no reply), I went for my standard blood tests this morning and asked them to test for this too (they wouldnt without me seeing a Dr first) - I cant get a Docs appt until tomorrow.

Bump

Hopefully your dr will sort this out tomorrow. If not, then I would go directly to the hospital and see if there is a walk in surgery at the a&e. With your mums history and you still bleeding, they need to take this seriously. Or you could go to the out of hours service tonight. It may be nothing of course, and hopefully your pregnancy will be fine, but you need to set your mind to rest.

I have Hughes and have had spotting in my last two pregnancies, since it was diagnosed. However, I don't think bleeding in pregnancy is associated with Hughes unless it's sadly due to a miscarriage and I do think mine was unrelated. (I had cervical problems which have since been treated)

I'm sorry to say that I doubt your GP will be able to give much advice, they aren't that knowledgable about Hughes generally, or aspirin therapy in pregnancy, in my experience. My sister asked for blood tests for Hughes and they didn't have a clue what she was talking about or what to do.

You don't say how many weeks you are, but could you Ask your midwife for a one off appointment with the obstetric haematologist for tests? Are they investigating the cause of the bleeding further?

Hi Midori thank you for repling. Sadly I lost the baby early this morning and I went to the doctors. He was very kind and took blood to test for Hughes although rather worryingly he couldnt find the test name on his database so just wrote on it "test for Hughes/APS" so I hope the haematologist knows what to test for.

Its very likely its just a standard miscarriage but I would like to rule it out just incase I can easily prevent it happening again (supposing I get pregnant again).

I was 9 weeks today. Bleeding started at 7 weeks. I read that Hughes quite often causes miscarriage in early pregnancy (and also around 20 weeks).

My midwife still hasnt called me back after leaving several messages on the answer machine on Wednesday morning. To be honest after meeting them they were so useless at putting my concerns at ease I decided to have a C-section, none of them would have given me any confidence in delivering my baby safely.

I'm so sorry to hear this. I hope you get your tests done and go on to have another pregnancy. Xx