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Original poster

Anyone given lowish odds for Down's who went on to have a Down's baby?

15 replies

Onlyconnect · 06/02/2013 20:43

I'm just wondering if anyone went onto have a Down's baby after being given their odds but not having had further iagnostictesting. I guess some people must do but I never seem to hear of anyone.

OP posts:
midori1999 · 06/02/2013 21:02

My odds with DS3 were about 1 in 10,000 from what I remember. He has Downs Syndrome. I was 27 and it was the last thing i expected.

Just about everyone I know whose child has Downs didn't find out until after the birth, many had screening tests.

Original poster
Onlyconnect · 07/02/2013 06:58

My goodness midori they are the lowest odds I've ever heard!

OP posts:
PfftTheMagicDraco · 07/02/2013 07:09

The term is not "a Down's baby"

Original poster
Onlyconnect · 07/02/2013 07:24

pfft I'm sorry. I genuinely don't know what the correct term is then. Absolutely no offence meant.

OP posts:
midori1999 · 07/02/2013 07:38

I can't really remember, but I think my odds were about the same for all of my first three pregnancies.

We declined screening in subsequent pregnancies. DS 3 is almost 9 and we would neither choose an amino, due of the risk of miscarriage, nor terminate a pregnancy where the baby has Downs. I'm not going to lie, I'd prefer this baby not to have Downs, DS can be hard work at times, but obviously not enough to just not want another child with Downs. Smile

CareerGirl01 · 07/02/2013 07:39

One of the ladies in our parent group was given 400:1 chance of downs and her daughter was born with it. I was given odds of 350:1 with DD1 and then 127:1 with DC2 - we had CVS blood tests and an extra scan. We know almost as much about DC2 - who is due early May - as we do about DD! But the thing is they can't give every pregnant mum the same sort of tests as we had - my age -42 this time - flagged things up.

realnappiesmum · 07/02/2013 07:43

My beautiful little girl has down's syndrome. She is a baby who happens to have down's syndrome not a down's baby. Quite obvious what the proper term is as you wouldn't call a baby who had a club foot for instance "club foot " baby would you? Babies with down's are babies not medical conditions. Rant over. I didn't have bloods done as couldn't measure NT at 12 week scan and wouldn't have made any different anyway if we'd found out any earlier so not much help to you in answering your original question. Found soft markers on 20 week scan. She is a beautiful little girl and has filled our lives with so much love.

Christelle2207 · 07/02/2013 08:48

this happened to a friend. Having said that their ds gives them so much joy. They went on to have two other healthy children.

Im actually regretting having the nt test because the risk factor doesn't really translate to anything does it. I'd much rather just know either way but not up for an amnio.

PuffPants · 07/02/2013 09:44

A friend of mine was given low odds, didn't have any further testing but baby had Down's. They didn't find out till after the birth. Even if you are given 1:10,000 - somebody has to be the one.

Are you worried about something OP?

Original poster
Onlyconnect · 07/02/2013 13:48

puffpants i have been given odds of 332:1 and am deciding what do. I have posted about it already. I'm a mass of indecision.
realnappiesmm absolutely your baby is a baby first and foremost. I certainly do not intend any offence and do believe language is important. I will use the terms you suggest in future. The only thing I woud say that sometimes insisting on certain terms in itself belies the very attitudes we want to avoid. Would you see a problem with 'big baby,' 'red-headed baby', ' premature baby' , 'hungry baby,' for example? I'm not trying to argue with you, I just think it's interesting.....

OP posts:
lotsofcheese · 07/02/2013 13:57

Only: I had similar odds to you (1: 357) but chose the amino after discussion with foetal medicine. Perhaps you could call them & talk things through?

I needed to know for certain & was concerned about continuing a high-risk pregnancy if baby had chromosomal defects. Plus I'm 40 & had a low PAPP-A as part of the screening for Down's syndrome.

However, I'd also had 2 m/c & agonised over the decision. I was reassured that the risk in my hospital for this was 1: 200, (I think). The agonising beforehand was definitely the worst, and the actual procedure was fine, over very quickly. It has given me peace of mind & I'm glad I did it.

Good luck with whatever you decide.

PuffPants · 07/02/2013 14:12

How old are you OP? 1:300 ish is ok isn't it? I was told less than 1:150 is the point at which they would be concerned. Just wondering whether your age might have skewed the results? I think it's important to look at each result individually.

Dannilion · 07/02/2013 14:34

On the 'flip-side' (can't think of a better term). A friend of mine had 1:3 odds of her DD having Downs Syndrome, and her DD does not.

rosiedays · 07/02/2013 14:37

realnapiesmum your post is beautifully written, thank you you lifted a small cloud from my heart. I'm 'High risk' but not having any tests. x

CareerGirl01 · 07/02/2013 14:48

My age did skew the results, we decided that whatever the result of the CVS we would have the baby - she is our flesh and blood and I don't think of DS as being a disability. We had the test because we were told there was a likelihood of 'other' genetic problems. You have to work out with such odds whether you really want the test or not realnapiesmum said it very eloquently.

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